I AM HAVING TERRIBLE NON- STOP SHAKING OF LEGS, HANDS, LIMBS, HEAD, NECK OVERALL BODY PARTS , REUEST HLP /A DVISE

[Ramuu]

I AM HAVING PARKINSON'S SINCE 2009. DURING OFF PERIOD ,I AM EXPERIENCING,NON STOP SHAKING OF ALL BODY PARTS, WITH OUTMOST PA IN. THIS BECOMES MORE INTENSE DURIN G NIGHT TIME . I CONSULETD ANEURO , WHO TOLD ME THAT I HAVE TEMOR DOMINANT PD. THE TRE MORS COULD BE stoped by high frquency ultrasound,. plleaase advsie . youtube.com/watch?v=o9V2s_z...(Not working as expected?) : LIVE DEMO OF YTHE POCEDURE

[MBAnderson]

I had it done bilaterally and am happy with the results.

There are 2 good pages for feedback on FaceBook; "FUS Sonimodul people" & "Focused Ultra Sound for PD"

[Ramuu in reply to MBAnderson]

THANK YOU VERY MUCH FOR YOUR REPLY. IF SHAKING IS DUE TO RLS , WHETHER FOCUSED ULTRASOUND CAN IT FIX THIS PROBLEM ALSO ??

[MBAnderson in reply to Ramuu]

I don't know

[Lizzy9 in reply to MBAnderson]

Hello MB ~ How long ago did you have it done?

When I watched a video from OHSU they said you could only have one side done. Glad to hear that both sides can be done.

[MBAnderson in reply to Lizzy9]

I had the right side done 3/10/20 & the left side 4/13/21 in Switzerland.

[mishod]

have you tried light therapy with symbix Also Rytary is.good with reducing the off time

[Ramuu in reply to mishod]

I HAVE NOT TRIED . THANK YOU FOR YOUR RESPONSE. I WILTRY !!

[Carpediadem]

You may not beleave this but a handfull scoop of potatochips hellps me every time. Ont knov why, it just does. Maybe its the Carbos giving rewards och potassium or tryptophane in potatoes. Dont care!! ijust works. Maybe its Pawlovs dogs reaktion??

[Ramuu in reply to Carpediadem]

THANK YOU FOR UR RESPONSE. I WILL TRY !!

[pdpatient]

 Carpediadem Sometimes the wierdest things help. During the initial years after diagnosis, I found amazing relief with basil and pesto. I have a feeling that it's all in my head sometimes - literally and figuratively.🤨

[Ramuu in reply to pdpatient]

THANK YOU FOR YOUR RESPONSE. I BELIEVE YOU!!