My Facebook memories remind me of the day I was blindsided by a neurologist that I was sent to to see if he could figure out why my handwriting was suddenly so terrible. Well, he nailed it! Cheers, friends! 🍻 11 years since my diagnosis of Young Onset Parkinson's Disease at age 44. Honestly, I thought that I would be dead by now. I'm thankful that I'm not nearly as bad as I expected to be at this point. Thanks everybody, for being there for me when I have questions and for all of the suggestions and moral support over the journey that we're taking together.
Love,
bassofspades
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bassofspades
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I have a proposal for the next years, a new challenge or game, that is, finding a cure and healing forever... If not here on HU CURE PARKINSON’S, where?
what do you think about?
Greetings from Italy bassofspades
On our journey, never lose sight of the mountaintop which is the goal.
1. Probably Elon's Neurolink device will come pretty close to restoring normal function.
2. Early genetic testing for Parkinson's variants and prompt CRISPR gene editing could be a potential prevention/cure for those who fall under that category.
3. Stem cell implantation
4. Anti-alpha synuclean plaque agents/ vaccines for misfolded protein clearance.
5. Preventative measures - eliminate toxic pesticides that are decimating people's nervous systems. Clean up environmental causes that are cleanable and preventable.
6. Drug companies have to have an incentive to release a cure. Right now, they get steady income from management of symptoms and not curing. This greedy mentality is not acceptable.
It also applies to a Cure for PD without objections and without prejudices, I am convinced that if a group of PwPs and Researchers wanted a cure with intention, the cure would be there soon. This could happen in the US, in China, in Europe, or anywhere on the planet.
BTW, The "Kate B" that is referred to in the post below it is Kate Bekinsale in the latest UNDERWORLD sequel, AWAKENING! Highly recommended! Not to be confused with the other movie called Awakenings, en.wikipedia.org/wiki/Awake... which everybody who has Parkinsons should watch. I dare you not to cry!
I fully agree pharma lobby is not inclined to put in enough efforts to find cure. And the reason is obvious. They get steady income through PD management medicines. Otherwise if drug/vaccine for COVID was found such tearing hurry why scientists can not find cure for PD.
I think being more cognizant of what we are nourishing ourselves with is one of the most important things we have the power to control. Good luck friend!
Good to hear from you and your optimism, bassofspades . I like your flippant attitude towards PD and an approach that I wish I had adopted on day one of diagnosis. I was diagnosed 12 years ago.
I wish you the best and many more good years to come.
A lot of luck is the secret to success. Being hyper vigilant and hyper diligent, learning all that you can and remember, try anything reasonable. What's the worst that can happen? We already have Parkinson's disease!
I have found 'success' with the right combination of exercise, medication, natural supplements, glutathione IV's and proper sleep. Although my tremor is still slowly increasing.
Can you still play the bass? I've been playing guitar for decades but it is starting to get harder now. Rhythm isn't bad, but flashy solos are tough.
I still do play the bass! Im actually considered the best bass player in town and I get invited to jams all the time. Trying to juggle 4 bands with PD is a bit overwhelming, though, but at least my guys help me move equipment! Guitar is a lot harder for me. I have to be really ON to rock out on guitar and same goes for drums.
I'm looking forward to Peter Tass 's gloves, and to David Wilkinson 's work on caloric vestibular stimulation. On microbiome manipulation, on genetic solutions to "sporadic" PD. I guess we will need to clean the alpha-synuclein trash with some improved lysosomial jobs. R&D mannitol and B1. Azathioprine? Curcumin and cinnamon?I'm staring on generic drug repurposing. The rest will come too late
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FUS PTT in Switzerland - 2 years update.
Failing test
Started thiamine hcl today 
PD poem I wrote a few years ago. Enjoy ...
