Where do we find the strenght?

[Fed1000]

Chronic fatigue is one of the most devastating motor symptoms of Parkinson's. Paradoxically, constant physical activity is required to counteract its progression (better at high intensity, according to studies), but where can we find the energy to do all this? Despite my large collection of supplements, energizers, anxiolytics, etc., four years after the diagnosis, I still don't know. Advice is very welcome.

[Nitro53]

My problem exactly. Love to hear some answers.

[park_bear]

I have been experimenting with honokiol. It is not working for me, so far, because it has caused too much wakefulness which has interfered with my sleep. It is a very natural wakefulness though, so it may be useful for those with daytime fatigue. I would take one dose first thing in the morning, only.

The expensive pure version I have been using:

amazon.com/gp/product/B005E...

Much cheaper version almost as good:

amazon.com/Swanson-Magnolia...

Note: some Amazon reviewers said this helped them sleep, so my reaction may be atypical. Try this on a day when it will not matter if it makes you sleepy.

[Fed1000 in reply to park_bear]

Thanks orso_parco I will surely take your advice into account. I am currently using Tru Niagen but with no tangible results.

[Bolt_Upright in reply to park_bear]

So far, about a week in, my Swanson brand may be helping sleep. It is not keeping me awake. I take it with my Niacin before bed. Not sure if it is helping with RBD or not yet.

[laglag]

I'm serious about this, try RSB .

rocksteadyboxing.org

After a few classes, you'll start feeling better. 🥊

[AaronS]

How is it actually a motor function or rather lack of a motor function ? Isn't chronic fatigue an auto immune system issue? Maybe you should research stealth illnesses/infections such as Lyme disease or the like, not everything that you can suffer from Parkinsons is necessarily because you have Parkinsons, even tho PD gets blamed for everything and nothing gets sorted.

[jeeves19]

BassofSpades once recommended Whey Protein to me for this. It seemed to work. Also, when I juice lots of greens like spinach, kale etc seem to give me an energy boost.

[Fed1000 in reply to jeeves19]

Thanks Jeeves for the advices.

[Zardoz in reply to jeeves19]

Jeeves, is it a concern for you that greens are high in iron?

[jeeves19 in reply to Zardoz]

I understand that it could be an issue but I think that the nutritional power of spinach, kale, watercress etc are virtually beyond reproach 🤔😊

[SAGoodman]

I have the same issues, but I did find out my testosterone was low, and I had pretty bad sleep apnea. I have been taking testosterone enhancing suppliments and I just got my CPAP after almost 5 months on a wait list. I have been slowly working out on the treadmill and have finally been able to run instead of walk for a little while, and my heart is finally responding by my heart rate lowering a little each workout. Will update on CPAP after I get more time with it.

Hang tough....

[Fed1000 in reply to SAGoodman]

Thanks I'm happy for you. What is the CPAP?

[SAGoodman in reply to Fed1000]

It is for sleep anea

[hmm777 in reply to SAGoodman]

I also have greatly benefited from testosterone replacement therapy and a CPAP.

You can find a discussion of the testosterone issue (comorbidity of low testosterone and PD for men) here:

healthunlocked.com/cure-par...

"CPAP" stands for "continuous positive airway pressure" and refers to a machine that creates such pressure by means of a face mask in order to keep your airway open while you sleep.

[Zardoz]

I too am dealing with fatigue, but I wouldn't call it chronic fatigue because it doesn't have all the symptoms of that disease. My fatigue kicks in rapidly as the levodopa wears off and is characterized by weakness and slow movements, like a sloth.

I did some study of problems with the mytochondria and am using the following to repair them:

Alcar, a combination of R-Lipoic acid and Acetyl l-carnitine

vitamin B-12, in the biologically active forms of methylcobalamin and adenosylcobalamin

NAD

Ubiquinol and PQQ

Rhodiola

Direct sunlight

[Fed1000 in reply to Zardoz]

Thanks Zardoz, basically that's what happens to me. My tendency to take as little levodopa as possible, does the rest.

[park_bear in reply to Zardoz]

Acetyl l-carnitine caused me circulation problems

[Despe]

I second your motion!

[GrandmaBug]

When I figured out I had PD I was extremely fatigued all the time. It would take six months to get in to a MDS to confirm the diagnosis. That six months before my appointment I completely revamped my diet following the Walhs Protocol, level three, ketogenic, intermittent fast. By the time I have my appointment, my fatigue had gone away. It remains away two years into my PD. I also started exercising using the John Pepper method of walking. I started with the ten minutes he recommends, and thought I would die. Seven months later I was up to the full hour, and walking tall and proud. My advice...look at your diet.

[Kia17]

Eliminating sugar , gluten,dairy , animals protein and eating fresh foods will make a huge difference combined with HDT and Folate 400mcg.

[Sydney75]

C/L helps with the overall pain and stiffness, but strangely after about 20 min after taking pill HWP is very sleepy. Faitigue is why he was misdiagnosed for 2 years, did not have a tremor. Some days he is able to push through. Trialing Nourianz ,very $$, our current ins. pays for it after deductible. With that change he is cognitively much better and no big side effects. 25mg CBD with 5% thc gummy, no prescription needed, has helped him sleep longer. Poor sleep is cumulative; he plans his work week with 2 days that have a late start, and late start on weekends. Complicated ortho history with back also hindered diagnosed with PD. Did genetic testing (5 kids) his is not genetic, no markers, I think lifestyle changes like diet will be very important. Have the Wahl's books, going to start with level one, its not that difficult.

Another interestingly note on faitigue. He has done gluathione pushes with functional MD, a few hours after the injection he is extraordinarily tired for over 12 hours into the next day. MD said it because body is detoxing, he doesn't think it is worth it, going for daily liposomal glutathione or NAC.

There is a website devoted to chronic faitigue. You may find helpful information. A S Florida MD Nancy Klimas has worked/researched in this field for a long time. Unfortunately, she is not seeing patients outside of Gulf War Syndrome now. She recommends many of the same supplements I have read from other on Healthunlocked. Hope this info helps you.

healthrising.org/