Anyone participating in the Buntanetap Phase 3 trial?

[lbrussell]

Would love to hear your initial feedback. I'm considering participating. Full info here:

clinicaltrials.gov/ct2/show...

Previously discussed on HU here:

healthunlocked.com/cure-par...

Thank you!

Laura (edited to fix link)

[DJJD3]

I'm enrolled in the Butanetap phase 3 trial. I did my intake a few weeks ago and I will receive my first dose (or not) on Monday. I'll let you know how it's going once it's going.

[lbrussell in reply to DJJD3]

Look forward to hearing back. Good luck!

[rancsikanna in reply to lbrussell]

Hi! Have you received your first dose of buntanetap? Can you share any news? Thank you in advance for response.

[PDWarrior1900 in reply to DJJD3]

GOOD LUCK!

[gaga1958]

when I clicked on the clinicaltrials link, it doesn't work. could you please repost?

[lbrussell in reply to gaga1958]

Sorry. Not sure why link failed. Try this: clinicaltrials.gov/ct2/show...

[PDWarrior1900 in reply to lbrussell]

that link works for me

[PDWarrior1900]

yes i know that one person is... i can't remember exactly who -- but try mbanderson (i think that's his handle)

[jimcaster]

I'm being evaluated in Kansas City this Tuesday to determine whether I am eligible to participate in the trial. I believe I meet all the requirements so I expect to take part.

[DJJD3 in reply to jimcaster]

I’m in Kansas City too. Are you participating through KU Med?

[jimcaster in reply to DJJD3]

Yes. I live in Wisconsin so it's a fairly long way to travel. Hopefully, it will be worth it. I'm hoping they will promise to eventually give the "real dose" to those receiving a placebo if the real dose proves to be beneficial. I'm not particularly optimistic...

[gaga1958 in reply to jimcaster]

isn't there a location in chicago or even Indanapolis thst would be closer?

[jimcaster in reply to gaga1958]

From where I live in Northwest Wisconsin, Kansas City is closer, plus my son lives in Des Moines Iowa, which is approximately half way.

[gaga1958 in reply to jimcaster]

I meant Michigan not Chicago

[redhawk1 in reply to jimcaster]

Great to see you and others are taking part (l’m assuming you’ll be accepted) in this trial. Keep us updated!

[jimcaster in reply to redhawk1]

Thanks! Will do!

[curepdnow in reply to redhawk1]

Are you in the Buntanetap P3 trial? I'd love to hear about it

[MBAnderson in reply to jimcaster]

Jim, Thorough researcher that you are, you must have checked this out especially considering your commuting to KC. What has convinced you?

[jimcaster in reply to MBAnderson]

I'm actually pessimistic, but I'm 5 years in and this is in Phase 3, so...

[rancsikanna in reply to jimcaster]

Hi! Can you give any update regarding Buntanetap trial? Are you participating?

[jimcaster in reply to rancsikanna]

I have been approved as a participant and will go in for my first baseline visit and dose of either Buntanetap or placebo later this month.

[Kia17 in reply to jimcaster]

Good luck with your appointment.

[jimcaster in reply to rancsikanna]

I took my first dose on Thursday. I probably won't report much about how am feeling until my experience ends in six months. I am very aware of how impactful placebo effect can be in PwP and I don't want to taint the experience of others who are participating in the trial and/or to make grand pronouncements (whether positive or negative) prematurely, which turn out to be wrong. Hopefully, I will have something to report in 6 months, but because the study is double blind, whatever I report may be completely due to placebo effect...

[curepdnow in reply to jimcaster]

Hi Jim, how was your trial experience with Annovis for the Buntanetap treatment?

[jimcaster in reply to curepdnow]

I may have been on the placebo, but I did not notice any dramatic difference, either positive or negative. In my opinion, 6 months is not enough time to determine whether progression is being slowed or stopped because the disease progresses so slowly anyway, at least in my case. I do not feel markedly differently now than I did approximately 6 years ago when I was first diagnosed.

[rancsikanna]

I keep my fingers crossed!!!!!