Choices - where do we start?

[blazyb]

The choices we face are simply bewildering - how do we decide how and what to do and Happy New Year fightingparkinsonss.com/202...

[Boscoejean]

Happy New Year- as far as not being able to sleep- do you have ideas on the cause or is this adequate?

[blazyb in reply to Boscoejean]

It is clearly not enough and am working on it.

[DEAT]

You mentioned your addiction.

Can I ask is this from PD medication ?

Dopamine Agonists?

[blazyb in reply to DEAT]

I don’t know but highly possible that it is

[Henk6]

start with keto / or better / carnivore lifestyle . Add methylene blue ànd PhotoBioModulation

[blazyb in reply to Henk6]

Thanks. Lots of people say this. My dietician and neurologist strongly said Mediterranean without chemicals, low red meat, low salt/sugar and generally whole meal carbs etc

[Nikkiheat2 in reply to blazyb]

What helps my husband is to write down what he just ate after he has a particularly tremor calming or tremor inducing meal. After doing this for a while, we have a list of meals that seem to help the most, as well as what to avoid, so we try to just stick to the helpful foods. His food list isn't any particular medical diet out there, like keto or MIND, and it may not even help anyone else. But he has been doing better on it.

[Nikkiheat2]

The good news is that there are probably thousands of studies on diet and lifestyle changes that might help PD, or at least help in some human or animal studies. We just made a big list and put it in Google docs, and work through the list, one or two new things at a time and see how my husband does. Licorice tea turned out to make him worse, cumin seems to help. The vibration platform didn't help, but a vibrating fold out mat does. We just keep testing one or two changes at a time - not too much all at once so as to not muddle the results.

[wrnosek in reply to Nikkiheat2]

Hi Nikkiheat2, Can you provide information on the vibrating fold out mat and where you got it? Thank you.

[Nikkiheat2 in reply to wrnosek]

Sure - he has the Comifier full body massage mat with heat and a neck shiatsu massager. He doesn't use the heat or the shiatsu part, just the vibration mode. We bought it at Amazon. Another thing that helps him is when I take a little hand held massager and place it on acupressure points that stimulate the vagus nerve, like his inner wrist. I can often get the tremors to stop, at least temporarily, by doing this. He has tried holding it himself, but it doesn't seem to work as well when he holds it or we prop it up for some reason. Stimulating the vagus nerve increases dopamine, and research shows many with PD have atrophied vagus nerves.

[wrnosek in reply to Nikkiheat2]

Thank you for your response! Have been reading a lot about the vagus nerve through someone I follow on Twitter.

[Nikkiheat2 in reply to wrnosek]

Yes, I think with my husband the vagus nerve is a key factor. If you ask Gemini, the Google AI, he will summarize the research for you on PD and the vagus nerve. Or you can copy and paste some of the studies and ask him to summarize them in layman's terms. I do that pretty often. There is also interesting research on lectins, PD, vagus nerve and leaky gut.

[DogsWoode]

Thank you. This was a helpful read. And it helped me to feel connected as we step into 2025. May it be a good year.

[Marcia123]

very well done