dystonia?

[Ep0522]

I recently lowered my Rytary to help with dyskinesia. My feet are really hurting a Lot now, especially after being on them this morning. Should I go back on the higher dose?Trying to decide. What to do. Any advice? Could this be dystonia?

[park_bear]

Could be. It would help if you could give some additional detail. Are your toes wanting to curl and does stretching them out help?

[Ep0522 in reply to park_bear]

Yes, but not excessively. Tried going barefoot and with shoes. Shoes help but had to stop and sit.

[Gigglers3]

I have Botox treatment on my toes every 3 months. It reduces unbearable dystonia foot pain for me.

[Ep0522 in reply to Gigglers3]

Doesn’t that hurt? I’ve had cortisone injections in the past for plantar fasciitis and the feet are so sensitive, but I know it’s worth it over the months. Does it affect your balance?

[Gigglers3 in reply to Ep0522]

The pain of Botox treatment does not compare with the constant toe/ foot pain I had. It may not be an appropriate course of treatment for you but it’s definitely worth asking your Neurologist about. I was very grateful that the Neurologist I had examined my feet thoroughly, decided that it was Dystonia; and that it could be treated with Botox, and was able to refer me to the Botox clinic within the hospital. Good luck with it all!!

[amykp]

I had foot pain that turned out was unrelated--metatarsalgia with a small neuroma. It felt like I was walking on a rock all the time. On bad days, they ached long after I sat.

I don't know if that could be you but, what helped me was a toe separator, and the right shoe. And it took me a LONG time to find it. Anyway, you might consider a podiatrist...unless you know it's the PD?