B1 Therapy live chat

[Markbit]

I leave here the live chat video from 11/April about the B1 Therapy, with Daphne Bryan, Rose Donaldson, Rita Botelho and myself. Good vibes.

youtube.com/watch?v=piCQ4HJ...(Not working as expected?)

[nednedned]

Hey Mark, you stopped updates on your fus op. Is it still benefitial after these years?

[Markbit in reply to nednedned]

Yes, no doubt about it. Symptoms on the treated side still are about 90% solved, slowly evolving on the untreated side (especially tremor) and also some axial symptoms (for example excessive sweating, even if it's much better than before the treatment). I 'my keeping the second side as an open option, but not in an hurry to do it, as results on the second side are not so amazing as side one, except maybe for Lena. Well, today I got up and went to my Friday 10 km run, so I think I am pretty fine for a guy with 16 years on PD, on which B1 has also been a great help.

[Grumpy77 in reply to Markbit]

Sorry I didn't quite get what you meant by 'evolving' on your untreated side, is the tremor in your untreated side getting better or worse?

Thank you for your FUS treatment update. I was seriously considering going for the treatment at the SoniModul clinic before it closed down. I glad symptoms on your treated side has improved significantly.

Did you have the op on your treated side done at the SoniModul clinic? If you decide to go ahead with your 2nd side, which clinic?

Well done! 16 years post dx and you're doing fine. I'm like 8 years in and recently have been feeling awful by the day

[Markbit in reply to Grumpy77]

Hi. I meant evoluting, increasing, worsening. Yes I did my first side at sonimodul clinic, that closed early this year, but Dr. Marc Gallay, former neurologist from there, is setting up a clinic of his own to continue with the work he was doing there. If needed, that's where I pretend to do the second side done.

Marco

[Pixelpixie]

thanks for this. It’s really good!

[Markbit in reply to Pixelpixie]

Glad you liked it 😊

[Grumpy77]

Thanks so much for sharing the video

[Grumpy77 in reply to Grumpy77]

I've only watched the beginning.. will watch the rest later and ask questions if needed