I'm trying to ween my self of sugar, I'm doing pretty good , but every once in awhile cravings are overwhelming , I made gluten free namasta rice flour pancakes, no sugar except maple syrup, strawberries/blueberries , last week I ate during the day and notice toes curling when waiting for Carbidopa/levodopa to work and my right shoulder stiffens, and I get an inflammation feeling in arm and leg, which I noticed I haven't had since backing off of sweets. I had pancakes again last night, woke up took pills, toes curling, right shoulder stiff, and inflammation feeling down arm/leg, and pills took longer to work. I know sugar depletes magnesium, which I take everyday, so maybe I was really low on magnesium. No more rice products for me.
Anyone else have foods that trigger inflammation ?
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akgirlsrock
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Usually, when people are (completely) off sugar for 2 -3 weeks, the cravings go away.
"The study followed people for 16 years, and those who stuck with a mostly anti-inflammatory diet had an 18 percent lower risk of all-cause mortality, 13 percent lower risk of dying from cancer, and 20 percent lower risk of dying from heart disease."
I would focus on the role played by levodopa, or more precisely a shortage of levodopa, in your dystonia. I suspect that the role played by food in the dystonia is a second order effect caused by the impact that food can have on the absorption of levodopa.
It took me 5 years to learn and say goodbye to my painful toes dystonia. There is only one way to get rid of dystonia which needs some discipline in your diet and exercise.You should always remember that dystonia has no mercy and if taking wrong foods it returns.
Foods to avoid:
White rice ( instead mix of red rice, wild rice and black rice is good)
Sugar
Gluten
Walnuts
Foods containing Lecithin
Foods containing Lectins
Soda
Too much animal protein
Foods containing MSG ( Mono Sodium Glutamate). It has different names
I mostly stay away from the stuff you listed, I eat , which is fresh we live in Alaska, and I've been trying carnivore with good quality burger, and eggs, I was eating a lot of roasted veggies with sweet potatoes, Garlic and onions. My face looks better on meat , just veggies I look to skinny. Thanks for info🌻
Kia17 - I also have toe curling. I've copied your list, but I was wondering about how you determined that each food to be avoided was a factor. Did you test and record how much foot/toe dystonia that you suffered without each food separately, or did you read some research that warned against it?
You cannot find these lists in Pubmed or NIH or similar websites. It has been created by the same people who discovered that Mucuna Purine has the same properties of Ldopa.
It’s been my experience that lists like this cannot possibly be accurate for every body. Different bodies require different foods. Each person needs to determine what works best for their body. In my case, I got tested for food allergies and was shocked to discover what foods were causing inflammation. I recommend everybody get tested in this way. Now, I eat many foods on this list and have no inflammation as a result of this.
My test worked. Staying away from the foods I was shown to be sensitive to made a huge difference in my sleep and general feeling of inflammation. You can also go to a local naturopath and have that doctor conduct the test.
I didn’t ask that question. You can ask a naturopath if you wish. All I know is it worked. I have tested the same food sensitivity many dozens of times since taking the test two years ago, and the results still stand.
eatright.org/health/allergi... Insurance may not cover it as it's not scientifically proven to be useful. Intuitively, this sounds like a good idea. I feel like some foods really mess up my digestive system like whey and no one can scientifically state why this happens to me.
Kia, thanks for the list! I decided to follow it because my dystonia was really affecting my quality of life…. And I have been almost free of dystonia for a week! It’s true that at the same time I have begun Tong Ren and yoga postures specifically selected for PWP…. At this time the only thing that matters to me is that I am free of pain!
It might be shorter to write list you can eat! Where did this list come from and what is the rationale behind it please? It looks like a list of everything we eat!
Interesting cinnamon on list while the many benefits of Ceylon cinnamon as neuroprotective are well documented. Many of the foods on list are recommended by the Wahls protocol used by many to manage MS.
This only complicates things, I agree w others food allergies test may help sift through what people eat. Laurie Mishley has studied diet in PD extensively and her list is not as prohibited.
A good anti inflammatory diet and limiting nightshade seems to help HWP.
Hello, I didn't post the list, but I was thinking the arsenic in some rice might be the culprit, so I YouTubed some videos, and it seems some rice from California is ok and jasmine from India is ok. Southern states used arsenic in pesticides, so the soil is tainted from years past. Maria 🌺🌻🌼
thank you Kia, those are kinda my staple foods, being on Autoimmune protocol, due to my Hashimoto which I managed put in a remission, but, now Neurologist suspects I have dystonia/Parkinson or MS - we are in a process researching … can you kindly, please, share the link to this information, the list of foods you’ve mentioned in your list to avoid?
Ive noticed that food additives, colours, nose sprays worsens my toecurling.Tissuepressure like tight jeans och too small t-shirts trickers cramps. I have MTHFR with constanly low vitamin B9, B12 and B1. Im also ultrarapid metabolisiser of Cyp2d6 and have vitamin D receptor deficiancy.
By the oldfashion try and error , i ssp noticed that my cramps goes in 3 weeks cycles. once in a month its worse. earlier I took medicin against oral fungus and it also helped, the effect is declining allthough
I took a course a few years ago about inflammation. Broadly speaking, they (“brown dietitian” and PD-focused PT) identified six categories of foods that exacerbate inflammation: corn, soy, dairy, meat, sugar and gluten.
The task was to limit three for six weeks and see if it had an impact on your symptoms. Sadly, it didn’t for me, but I try to limit these anyway..
The probiotic Bacillus subtilis strain PXN21 has research to back it up, but what brand is good and what is the amount of these strains to be effective?
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Not enough dopamine for Dystonia vs. too much dopamine creating fatigue and daytime sleepiness.
Has anyone had their “tendon cut” to relieve toe dystonia/unrelenting spasm?
Adding Lexapro to Sinemet for my Parkinson's
