Foods trigger dystonia?

[akgirlsrock]

I'm trying to ween my self of sugar, I'm doing pretty good , but every once in awhile cravings are overwhelming , I made gluten free namasta rice flour pancakes, no sugar except maple syrup, strawberries/blueberries , last week I ate during the day and notice toes curling when waiting for Carbidopa/levodopa to work and my right shoulder stiffens, and I get an inflammation feeling in arm and leg, which I noticed I haven't had since backing off of sweets. I had pancakes again last night, woke up took pills, toes curling, right shoulder stiff, and inflammation feeling down arm/leg, and pills took longer to work. I know sugar depletes magnesium, which I take everyday, so maybe I was really low on magnesium. No more rice products for me.

Anyone else have foods that trigger inflammation ?

[MBAnderson]

Inflammation is the enemy.

Usually, when people are (completely) off sugar for 2 -3 weeks, the cravings go away.

"The study followed people for 16 years, and those who stuck with a mostly anti-inflammatory diet had an 18 percent lower risk of all-cause mortality, 13 percent lower risk of dying from cancer, and 20 percent lower risk of dying from heart disease."

healthline.com/nutrition/an...

healthline.com/health-news/...

[johntPM]

I would focus on the role played by levodopa, or more precisely a shortage of levodopa, in your dystonia. I suspect that the role played by food in the dystonia is a second order effect caused by the impact that food can have on the absorption of levodopa.

[Kia17]

It took me 5 years to learn and say goodbye to my painful toes dystonia. There is only one way to get rid of dystonia which needs some discipline in your diet and exercise.You should always remember that dystonia has no mercy and if taking wrong foods it returns.

Foods to avoid:

White rice ( instead mix of red rice, wild rice and black rice is good)

Sugar

Gluten

Walnuts

Foods containing Lecithin

Foods containing Lectins

Soda

Too much animal protein

Foods containing MSG ( Mono Sodium Glutamate). It has different names

Soybean or Soy sauce

Readymade foods

Cured meat

All fish except salmon

Check my post for low glutamate diet

Stretching at least once a day.

Enough rest between your workout sessions

Hope these help.

[akgirlsrock in reply to Kia17]

I mostly stay away from the stuff you listed, I eat , which is fresh we live in Alaska, and I've been trying carnivore with good quality burger, and eggs, I was eating a lot of roasted veggies with sweet potatoes, Garlic and onions. My face looks better on meat , just veggies I look to skinny. Thanks for info🌻

[Despe in reply to Kia17]

Why walnuts, dear Kia?

[Kia17 in reply to Despe]

Hi Despe, Because of Lecithin in walnuts.

[Larochka in reply to Kia17]

Excellent article on OXALATES in superfoods, how it’s toxicity overload damaging to SNC, overall health

articles.mercola.com/sites/...

how-oxalates-can-wreck-your-health-pdf

[Alock2020 in reply to Kia17]

Kia17 - I also have toe curling. I've copied your list, but I was wondering about how you determined that each food to be avoided was a factor. Did you test and record how much foot/toe dystonia that you suffered without each food separately, or did you read some research that warned against it?

[Kia17 in reply to Alock2020]

Some of them are based on my personal experience and the rest found in an ayurvedic medicine website long ago.

[Kia17]

If someone is serious to tackle dystonia then the complete list of foods to avoid are as below;

most dried fruit

Apples (raw)

Cranberries

Dates (dry)

Figs (dry)

Pears

Persimmons

Pomegranates

Raisins (dry)

Prunes (dry)

Watermelon

Generally frozen, raw or dried vegetables

Artichoke

Beet greens**

Bitter melon

Broccoli

Brussels sprouts

Burdock root

Cabbage (raw)

Cauliflower (raw)

Celery

Corn (fresh)**

Dandelion greens

Eggplant

Horseradish**

Kale

Kohlrabi

Mushrooms

Olives, green

Onions (raw)

Peas (raw)

Peppers, sweet & hot

Potatoes, white

Prickly pear (fruit & leaves)

Radish (raw)

Squash, winter

Tomatoes (cooked)**

Tomatoes (raw) Turnips

Wheat grass, sprouts

Barley

Bread (with yeast)

Buckwheat

Cereals (cold, dry or puffed)

Corn

Couscous

Crackers

Granola

Millet

Muesli

Oat bran

Oats (dry)

Pasta**

Polenta**

Rice cakes**

Rye

Sago

Spelt

Tapioca

Wheat bran

Aduki beans

Black beans

Black-eyed peas

Chick peas (garbanzo beans)

Kidney beans

Lentils (brown)

Lima beans

Miso**

Navy beans

Peas (dried)

Pinto beans

Soy beans

Soy flour

Soy powder

Split peas

Tempeh

White beans

Cow's milk (powdered)

Goat's milk (powdered)

Yogurt (plain, frozen or w/ fruit)

Lamb

Pork

Rabbit

Venison

Turkey (white)

Chocolate

Horseradish

Popcorn

Psyllium**

Flax seed

Alcohol (hard; red wine)

Apple juice

Black tea

Caffeinated beverages

Carbonated drinks

Chocolate milk

Coffee

Cold dairy drinks

Cranberry juice

Iced tea

Icy cold drinks

Pear juice

Pomegranate juice

Prune juice**

Soy milk (cold)

Tomato juice**

V-8 Juice

Alfalfa**

Barley**

Basil**

Blackberry

Borage**

Burdock

Cinnamon**

Cornsilk

Dandelion

Ginseng

Hibiscus

Hops**

Jasmine**

Lemon balm**

Mormon tea

Nettle**

Passion flower**

Red clover**

Red Zinger**

Violet**

Yarrow

Yerba Mate**

Maple syrup**

White sugar

Barley green

Brewer's yeast

Vitamins: K

[Hidden in reply to Kia17]

I would like to read more about this. Is this a list you made?

[akgirlsrock in reply to Hidden]

I didn't make a list . kia17 did.

[Kia17 in reply to Hidden]

You cannot find these lists in Pubmed or NIH or similar websites. It has been created by the same people who discovered that Mucuna Purine has the same properties of Ldopa.

[LAJ12345 in reply to Kia17]

What do the asterisks mean?

[Kia17 in reply to LAJ12345]

* okay in moderation

** okay rarely

[Vt11 in reply to Kia17]

It’s been my experience that lists like this cannot possibly be accurate for every body. Different bodies require different foods. Each person needs to determine what works best for their body. In my case, I got tested for food allergies and was shocked to discover what foods were causing inflammation. I recommend everybody get tested in this way. Now, I eat many foods on this list and have no inflammation as a result of this.

[akgirlsrock in reply to Vt11]

Yes, I agree everyone is different. Did you go through your Doctor, or order test on your own? Thank you, Maria 🌺

[Vt11 in reply to akgirlsrock]

I did the test on my own through this site: everlywell.com

[LAJ12345 in reply to Vt11]

I saw an episode of the bbc program “trust me I’m a doctor “ and they reckoned these food sensitivity tests from a blood drop don’t work

[Vt11 in reply to LAJ12345]

My test worked. Staying away from the foods I was shown to be sensitive to made a huge difference in my sleep and general feeling of inflammation. You can also go to a local naturopath and have that doctor conduct the test.

[LAJ12345 in reply to Vt11]

Did they explain why it works?

[Vt11 in reply to LAJ12345]

I didn’t ask that question. You can ask a naturopath if you wish. All I know is it worked. I have tested the same food sensitivity many dozens of times since taking the test two years ago, and the results still stand.

[LAJ12345 in reply to Vt11]

Can you take it yourself without a naturopath? It’s difficult to find a naturopath where I live

[Vt11 in reply to LAJ12345]

You can administer the test from Everlywell yourself without a doctor.

[jrg54321 in reply to Vt11]

eatright.org/health/allergi... Insurance may not cover it as it's not scientifically proven to be useful. Intuitively, this sounds like a good idea. I feel like some foods really mess up my digestive system like whey and no one can scientifically state why this happens to me.

[Vt11 in reply to jrg54321]

Insurance did not cover my costs. But the medical insurance sector is hardly enlightened.

[Kia17 in reply to Vt11]

I totally agree with you.

[Ponieboy in reply to Vt11]

There are also DNA test now to test for reactive foods. I was thinking about taking one.

[faridaro in reply to Kia17]

Wow, such a long list of products to avoid.... It may have been easier to list allowed foods - there are not that many left 😊

[Kia17 in reply to faridaro]

Infact there are plenty of foods in favor. see the list below:

Generally most sweet fruit

Apples (cooked)

Applesauce

Apricots

Avocado

Bananas

Berries

Cherries

Coconut

Dates (fresh)

Figs (fresh)

Grapefruit

Grapes

Kiwi

Lemons

Limes

Mangoes

Melons

Oranges

Papaya

Peaches

Pineapple

Plums

Prunes (soaked)

Raisins (soaked)

Rhubarb

Strawberries

Tamarind

In general, vegetables should be cooked

Asparagus

Beets

Cabbage* (cooked)

Carrots

Cauliflower*

Cilantro

Cucumber

Daikon radish*

Fennel (Anise)

Garlic

Green beans

Green chilies

Jerusalem

artichoke*

Leafy greens*

Leeks

Lettuce*

Mustard greens*

Okra

Olives, black

Onions (cooked)*

Parsley*

Parsnip

Peas (cooked)

Potatoes, sweet

Pumpkin

Radishes (cooked)*

Rutabaga

Sprouts*

Squash, summer

Taro root

Turnip greens*

Watercress

Zucchini

Amaranth*

Durham flour

Oats (cooked)

Quinoa

Rice (Wild- red - black)

Lentils (red)*

Mung beans

Mung dal

Tur dal

Urad dal

Beef

Buffalo

Chicken (dark)

Chicken (white)*

Duck

Eggs

Salmon

Turkey (dark)

Black pepper*

Chutney, mango (sweet or spicy)

Chili peppers*

Coriander leaves*

Lemon

Lime

Mustard

Sprouts*

Tamari

Vinegar

In moderation:

Brazil nuts

Cashews

Charole

Coconut

Filberts

Hazelnuts

Macadamia nuts

Pine nuts

Pistachios

Ajwan

Bancha

Catnip*

Chamomile

Chicory*

Chrysanthemum*

Clove

Comfrey

Elder Flower

Eucalyptus

Fennel

Fenugreek

Ginger (fresh)

Hawthorne

Lavender

Lemon grass

Licorice

Oat straw

Orange peel

Pennyroyal

Peppermint

Raspberry*

Rosehips

Saffron

Sage

Sarsaparilla

Sassafras

Spearmint

Strawberry*

Wintergreen

Aloe vera juice*

Bee pollen

Amino acids

Magnesium

Royal jelly

Vitamins: A, B1, B2, B6, B12, C, D,

E, P (bioflavonoids) and Folate.

[faridaro in reply to Kia17]

Thanks for the lists!

[fcerruti in reply to Kia17]

Kia, thanks for the list! I decided to follow it because my dystonia was really affecting my quality of life…. And I have been almost free of dystonia for a week! It’s true that at the same time I have begun Tong Ren and yoga postures specifically selected for PWP…. At this time the only thing that matters to me is that I am free of pain!

[Kia17 in reply to fcerruti]

I am really happy that you find this useful. Please keep us posted.

[akgirlsrock in reply to Kia17]

Hello, do you know why some foods are problematic? Thank you

[Kia17 in reply to akgirlsrock]

Hi , because they interfere with neurotransmitters.

[LAJ12345 in reply to Kia17]

It might be shorter to write list you can eat! Where did this list come from and what is the rationale behind it please? It looks like a list of everything we eat!

[Kia17 in reply to LAJ12345]

Please see my replies to CC and faridaro.

[Sydney75 in reply to Kia17]

Interesting cinnamon on list while the many benefits of Ceylon cinnamon as neuroprotective are well documented. Many of the foods on list are recommended by the Wahls protocol used by many to manage MS.

This only complicates things, I agree w others food allergies test may help sift through what people eat. Laurie Mishley has studied diet in PD extensively and her list is not as prohibited.

A good anti inflammatory diet and limiting nightshade seems to help HWP.

[134A in reply to Kia17]

What DO you eat???

[Kia17 in reply to 134A]

See above replies.

[Smittybear7 in reply to Kia17]

Thanks for sharing. What foods can you eat then?

[Kia17 in reply to Smittybear7]

Please see my reply to faridaro.

[LAJ12345 in reply to Kia17]

White rice eg jasmine and basmati don’t seem to be on either list. Are they ok?

[akgirlsrock in reply to LAJ12345]

Hello, I didn't post the list, but I was thinking the arsenic in some rice might be the culprit, so I YouTubed some videos, and it seems some rice from California is ok and jasmine from India is ok. Southern states used arsenic in pesticides, so the soil is tainted from years past. Maria 🌺🌻🌼

[LAJ12345 in reply to akgirlsrock]

Ok so more about the contaminants than the actual food? It says red, wild and black are ok. Wonder where they are from

[Kia17 in reply to LAJ12345]

If mixed with wild and or black rice in small quantities are okay.

[LAJ12345 in reply to Kia17]

Thanks

[Larochka in reply to Kia17]

may I ask why broccoli, Brussels sprouts, dandelions, Pommegrants should be avoided ?

[Kia17 in reply to Larochka]

Really no idea.

[Larochka in reply to Kia17]

thank you Kia, those are kinda my staple foods, being on Autoimmune protocol, due to my Hashimoto which I managed put in a remission, but, now Neurologist suspects I have dystonia/Parkinson or MS - we are in a process researching … can you kindly, please, share the link to this information, the list of foods you’ve mentioned in your list to avoid?

[Kia17 in reply to Larochka]

I think I got the list from an ayurvedic medicine website. I will post the link if I find it.

[Larochka in reply to Kia17]

thank you so so much !

God Bless !

[Alock2020 in reply to Kia17]

Of the foods which you consider causal of toe curling, do you have a "Top 5?"

[alaynedellow]

As a vegetarian this list doesn't leave me much to eat 🤔

[2bats]

Try the Keto Diet See dietdoctor.com

Or go full Carnivore Diet - carbs are just sugar! Avoid alcohol if possible.

[Carpediadem]

Ive noticed that food additives, colours, nose sprays worsens my toecurling.Tissuepressure like tight jeans och too small t-shirts trickers cramps. I have MTHFR with constanly low vitamin B9, B12 and B1. Im also ultrarapid metabolisiser of Cyp2d6 and have vitamin D receptor deficiancy.

[Erniediaz1018 in reply to Carpediadem]

How did you find this out?

[Carpediadem in reply to Erniediaz1018]

By the oldfashion try and error , i ssp noticed that my cramps goes in 3 weeks cycles. once in a month its worse. earlier I took medicin against oral fungus and it also helped, the effect is declining allthough

[jocelyng]

I took a course a few years ago about inflammation. Broadly speaking, they (“brown dietitian” and PD-focused PT) identified six categories of foods that exacerbate inflammation: corn, soy, dairy, meat, sugar and gluten.

The task was to limit three for six weeks and see if it had an impact on your symptoms. Sadly, it didn’t for me, but I try to limit these anyway..

[sterlingin]

Add twice daily supplements containing baccularis subtilis (a normal gut bacteria)as it blocks and even may undo accumulations of alphasynuclein

[Rather in reply to sterlingin]

The probiotic Bacillus subtilis strain PXN21 has research to back it up, but what brand is good and what is the amount of these strains to be effective?

[SusanRenee in reply to Rather]

Has anyone tried Bio-Kult Mind - mfg by Protexin bio-kult.com/aboutmind

[akgirlsrock in reply to sterlingin]

Hello, have you felt any benefits from Bacillus subtilis? Thank you, Maria 🌺

[MBAnderson]

eatright.org/health/allergi...

medicalnewstoday.com/articl...

[Rather]

I have not tried it, yet. I don't know which brand of the product to use and what is the amount needed?