Buntanetap trial people

[1953bullard]

check in, how are you doing? I’m 3 months in and was not feeling anything, however in the last week I feel like I’m improving! Balance is better, strength is MUCH better, fuzzy brain gone and anxiety is so much better! Maybe I was slowly getting a little better but this week I feel so good!

[redhawk1]

Wow! That is great news!! I hope your improvements and symptoms are indeed from the trial medication! I was in the Roche/Prothena trial for 5 years and never experienced such a positive change. Fingers crossed improvements continue!!

[Sid44elosam]

Brilliant! I am in France and as far as I know, butane tap is not tested here. So I am very keen to hear about the results you get. Keep on posting! Thanks

[Veravrida]

Great news! I hope the improvements continue. Are you only taking the buntanetap during the trial or also your other meds or the thiamine?

[1953bullard in reply to Veravrida]

I take all my meds but not supposed to add or change any during the trial

[whatadrama123]

Do you know for sure you are taking the buntanetap is it random trial ?

[Pixelpixie in reply to whatadrama123]

I’m also participating. It’s a double blind trial. Low dose. High dose. Placebo

[1953bullard]

I don’t know if I am getting placebo or not

[whatadrama123 in reply to 1953bullard]

I wish you all well. Let's hope it holds promise for the future.

[Farooqji]

Is tremor also improved. What's your age and when we're you diagnosed.

[1953bullard in reply to Farooqji]

tremor is not improved. Diagnosed 7 years ago

[tacato]

Hopefully I'm getting placebo. No question that I am worse than when I started in January.

[Router_]

Natural progression to such a degree would even be odd within 3 months on placebo

[NextStage]

I'm happy to hear about your improvement. My first pill was April 18th 2023, so I think it's too early to tell yet for me.

I knew I had Parkinsons in 2018 (though I knew something was wrong for at least 3 years prior) and was officially diagnosed in 2019. I started taking Sinemet and Selegiline (MAOB inhibitor) May 2022, and that has greatly helped my balance.

I have been taking a weightlifting class twice a week for years, so strength hasn't really been a problem for me.

I have never had a problem with fuzzy brain, but I'm still working so I am using it a lot (use it or lose it) plus I have been taking Citicholine since 2019, which supposedly both makes Mucana pruriens and/or Sinemet be more effective and is supposed to help with cognitive impairment.

I have been using CBD oil for anxiety for several years--it's controlled it well for me.

My main symptoms are bradykinesia, rigidity and pain. The Sinemet/Selegine addresses these well for me, and I can tell when the medicine wears off. I'm looking forward to see, if I have the real drug, if it addresses these symptoms.

[Farooqji in reply to NextStage]

How much selegiline are you taking

[1953bullard]

here’s hoping you see improvement too

[jimcaster]

I'm going to wait until I am done in July before commenting any more about my experience, but I am glad you appear to be improving. 🙂

[Parkinsonjisung]

Its best if people don't comment as it may effect the results of others.

[curepdnow]

Awesome, how do you feel now?