Rest vs Guilt

[blazyb]

As I am forced to rest I truly can’t help feeling guilty - I must fight this because rest is one of my only weapons as no treatment exists but it is still a major adjustment. fightingparkinsonss.com/202...

[park_bear]

A worthwhile discussion topic. Which is best - if I've had adequate rest, whether it is best for me to take an additional rest to honor Parkinson's fatigue, or to take some caffeine and tend to matters which need to get done.

[blazyb in reply to park_bear]

very god question

[Veravrida]

Maybe it'it's better not to fight of feeling guilty about it, that is only lost energy.

[alaynedellow]

I think most of us will understand your dilemma. But don't be so harsh on yourself you'll have to learn to take rest in order to carry on.

I can be active most of the day and good for me but sometimes you need to rest , at those times. I do my crossword and cup of tea and just enjoy the rest and then back to it.

I really think being gentle with yourself is good. Don't feel guilty. Don't feel useless because you're not. We live to fight another day, good luck.

[134A in reply to alaynedellow]

I believe that it is not a moral weakness to rest when you need to 😀

[715McGee in reply to alaynedellow]

You need to ask yourself wy is it you feel guilty or what makes you guilty !

[Parkytulip]

Yep I feel the same guilt. I used to be able to do so much in a day, full of energy optimism. But now frequent rest is the only way I can keep going. I need at least 10 hours sleep as well as resting regularly. I feel guilty because I feel I am not pulling my weight. Que Sara Sara.

[Kenekekiane in reply to Parkytulip]

I too feel guilty about resting during the day. I've always been busy and involved in my home, yard etc. Now daily projects seem immense. For me is it PD or being 84??

[Parkytulip in reply to Kenekekiane]

Maybe a bit of both. I am seriously thinking about giving up one of interests in a group I attend because I feel that I am not contributing much to this group. Not only does parkinson's take away so much physically it can rob you of your self esteem. But as I keep reminding myself. There are people so much worse off than myself. I have had 77 years of life on this planet.

[blazyb in reply to Parkytulip]

I feel a bit like an iPhone that has started to lost battery quickly … it still looks similar but just can’t explain why its performance is just so much slower all of a sudden

[715McGee in reply to Parkytulip]

You need to learn to love yourself. Truly !

[Bracondale]

Try not to feel guilty as this will cause subconscious stress and will negate some of the benefit rest. You are listening to your body and giving it what it needs. Pushing through is often counter-productive long term.I don't have PD but do have a chronic 'energy' problem, but interestingly have the best readings on my Lumen device (measures metabolic flexibility ie metabolic 'health') when I have done 20mins Yoga Nidra which inevitably leads to a short nap too mid/late afternoon. Don't feel guilty!

[Jessbr]

I hear you. I have the same problem. I need rest but “should” exercise more. I guess we just do the best we can…

[LivSimple]

My husbands PD is very cognitive and if he fights through his fatigue, then his memory and cognitive issues and balance get so much worse, as does his nightly sleep.

[blazyb in reply to LivSimple]

wishing him well

[bassofspades]

give yourself permission to rest and be kind to yourself! I had this sort of issue for my whole life where if im not burning fuel I got frustrated with myself. Learn the ways of SELF CARE. This is how I was taught to have patience with myself, from Nichole Sachs LCSW ,renowned author and therapist: If you had a chronically ill child, wouldn’t you want them to rest if that was best for them? Yes? Well, become your own child.

Thanks for sharing your story too.