11 years ago today

[bassofspades]

My Facebook memories remind me of the day I was blindsided by a neurologist that I was sent to to see if he could figure out why my handwriting was suddenly so terrible. Well, he nailed it! Cheers, friends! 🍻 11 years since my diagnosis of Young Onset Parkinson's Disease at age 44. Honestly, I thought that I would be dead by now. I'm thankful that I'm not nearly as bad as I expected to be at this point. Thanks everybody, for being there for me when I have questions and for all of the suggestions and moral support over the journey that we're taking together.

Love,

bassofspades

[eschneid]

Right back at you and thanks for the occasional guitar playing......hope the next 11 are even better.........

[LAJ12345]

good to see you so positive!

[JayPwP]

Congratulations my friend... I love you...

[Gioc]

I have a proposal for the next years, a new challenge or game, that is, finding a cure and healing forever... If not here on HU CURE PARKINSON’S, where?

what do you think about?

Greetings from Italy bassofspades

On our journey, never lose sight of the mountaintop which is the goal.

[bassofspades in reply to Gioc]

I have some ideas:

1. Probably Elon's Neurolink device will come pretty close to restoring normal function.

2. Early genetic testing for Parkinson's variants and prompt CRISPR gene editing could be a potential prevention/cure for those who fall under that category.

3. Stem cell implantation

4. Anti-alpha synuclean plaque agents/ vaccines for misfolded protein clearance.

5. Preventative measures - eliminate toxic pesticides that are decimating people's nervous systems. Clean up environmental causes that are cleanable and preventable.

6. Drug companies have to have an incentive to release a cure. Right now, they get steady income from management of symptoms and not curing. This greedy mentality is not acceptable.

[Gioc in reply to bassofspades]

👍👍👍👍👍👍   bassofspades

If you can see it you can have it!

It also applies to a Cure for PD without objections and without prejudices, I am convinced that if a group of PwPs and Researchers wanted a cure with intention, the cure would be there soon. This could happen in the US, in China, in Europe, or anywhere on the planet.

We do our part of the work.

Greetings from Italy

Gio

I ❤️ trees.

[bassofspades in reply to Gioc]

I ❤️trees too!

[JayPwP in reply to bassofspades]

Point 6

Let them find a cure, and cure us as a loan on EMI. We will be cured and they'll get a steady monthly income

😆😆😆 Just kidding

[gomelgo in reply to JayPwP]

Loan on EMI? What does that mean?

[JayPwP in reply to gomelgo]

Means fix a value for the cure. Then add interest and divide the amount by number of months. Patient to pay Equated Monthly Installment.

[bassofspades in reply to JayPwP]

Lol i thought you meant TheCure the band on EMI Record label! 🤣

[JayPwP in reply to bassofspades]

😆😆😆

[bassofspades]

BTW, The "Kate B" that is referred to in the post below it is Kate Bekinsale in the latest UNDERWORLD sequel, AWAKENING! Highly recommended! Not to be confused with the other movie called Awakenings, en.wikipedia.org/wiki/Awake... which everybody who has Parkinsons should watch. I dare you not to cry!

[Lovevirk]

I fully agree pharma lobby is not inclined to put in enough efforts to find cure. And the reason is obvious. They get steady income through PD management medicines. Otherwise if drug/vaccine for COVID was found such tearing hurry why scientists can not find cure for PD.

[bassofspades in reply to Lovevirk]

Covid vaccine, don't get me started.

[Pixelpixie in reply to bassofspades]

No vaccine killed my MIL. I want the vaccine

[Painty23Painty]

👍

[Edge999]

Glad to hear! , im diagnosed 2 years ago at 44 like you trying to hold my life together. Hoping i will be on as good a trajectory as you.

Im still hoping our ketovore diet will get us some where!

[bassofspades in reply to Edge999]

I think being more cognizant of what we are nourishing ourselves with is one of the most important things we have the power to control. Good luck friend!

[pdpatient]

Good to hear from you and your optimism, bassofspades . I like your flippant attitude towards PD and an approach that I wish I had adopted on day one of diagnosis. I was diagnosed 12 years ago.

I wish you the best and many more good years to come.

[bassofspades in reply to pdpatient]

Thank you and all the best to you too friend!

[RonB1]

Great news! What is your secret to longevity and fair health?

[bassofspades in reply to RonB1]

A lot of luck is the secret to success. Being hyper vigilant and hyper diligent, learning all that you can and remember, try anything reasonable. What's the worst that can happen? We already have Parkinson's disease!

[RonB1 in reply to bassofspades]

I have found 'success' with the right combination of exercise, medication, natural supplements, glutathione IV's and proper sleep. Although my tremor is still slowly increasing.

Can you still play the bass? I've been playing guitar for decades but it is starting to get harder now. Rhythm isn't bad, but flashy solos are tough.

[bassofspades in reply to RonB1]

I still do play the bass! Im actually considered the best bass player in town and I get invited to jams all the time. Trying to juggle 4 bands with PD is a bit overwhelming, though, but at least my guys help me move equipment! Guitar is a lot harder for me. I have to be really ON to rock out on guitar and same goes for drums.

[RonB1 in reply to bassofspades]

Nice! Do you have any tremor? I'm probably going to switch to rhythm guitar soon : (

[bassofspades in reply to RonB1]

Yes I have tremors. Sometimes not bad, sometimes really bad. Pretty inconsistent but after I play for a while, tremors fade away.

[RonB1 in reply to bassofspades]

Hmm ... my tremor gets worse after I play for a few hours. Does anything help reduce the tremor?

[bassofspades in reply to RonB1]

I heard that 40hz relieves tremors and that’s the low E on a bass. Maybe that’s why?

[bassofspades in reply to bassofspades]

Embrace the BASS!

[lingfield222]

I have hugely appreciated your informed comments and thoughts. Its a tough road for all.

[bassofspades in reply to lingfield222]

Thanks my friend! God help us.

[enjoy2013]

I'm looking forward to Peter Tass 's gloves, and to David Wilkinson 's work on caloric vestibular stimulation. On microbiome manipulation, on genetic solutions to "sporadic" PD. I guess we will need to clean the alpha-synuclein trash with some improved lysosomial jobs. R&D mannitol and B1. Azathioprine? Curcumin and cinnamon?I'm staring on generic drug repurposing. The rest will come too late

[bassofspades in reply to enjoy2013]

If you want to clean up your own brain trash, learn about Autophagy! But I think you know that already 😃

[enjoy2013]

You are totally right. I'm trying hard, but in my personal and selfish case, because of my severe sleep disorder, I often end up eating something.... But otherwise, intermittent fasting and exercising hiit (the latter as a disease modifyer) are free, safe and well tolerated, and let's not forget the amount of data on HIIT for PD!