Merci de votre poteau. Aux Etats-Unis il n'y a aucun coût postal. Je souhaite que vous bonne santé… pardonniez svp mon français pauvre. Respect Jeanne Doubet
That is surprising Shasha - like Jerebet mine was free mailing only mine was free from UK. I had to use the service they designated but that wasn't difficult. I joined for a nominal cost over 2 years ago. At that stage they were charging and I picked up a discount code at the Unity Walk in Central Park NY. Now it is free for PwP which is great. For those who do join they occasionally give very generous family offers.
From their last news letter:
"Our Parkinson's Research Community now exceeds 6,500 members. We published our first Parkinson's research paper and identified a genetic factor that may protect against Parkinson's disease in those at high genetic risk.
We are still seeking 3,500 people with Parkinson's to participate in this research for free. If you know someone with Parkinson's, please encourage them to sign up.
We are truly grateful for your participation in this research. There is strength in numbers and 2012 promises to bring us closer to a cure for Parkinson's"
I too spit in the tube. Hope it helps as part of the database. The information I got got back was interesting but not certain how useful it was for me.
I too found the results to be a bit daunting. My report showed I had a "typical risk" of PD. I hope the information is helpful to further research and find a cure.
I also had mine done and I do the surveys, all it can do is help with research. But I don't understand what they are talking about! At first they said I had less than a typical risk. Then they updated and said I have a more than typical risk. I was diagnosed 16 years ago.
Have you spit and mailed? Chances are you won't get it. It seems to be certain markers that run in families, such as aunts, uncles, grandparents etc. I've told my children not to worry.
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