Anyone else Parkinson spouse always cold?Has been 78 degrees in house as weather is warmer--I do not keep heat at that in winter,he is always freezing!I am always burning up?Why is he always freezing?I really dislike the heat and summer humidity.
Thanks
my Parkinson spouse always cold, while I am hot. Because I am hot my wives lap dog prefers to sleep next to me. I am a cat person with six cats. My wife wishes her dog was closer to her.
Oh yes how I relate to that, the slightest breezing in bright hot summer conditions and the house is shut up tight, I sufficate at times in the winter the heat is turned up so high.
We have tracked some of the cold feeling down to where he is in his Sinemet timing, now every 3 hours 25x250.
Think its something we have to live with, side by side houses anyone?
Aha, I remember the cold spells that came during my Sinemet schedule. I do not miss them. I suspect they were caused by the carbidopa messing up my metabolism. Ask your spouse to try using a vitamin drink like EMERGEN C once a day or drink a bottle of vitamin water that has just a small amounts of b6. B6 might help. I don't know, I didn't ever try to defeat those cold spells they just stopped when I quit taking Sinemet. I just slipped on a house coat or sat dwn and pulled a comforter over my shoulders. But I read recently some poor research that implied carbidopa is capable of lowering the metabolism at a cellular level where the body heat is generated and someplace else (probably here) I read that a small amount of B6 helps people that take carbidopa.
Thanks for the speedy reply, how small is a small amount of B6? If he stops Sinemet he comes to a complete stop, cant talk or function properly.
If he stopped carbadopa would that not stop some of the benefits of Ldopa crossing the blood brain barrier?
I think its important to check information to see if facts are indeed facts.
I have had problems with my body not reacting to temperature changes and also to overheating. I can sit in a room that is slowly getting hotter and hotter or colder and colder, without knowing it. Eventually, someone will come into the room and say either, "Aren't you hot?" or "Aren't you cold?" and would think about it an say "no!" But when I touched my bare legs, when it is cold, I would feel that they are cold, but my brain does not tell me this! When I am hot my body doe not react by starting to perspire! However, when I am walking fast I generate a lot of body heat and I perspire like crazy.
So, it is not that my sweat glands are not working, but they only work under certain circumstances.
I don't know the solution to this problem.
I don't know the technical term for it (perhaps someone else here does) but Parkinson's effects the internal mechanism in the body that regulates the feeling of hot and cold. For me I usually get too hot when it isn't even a little hot in the room. After awhile that goes away and sometimes I get cold when the room is the same temperature.
Here is an article explaining the phenomena:
Thermoregulatory Dysfunction in Parkinson’s Disease
link.springer.com/chapter/1...
Thank you!
Yup...that is what I was talking about Silver. Thanks for the confirmation and the science of it.
I shake violently from the left shoulder if I get overly cold.
OH YES! Cold definitely brings on the tremors. I was in Walmart just yesterday and forgot my sweater and it was freezing in there. I was miserable with the shakes and aches and could not wait to get outside into the 79F sunshine. Walmart lost some money on me because all I could think about was getting out of there.
what can my husband do to help with freezing?
Has anyone had any progress with B1 protocol while taking a multivitamin or other supplements ( fish oil, turmeric..) ???
Freezing getting worse
