B1 Therapy Query: Good morning, I am... - Cure Parkinson's

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B1 Therapy Query

Dubbhoy profile image
8 Replies

Good morning,

I am looking for other contributors experiences to the B1 Therapy. Especially with the sublingual version. Twice over the last 12 months or so I have reached the same point and I am just wondering how to get beyond it.

I seem to reach the sweet spot for the therapy, but this point seems extremely close to the overdose tipping point. I feel absolutely fantastic and then I notice my sleep is off. I’m talking no sleep - as in wide awake for the night. Then I have to take a sleeping tablet and then the following day I have to go into the detox period of two weeks and start all over again.

I don’t want to be constantly stuck in this loop. I’m just wondering if anyone else has had similar experiences.

I have had problems with sinemet in the past and sinemet definitely works better when I take the sublingual version rather than the HCL version.

Any suggestions or advice would be appreciated.

Thank you,

David.

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Dubbhoy profile image
Dubbhoy
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8 Replies
park_bear profile image
park_bear

If you are not already taking your B1 early in the morning you should do so.

Dubbhoy profile image
Dubbhoy in reply topark_bear

Yes, before 9am.

Discogs_discogs profile image
Discogs_discogs

The sublingual thiamine mononitrate really affects my ability to sleep too. The oral capsules of thiamine hcl don't affect my sleep nearly as much. I therefore only take the sublingual type sporadically and only about 1/20th or 1/10 of a tablet when I do.

Dap1948 profile image
Dap1948

please join our B1 Facebook group where many people will answer your question.

facebook.com/share/g/6trGDp...

Normanjean profile image
Normanjean

I take sublingual in the morning with one magnesium helps with sleep

Dubbhoy profile image
Dubbhoy in reply toNormanjean

Could you please let me know what type of magnesium that you take? Thanks.

stlewy profile image
stlewy

I had to stop taking B1 completely for a few months because my symptoms got worse. I'm trying something new: half of a b-complex (which has B1) every other day. It's working with improved symptoms. I'm starting now with a half B1 almost every day. NOTE: I tried this technique with multi-vitamins (w/ B1), and it worked a few times, but as you said, it will quickly go bad. It may be another vitamin in the multivitamin that is not in the B family causing the problem.

J316 profile image
J316

I started taking B1 one year ago today and still have not found my correct dose yet and I am taking it sublingually. I started taking it M-W_F and then went to 4x a week and at 5x a week I think I had overdosed. I got off of it for 2 weeks. Finally after I ended up taking is 7x a week, and was feeling really well, then one day I had fatigue all day. They Levodopa didn't seem to work so I thought I had overdosed. I have gone back to 4xweek. I may feel real good one day and not the next. I feel frustrated.

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