My husband was told he had PD 2 years ago! Is it just me or is he going downhill fast?

[leslie2234]

He forgets A lot and loses his balance easy. It takes him 2 or 3 trys to get off the couch. His shakes started with his left leg but now his right arm is shaking. He goes in 2 weeks to see his doctor.

[Hidden]

Read what Doc Costatini has done for me. On my Profile.

[johntPM]

We all have different symptoms and different rates of progression. But, we should all be properly medicated for our condition. You don't give information as to your husband's drug regimen. It could be that he needs to be put on levodopa, or if already on this, to have his dose increased.

Two years post-diagnosis, he should have a good quality of life.

John

[sharron2]

My husband had issues with balance, nausea and fatigue along with depression. We really focused on the balance as we felt it contributed to the others. If you can't get up, are dizzy, may fall down, feel sick to your stomach when you are up, everything else is a real drag. We reviewed his heart meds, and prostate meds with the appropriate doctors and reduced or replaced all meds that could affect his blood pressure and dizziness.

He had a great improvement in his ability to move around. He went to physical therapy for LSTV BIG exercises to get him stronger and more stable on his feet. He reduced coffee intake, increased non caffeine beverages, took his meds more closely as prescribed and ate better. This reduced his orthostatic hypotension.

My hubby is doing much better. He could do better if he worked at more diligently, but I and he are pretty happy at the moment. Push to get your issues examined. You are his advocate. Learn as much as you can about all of his conditions (if he has more than parkinsons) and how the meds may begin to have a cascade effect that increase problems with his health.

We have dealt with depression from the past as he was no longer able to carry on his position as an executive in a demanding field. This was before we knew he had a neurodegenerative disease. I believe fatigue and loss of some mental nimbleness were possibly early signs of parkinson's. My pwp is at a good place now with most of his most debilitating problems minimized.

He does have limitations. One hard day equals at least 1 day of recovery. He does not do well out in hot weather. He is also less tolerant of cold, but Texas cold is easier than Texas hot. Over the fall he slowly(with regular nudging from me) added on to our deck. I was thrilled.

I hope your husband is able to improve his situation. Try all that you can to help him.

[moparkie715]

leslie2234,

You dont provide much info on your husband(age, does he work, meds etc). I can only speak for myself. About 2 years into my diagnosis (55) i too felt like my PD was progressing rather quickly. I went from a slight inbalance and other slight symptoms to nt being able to walk with out a cane or walker , trouble getting out of a chair, to having lots of falls. I had to retire early bc my job was too stressful and i was too exhausted at the end of the day to exercise.

Stress exacerbates my symptoms

Exercise and good nutrition is what keep me going now. My symptoms have stopped progressing and the more i exercise the less i need to use a cane or waker.

. . i hope this helps.

[aspergerian13]

Might he be PIGD and entering phase3 of PD? If so, might he be awakening in an off time? Or sustaining or slipping into a PD phase 3 off time?

michaeljfox.org/mobile/news...

[aspergerian13]

See also:

ncbi.nlm.nih.gov/pmc/articl...

[grandmama16]

Sounds like my hubby. He's 75...has trouble getting up from bed and easy chair.....and into our new car, his idea and big mistake for us, Elantra. I have Fibro. so it's a pain for me too. I knew we needed another car but wanted something bigger like our van, yr 2000, which is falling apart but more comfortable. We have trouble with the battery going out, tho thought it was fixed, because the brake lites will stay on at times so we have to pull up on the brake pedal, then check the lites which is difficult during the day. I had to use the charger several times. Also the elec. side doors would go out but I love the room it has. The new one doesn't and has little storage especially for my purse or trash. And no CD player but other perks I don't understand. I would really like an old roomy cadillac or Buick like we had in the 70's.

His tremors are mostly in left hand and arm, and will go into his face. He was diagnosed about 5 yrs. ago (On our 50th anni. he had the blank PD face but doesn't now)and is staying on a carbadopa/levadopa with Regaling, generic Meripax. The PD has increased with balance issues and his thinking. Right now he's battling double vision in one eye due to either catarack surgery or PD. He's going to another eye Dr. to check it. We go to a PD support group which helps us cope. Last time there was a presentation on Rock Solid Boxing which I like but it's too far away and pricey...$80.00 a mo. but you can go as many times as you want. If it was right in town that'd be ok tho I'd want to go too at least for part. Would love to hit something, preferably a soft bag. Hope things slow down for your hubby. No doubt, it's a difficult row to hoe. M.A. in USA