Can anybody recommend a good wearable to track/identify RBD? Cheaper the better.

[Bolt_Upright]

Can anybody recommend a good wearable to track/identify RBD? Cheaper the better.

I actually think I'm getting better, but I also stopped asking my wife how I slept about a year ago. It was just a depressing way to start my day.

I know I don't fall out of bed or punch walls (please don't jinx myself) anymore, but I don't know if I am rustling or talking.

So I figured maybe there is a reliable gadget I could get. Thanks.

[WhyRBD]

have not found one. I use motion activated camera

[Bolt_Upright in reply to WhyRBD]

Thanks. Not an option for me, but it is the best option.

How are you sleeping (if I may ask)?

[Boscoejean]

apple watch or fitbit? "The findings showed that sleep disturbances related to Parkinson’s disease are detectable using wearable wrist devices such as Apple Watch or Fitbit"

sleepreviewmag.com/sleep-di...

[Bolt_Upright in reply to Boscoejean]

Thanks! Unfortunately this looks more complicated than just buying a fitbit and checking it for an RBD alert in the morning. From that article:

"In the study, researchers analyzed home actigraphy data to determine movement during sleep and reviewed the nine-item questionnaire from the cohort, which included over 40 patients with isolated REM sleep behavior disorder, over 20 patients with other sleep disorders, and over 20 patients with no sleep disorders as controls.

The questionnaire asked participants to report experiencing any abnormal movements during sleep or common early symptoms associated with Parkinson’s disease, such as loss of smell and dizziness. Using actigraphy data from the wearables, the researchers developed a framework for classification of movements and tested the approach in a machine-learning model.

Likewise, they also developed an approach from the questionnaire data to test on a machine-learning model. Once both actigraphy and questionnaire models were developed, the researchers created a two-dimensional prediction model for isolated REM sleep behavior disorder.

The actigraphy classifier analyzing movements during sleep could detect isolated REM sleep behavior disorder with 92.9% accuracy. By comparison, all questionnaires combined achieved 91.7% accuracy, exceeding the performance of the Innsbruck RBD Inventory questionnaire alone (86.9% accuracy).

Concordant predictions between actigraphy and questionnaires reached a specificity and precision of 100% with 88.1% sensitivity and outperformed any combination of actigraphy and a single question on the questionnaire about early Parkinson’s disease symptoms.

A two-step approach using questionnaire first, followed by ambulatory actigraphy for 10 days in those who screen positive, could select individuals at highest risk of idiopathic REM sleep behavior disorder and thereby result in higher positive predictive value (100% in this small sample of 84 subjects), before confirmatory video polysomnography."

[WhyRBD in reply to Bolt_Upright]

It is easy to know if someone has iRBD, the issue is monitoring the level and coordinating with diet and suppliments

[saraoutwest]

I use a free app called SnoreLab. It records you all night

[Bolt_Upright in reply to saraoutwest]

Thanks. I don't really snore much anymore. I do have sleep apnea, I do not use a CPAP, and my sleep apnea is much better than I was years ago.

[WhyRBD]

I have been having motionless sleep when I nail the diet. I just got back from a week in the DR (took my camera) and could see the direct impact of the food. 6 out of 7 nights I was successful in eliminating movement or iRBD episodes. Food matters.

[Boscoejean in reply to WhyRBD]

so what are the foods that are helpful and are there foods that cause problems?

[WhyRBD in reply to Boscoejean]

Some are more sensitive than others - keep eliminating until iRBD events for away.

Veggies:

We can have the following

Nori -- seaweed

Artichokes

Arugula

Chicory

Chinese Cabbage

Cabbage (red and green)

Chives

Fennel

Jerusalem Artichokes

Kale

Okra

Cauliflower

Broccoli

Brussel sprouts

Celery with tops

Asparagus

Raddish

Arugula

Sauerkraut

Onions (red, yellow, white -- sweet or non-sweet)

Green onions

All mushrooms

Hearts of palms

Olives (green and black - never stuffed)

Artichokes & hearts

Dairy

A2 whole milk

A2 half and half

A2 cream

Goat Milk

Goat Cheese

We can have the following seeds

Flax

Hemp seeds

Psyllium husk

Fruit

Avocado

Blueberries

Strawberries

Nuts

Pistachios (sometimes)

Coconuts (flakes and flour)

Blanched Almond flour only

Oils

Avocado

Cod Liver

Flaxseed oil

Coconut oil

We can have the following proteins - All of the following cost less than $5 per lbs. Proteins are so important and lectins are everywhere and you don’t even know it. Make sure you do not consume any proteins that are farm-raised and fed CORN. This goes for fish, and chicken including eggs, pork, and beef as they can cause motor events when all other lectins are removed. Pork fat and skin do not seem to have a problem (pork rinds - eat in moderation)

Sardines - canned my go-to daily protein

Salmon - wild caught canned or frozen

Grass-fed beef - ground beef is affordable - least consumed

We can have the following condiments:

Apple cider vinegar

Olive oil (small amounts and zero in the first phase)

Coconut oil

Avocado oil

Salt

Black pepper

Onion powder

We can have the following sweeteners

Mannitol / xylitol

Inulin

We can have the following beverages

Water - Water - Water 60-90 oz per day

Tea

Coffee

[Boscoejean in reply to WhyRBD]

at least this does not seem as restrictive as some of the diet lists I have seen

[Taranto98 in reply to Boscoejean]

thank you -

[Bolt_Upright in reply to WhyRBD]

Thanks for the detail. I know it can be hard to stay perfectly on the path. I think each errant morsel might be doing some amount of damage. That is what I am thinking lately.

I went to a memorial tonight. I had some beef that was not grass fed, but that was my only transgression. Wait, I had a small amount of jalapeno cheese. I pretended to myself not to know what it was, but I did

[MarionP in reply to WhyRBD]

What is "DR"?

[MarionP in reply to WhyRBD]

What food is helpful, and what food is problematic?

[WinnieThePoo]

Try a Xiaomi S3

[Bolt_Upright in reply to WinnieThePoo]

Thanks WinnieThePoo! Interesting! wired.com/review/xiaomi-wat...

gsmarena.com/xiaomi_watch_s...

techadvisor.com/article/230...

It is in my price range. Thanks.

[MarkPrana]

I've used this one Bolt, but it was through my neurologist/ the NHS in the UK:dementech.com/parkinsons-ki...

Fairly scientific and assesses/scores your sleep. Only been assessed using it once and plan is to repeat again in a year to (hopefully) measure no/minimal progression in symptoms 🤞

[Bolt_Upright in reply to MarkPrana]

Ah, not something I can buy. But interesting. Thanks!

[WhyRBD]

I use the camera to measure the effects of my diet. Camera is motion activated. I have it covering me from head to toe. If my diet is on point - no abnormal movement (jumping out of bed to finger pointing.) I review every morning when I wake (a must because easy to compare to what I ate the 24 hrs prior). I can also compare against my Polar sleep tracker. The camera has been the most effective tool to refine my diet and its impact on my iRBD. Most experts do confirm there could be a correlation between night time movement and phenoconversion. I do not have PD.

[MarionP in reply to WhyRBD]

And what diet is that, exactly? What things are those that need to be "on point"?

[WhyRBD in reply to MarionP]

I just posted to another request. Definitely keep asking questions. I am in prodromal phase - no signs of PD, just all the early symptoms. My diet will not just stop iRBD, but cause you to lose weight if you need to.