"Exercise and physical activity for Parki... - Cure Parkinson's

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"Exercise and physical activity for Parkinson’s: Getting active and staying active" by Julie Jones on Zoom on the 3rd of April.

Michel0220 profile image
11 Replies

I am delighted to announce that our next NoSilverBullet Zoom session will be taking place at 7.30pm London time on Monday the 3rd of April.

Julie Jones will be talking to us about "Exercise and physical activity for Parkinson’s: Getting active and staying active".

Please use the Eventbrite link below to register for this event:

eventbrite.co.uk/e/exercise...

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Julie Jones is a physiotherapist with a specialist interest in Parkinson’s.

Julie is a clinical academic fellow, jointly funded by Parkinson’s UK and the Chief Scientist Office and is a senior lecturer at Robert Gordon University. She is also a member of the Strategy Advisory board of Parkinson’s UK in Scotland and chairs the Scotland wide Parkinson’s Active project. She is also a member of the Parkinson’s UK College of Experts grant review panel, and sits on the Research Participation Steering Group at Parkinson’s UK. Within the Parkinson’s Excellence Network, Julie is the co-lead of the Exercise hub, which runs education events to support exercise professionals nationally to improve and develop service provision for people with Parkinson’s.

Julie’s current role spans research, clinical and academic. Julie is currently funded to explore the feasibility of a collaborative approach to exercise delivery between the UK National Health Service (NHS) and the community sector. Julie has an honorary physiotherapy position within NHS Grampian, and her main clinical interests include exercise and gait dysfunction.

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Michel0220 profile image
Michel0220
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11 Replies
Zella23 profile image
Zella23

Really looking forward to that Michel, such an important profession in dealing and helping with movement disorders. I enjoyed the last presentation from ‘No Silver Bullet’ and learnt so much from Dr Rick Heimich as regards stress in PD.

Thanks so much for all you do in putting on these presentations.

On another note I’ ve been looking for a Neuro Physiotherapist locally to help my husband manage back issues but so far haven’t found anyone who specialises in PD.

Michel0220 profile image
Michel0220 in reply toZella23

Hi Zella

Thank you very much for your message and support. Bas Bloem explained to us why exercise is critical to us and we wanted to delve deeper into what to do and how. This is what this session with Julie is all about.

She was the key speaker at Parkinson’s UK conference last year and I am really looking forward to her presentation and Q&A.

As far as back problems are concerned (something I suffer from on a chronic basis), I found that acupuncture helps me. But your husband’s circumstances might be different.

Zella23 profile image
Zella23 in reply toMichel0220

Hi Michel

Thanks for your message. My husband has tried acupuncture before for his shoulder when it was injured but not tried it on his back. He also has a chronic back issue that happened before PD but has got much worse since dx. He has had injections under anaesthetic and nerve ablation which worked for a while but has now reverted back to being painful. Tried osteopathy and only had a limited amount of pain relief.

My husband says it really is the worst symptom he has to deal with as the others are more manageable and back pain makes exercise, other than walking so difficult.

JayPwP profile image
JayPwP in reply toZella23

Have you tried Block Therapy? I have heard it helps but not tried yet

Zella23 profile image
Zella23 in reply toJayPwP

I think that is the therapy he has had with nerve block ablation, which did work for a while but then it has reverted back to being painful again. Thanks for your help.

JayPwP profile image
JayPwP in reply toZella23

Nerve block ablation is different than Block Therapy

Zella23 profile image
Zella23 in reply toJayPwP

Just watched the video below on block therapy, and another my husband found. Very interesting thanks for posting.

Michel0220 profile image
Michel0220 in reply toJayPwP

If anyone wants to know more about block therapy, there is a video about it on our YouTube channel:

youtu.be/gqYRLULXidQ

JohnPepper profile image
JohnPepper

It's me again. i cut myself off. I wanted to add that I started fast walking in 1994 and my movement symptoms had all disappeared by 1997. I have been PD meudication-free since 1998 , but during the past four or five years I have been unable to do a lot of walking, due to other health problems and my bad walking an bad balance have returned.

Thank you for this. Looking forward to it.

CRMACK1948 profile image
CRMACK1948

We were fortunate enough to see Julie’s lecture given to the Parkinson’s Society Edinburgh branch last year.Fascinating,practical and encouraging.She really encouraged us to widen out in our exercises whatever our abilities.My husbands physiotherapist was trained by Julie and is an inspiration to us.

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