dystonia and mannitol?

[swanbrooks]

Hi all, I'm new here and actually I suffer from dystonia. I wondered if anyone else here with dystonia had tried mannitol, and whether they had any benefit from it? TIA.

[Kia17]

Mannitol is good for non-motor symptoms. I have reduced my dystonia significantly with HDT and Ketogenic diet and Magnesium.

[swanbrooks in reply to Kia17]

Hi Kia, thanks for your reply. I'm not sure how it is of benefit, then? My dystonia affects me in motor-function of my left hand, foot and ankle. How does it benefit you if it is in non-motor functions?

[Kia17 in reply to swanbrooks]

Hi Swan

Like I said the HDT , magnesium and Keto diet help me with my dystonia which is a motor-symptom. Mannitol may helps in non-motor symptoms such as improving sense of smell or acting as prebiotics in the gut.

[swanbrooks in reply to Kia17]

Interesting. I might try the HDT magnesium and keto then (though I am extremely wary of long term ketogenic diets), since I want to improve my physical symptoms. Gut health will have to wait!

Also, what is HDT?

[Kia17 in reply to swanbrooks]

I do mild Keto diet but with every day Intermittent fasting.

HDT : High Dose Thiamine

You can search the forum to find loads of useful info about the HDT specially posts from “easilly”.

[Kelly9610 in reply to Kia17]

Oh never mind; i see

[TiagoH in reply to swanbrooks]

How is your dystonia?

[Kelly9610 in reply to Kia17]

Hi can you tell me what HTD is? Medication, herb, type of diet? Thank you

[park_bear in reply to Kelly9610]

HDT = high dose thiamine