back pain

[jmn1]

My husband has the PD posture and it is causing chronic pain in his lower back. Can anyone offer suggestions for pain relief that they have tried. He has had a spinal ablation which so far did nothing. He exercises and goes to PT, which helps a little.

[EllCee]

My partner uses Voltaren on his lower back and his posture has improved because it helps with the pain. It's an OTC NSAID ointment. The trunk area isn't mentioned in the package literature, so get clearance from his doctor first.

[Nitro53]

Been there done that. Exercise, stretching, regular Chiropractic checks and as far as spinal ablation is concerned it sometimes takes finding the right back man

[kaypeeoh in reply to Nitro53]

Years ago I studied acupuncture. Not simply needling the lower back but needling places like the back of the knees and between the toes helped me somewhat.

[kaypeeoh in reply to kaypeeoh]

$30 device on Ebay

[park_bear]

See: healthunlocked.com/cure-par....

[Bolt_Upright]

I'm not sure it will help, but I love my COMFIER Back Massager for Pain Relief,Shiatsu Massage Chair Pad for Full Back,Spot Massage,Electric Seat Cushion with Heat,Heated Chair Massager amazon.com/gp/product/B07M6...

[Rufous2]

If your husband's back pain has a neuropathic element, you could consider trying palmitoylethanolamide. It has a long history of use in pain disorders and may be useful in neurodegenerative disorders, including PD.

ncbi.nlm.nih.gov/pmc/articl...  "Conclusion: Palmitoylethanolamide was extremely effective on pain and function in a large cohort of patients with low back pain – sciatica. Although, the multiple mechanisms of action of palmitoylethanolamide are ideal for mixed pain conditions such as low back pain – sciatica, the correlation between pain relief and the likelihood of neuropathic pain suggests that this drug exerts a predominant action on the neuropathic pain component."

pubmed.ncbi.nlm.nih.gov/283...  PD  "Conclusion: um-PEA slowed down disease progression and disability in PD patients, suggesting that um-PEA may be an efficacious adjuvant therapy for PD."

[crewmanwhite]

Bowen therapy and Clinical Pilates will help.

[2bats]

My posture has deteriorated badly in the last 3 years. I use Loki hiking poles to get more upright (they take up less room than crutches and are less ‘geriatric’). I’m also reading BREATH by James Nestor which asserts convincingly that you can fix severe Scoliosis by breathing better. It’s early days but I’m making progress. My pain levels are also a great deal better than 5 years ago when I was on high carb low fat. Carnivore Diet eases the pain by reducing inflammation so I no longer take any pain killers!

Good Luck!

[pdpatient in reply to 2bats]

Those hiking sticks are also good for walking around the neighborhood right?

[2bats in reply to pdpatient]

Essential unless I can fix the dreaded stoop. I use the telescopic, carbon fibre one which is called ’traveller’

[Astrojupiter in reply to 2bats]

good idea. My mother has much less pain walking with shopping cart for support

[Zella23]

My HWP has chronic back pain. He had an injury in his 40 s and the pain kept recurring if he moved and lifted in a certain way. He tries not to do that now.

PD gradually made the pain chronic and he has had an MRI which indicates degeneration of the spine but nothing specific. Our local pain clinic has given him injections and in a couple of weeks time having a second round of nerve ablation which seems to help but doesn’t last a long time. He manages the pain by daily walking, Pilates stretches, and exercises and if it gets unmanageable he uses a TENs machine. We have 3 types of TEN s machines. They do help relieve the pain.

I have tried pain gels, been through many. They help me with arthritis but don’t seem to help him. Only takes pain killers if he is unable to walk comfortably.

[Jefferami]

For me it's my biggest limiting factor. Finding the right exercise, stretching and a good PT makes a world of difference. I've recently taken up swimming again and that if your HWP can do it really helps. I'm very slow but it's seems to release everything.

Secondly sitting for any length of time definitely makes things worse. I set a timer every half hour and make a point of standing up and having a gentle walk around. I work desk bound so I also invested in a standing desk.

[CuriousMe12]

A Very hot bath at night helps me

[shaken-not-stirred]

Both my husband and I use Heat Wheat every day - him for PD posture pain and me for low thoracic and lumbar areas. We find the heat relaxes the area and helps to loosen everything so the pain isn't as bad. Both of us have had prior back injuries and surgery over the years - he uses CBD oil and Lyrica and I use Tramadol and Lyrica. I find that when I can stand it to lay front down on our massage table for as long as I can also helps to straighten me up more - which also helps. I can no longer lay on my back - side sleeper only - it is a bugger isn't it??

Forward head syndrome puts a lot of strain on your back and coupled with pd pain certainly tests you - all the best jmn1

[MarionP in reply to shaken-not-stirred]

Hi, does the CBD oil make any difference at all for him? And if the answer is yes, how does he take it, as an emollient on skin or internally as an edible? Doctor says he really doesn't want to go down the prescription route if we can avoid it. The exercises and massagers and stretching haven't really done much of anything, and the non-prescription meds don't either, except a high dose of naproxen which is not a good idea for any length. Don't know which kind of formulation or preparation to use to audition CBD, seems like there are many.

[shaken-not-stirred in reply to MarionP]

Yes CBD helps a lot - drops under the tongue ( doesn't taste nice) I put the drops into a capsule case for him to swallow. The strengths are different and depends on your requirements as to whether it has minimal THC or not - also depends on where you are and whether approved to be available on prescription. In Australia it has been approved for other conditions and movement disorders such as PD. My pwp only takes it at night now - it relaxes him and helps with the pain and helps him to sleep - before he went on it he was lucky to get 3-4 hours a night and now he gets 6-8 hours and that has made a big difference to him with everything.

[YOPDUpsideDown]

This video helps to understand PD-related pain: vimeo.com/820471691/378fa7596c

For the past 2 months I have been suffering from lower back pain related with my unbalanced posture and muscle stiffness, I recommend regular massages with humid heat, warm baths, hydrogymnastics, basicly everything related with relaxing in warm water. I also did acupuncture and osteopathy, but didn't helped me as much as the other alternatives.

[Coot18]

Shortly after I was diagnosed 12 years ago, I went to Tucson Arizona and saw Becky Farley the principal owner of Parkinson's Wellness Recovery.

I found use of treadmill helps with back pain, balance and gait coordination.

[ghoegap in reply to Coot18]

Hi! We are considering a treadmill for back pain and gait ...good to hear you find it helpful

[Santana35]

Is your husband's PT savvy to the idiocynronies of PD? Stretching multiple times a day for me is crucial to keeping my back from tightening up.

[Squarepusher]

Absolutely must read Back Mechanic by Dr Stuart McGill. Nothing is better

[peminc]

Back pain is part of the PD landscape and in my opinion the pain is not a static thing. I use Melixocam for arthritis and that helps a lot. Bad days need an extra Tylenol.

When exercising, my experience is to start light and not to forget to stretch, do lower body (legs) and core (mid section). Leg exercises that use the hamstrings and quads are best for me. Start light. Lie on back and raise legs, with arms to side and roll legs in air left to right. This will exercise the lower back (better than sitting in a chair all day). Start slow then see how you feel. Also, a wall sit is good for legs and back. Downward facing dog too, starting from a plank and also the cobra position, all of which will felx back and exercise your core (as well as other body parts).

Be careful twisting and turning abruptly, or stooping and getting up. I have thrown out my back, and had to see a doctor. The muscle relaxants are great; they do help the back.

Finally, I find lying down on a sofa, recliner or car/airlines seat for long stretches of time result in atrophy of the back. They are an annoyance.

Try this site.

michaeljfox.org/sites/defau...