LDN: I came across a couple of sites that... - Cure Parkinson's

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aclarkson profile image
21 Replies

I came across a couple of sites that say that Parkinson may possibly an autoimmune disease. That a Low Dose Naltrexone has helped a lot of get off Parkinson meds. There is a lady who went on it and no longer has Parkinson symptoms and clearly had Parkinsons, video is on You Tube. Search LDN. Has anyone tried this?

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aclarkson
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21 Replies
Catlou profile image
Catlou

No but I asked my neurologist and he says it would not be covered.

parkie13 profile image
parkie13

I have been using LDN for about 2 years. Is really helps with the well-being of your mind and body. I use a 3 mg. I get 50 mg uncoated pills and dissolve one in 50 mg of water and use a syringe to withdraw 3 mg. You do need a prescription unless you want to send away for it from a Canadian pharmacy.

aclarkson profile image
aclarkson in reply toparkie13

Does it help with symptoms?

parkie13 profile image
parkie13 in reply toaclarkson

You still have Parkinson's but I think you are feeling better. I stopped one time and went back on it. So there was a definite difference of feeling worse without it.

gurdeep11 profile image
gurdeep11 in reply toparkie13

can u get it in canada?

aclarkson profile image
aclarkson in reply togurdeep11

Yes you can. My Shoppers Drug Mart carries it but you need prescription.

gurdeep11 profile image
gurdeep11 in reply toaclarkson

how to dose it? i mean how to make exact low dose and how to determine how much to take

aclarkson profile image
aclarkson in reply togurdeep11

It comes in 50 mg tablets, you crush tablet and dissolve it into distilled water. Use a syringe to measure it out. Start off with 1.5 mg before bed every night, increase slightly each month until you get to 3 mg. There's an YouTube video on how to dilute it.

aclarkson profile image
aclarkson in reply toaclarkson

I haven't tried it yet but I am very interested. Look up Dr.Buharti he discovered LDN.

aclarkson profile image
aclarkson in reply toaclarkson

Sorry Dr.Buhari

aclarkson profile image
aclarkson in reply toaclarkson

OMG I will get this right yet, Dr.Bihari.

aclarkson profile image
aclarkson

Thank you

Hikoi profile image
Hikoi

Havent any first hand knowledge but you might also like to visit some of the facebook sites. Suggest Try LDN Research Trust to start.

aclarkson profile image
aclarkson in reply toHikoi

Saw a couple videos on you tube and it totally helped almost to the point of no symptoms

silvestrov profile image
silvestrov

Do a search within the Healthunlocked PD site because this subject has been discussed before.

aclarkson profile image
aclarkson in reply tosilvestrov

Tried that nothing came up

silvestrov profile image
silvestrov in reply toaclarkson

Here is a general internet search about LDN, healthunlocked & silvestrov. I participated in a number of LDN/HU threads:

google.com/search?q=uealthu...

Tamarisk profile image
Tamarisk

Lots of info re LDN in USA, has anyone purchased it in UK or Spain if so where? Or had their GP or neuro prescribe it?

glenandgerry profile image
glenandgerry in reply toTamarisk

Tamarisk we're in England but obtained LDN on private prescription via Scotland (I think it was Dixon's but it came up in a google search). Last year the prescription cost £35 for 3 months and the LDN itself was £18 for one month's supply. We were really banking on it helping with my husband's problem of what he calls 'walking like a monkey' where his thigh muscles and torso just don't seem to support his weight. Unfortunately for him, after 3 months it didn't help, in fact he became worse insofar as he developed bad stomach cramps and became quite morose - both these symptoms disappeared when he stopped taking the LDN

Tamarisk profile image
Tamarisk

Thank you, very helpful.

rebtar profile image
rebtar

I've been taking for a couple of years, not sure if it helps as my symptoms were minimal when started, they have progressed some. I take 4.5mg once a day, and have it compounded. It's not expensive but insurance doesn't pay. I get it from a compounding pharmacy in Colorado and it requires a prescription.

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