The 23andme clinical trial for Parkinsons just requires you to provide a saliva sample via a kit that they will send you. Send it in and you should get a great DNA report and even a family history / ancestry report (I am waiting on mine).
The more people who enroll in this research, the more powerful it becomes, and the more likely it is that we can find a cure for Parkinson's. Again, it's free to those with PD (normally it's $199).... more info at:
This is great... very informative. I did it awhile ago and was amazed at how much you get for nothing. My kids loved it too because they could see where their ancestors came from.
I have done this and feel it is a real contribution I can make toward a cure. It is extremely informative and is completely internet based. You never have to leave your home. The fact that it is free for PWP is another positive.
Diane, so glad you brought up the fact that you don't have to leave home! It is already helping PD patients... it's free, and you get valuable personal genetic information. My total time investment included a short 15 minute survey and 5 minutes to go through the saliva collection kit. This one is a win/win for everyone!
Not for PwP living in the UK.,.
Oh no! Terrible news!
Yes, we agree.....that is terrible news. What a pity we in the UK are excluded! 😢
I just ran across this (and I sent a note to 23andme asking when they were going to add the UK).
The 100,000 Genomes Project aims to transform NHS healthcare by integrating genomic medicine in the diagnosis and treatment of health conditions. The researchers are studying people with early onset and familial Parkinson's and related affected and unaffected family members to understand more about the condition and help develop new tests and treatments.
Where: England
Who: 1000 people with Parkinson’s (either early onset before the age of 45 or familial)
Deadline: December 2017
Funded by: Department of Health- Genomics England
Read more about the study in the information sheet:
If you’re interested in taking part, please contact:
Katrin Hoffmann, University College London
07557 238 796
Katrin.Hoffmann@nhs.net
Go here for more info on this and other UK trials - looks like some great stuff going on!
What could be the cause of restless leg syndrome
Too much C/L
Recording available for NSB4PD webinar with Dr. Sackner-Bernstein on "Why I am optimistic that we might now have a Silver Bullet for PD"
