Several months ago, I saw a video in which a neurologist said that there may be thirty or more types of Parkinson's, and that we might hope to see cures for one or two of them every five or ten years.
What this suggests to me is that it may be very difficult to find treatments that slow, stop, or cure the disease(s), because whatever combination of medications, supplements, or types of healthy activities (such as exercise or meditation), benefit one individual might not help another with a different type or sub-type of PD. Complicating the matter further, there may be other variables, such as the order in which various meds and supplements are taken, whether the disease (and consequently the treatment or cure for a particular individual) changes over time, whether the individual has other chronic conditions, etc..
It may be the kind of futile situation in which one finds a way out of a maze, only to realize that he's at the center of bigger maze.
Written by
Alock2020
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I strongly suspect that is the case, and that is the bad news and maybe the good news is that some of the other neurological diseases, much worse than PD, may be positively affected by some of these new PD treatments. Maybe they will find the big secret and all disease will be wiped off the planet, maybe . In the meantime life goes on . I am going to have a cup of tea and one of those cinnamon buns with raisins that my wife brought home from the bakery and then go to my bed and sleep the sleep of the innocent . Good night ,sweet dreams
I think the best treatment is to learn how to reframe events, including the diagnosis itself ... sysiphian task for me. But I'm convinced that is the underlying key at least in my case.
The cure for everyone or at least the way to slow it down is to return to your ancestral diet, get rid of modern foods and pesticides, and exercise like you were doing a manual job. Ie never stay still.
Makes sense, may explain why some people respond so well to interventions like high dose thiamin and other far less so. Same could explain the differences seen in response to other treatments such as red light therapy, as well as lithium to name a couple.
My thoughts exactly. I wrote the same to someone yesterday - what works for some won't work for others. In this case I had found a patent for a device that delivered a vibration to (anywhere you want but for me my calf muscles) each time it sensed you freeze when walking. They had filed the patent - it technically worked - but had not seen it through for some reason, and I wondered if the reason was that all Parkinson's is not the same and their sample group didn't have enough people like me in it. Fingers crossed they resurrect it because when I freeze I tap my calf muscles with a stick to get them working and this invention would discreetly do it for me.
You couldn't have said it better Alock2020. But people like to have "Hope" that something will happen, a cure, just something to ease the 'burden' of it. Can only say after 25 years expecting and hoping for a cure, that we have not given up hope for the future of others with PD, but reality check is it's not going to be in our lifetime that we can see... and we're 61.
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