I am about 5 years in with reasonably mild symptoms and not progressing much.
My PD doctor seems to suggest that this research has ceased a bit recently. She says Mt Sinai did some inconclusive research a short while ago and then lost interest?
All the research reports seem to go back a year or so, although there does seem to be a private company working on pd at MSK with the mysterious name Blackrock?
I just discovered that 25 years ago, my wife harvested her placenta stem cells from our son's birth and we have been paying for storage ever since.
I wonder if his stem cells should be relevantly similar to mine, - and if this could be of any use to me or would I Have (according to the news reports) to travel to Lund to stand any chance of using it?
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HugoRipanykhazov
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You have an interesting situation. There are stem cell trials for PD going on all over the world. Just Google stem cell Parkinson's trial.
Maybe you should find some trials. The trial page will give you a contact e-mail for the lead doctor. Then e-mail some of them about your situation and those cells you have in storage. Maybe you will pique their interest. Worth a shot.
I tried that and my email was read but not responded to!. That was why I posted here. I am probably either jumping the gun a bit or my story is not as interesting/relevant as I had thought?
My father was in sales. They have a saying "if you knock on enough doors you will make a sale". I don't know how many e-mails you sent. I would not go overboard, but I would send at least 5. I find about half the doctors I e-mail reply. Good luck.
***UPDATE*** I have since been given the stem cells, and I can definitely say I have seen an improvement in my symptoms! Less shaking and just feeling better overall!!!
This is not specifically about PD but it is stem cells for anti-aging. PD like aging, is a loss of homeostasis and mitochondrial dysfunction, but in a particularly destructive way.
I’m finding this video very interesting and anyone interested in FMT or stem cells might as well.
I’m personally most interested in possibly trying peptides and Plasmalogens.
My reply maybe a bit late to the topic, but have you looked at the therapy from Trinity Clinic Fukuoka in Japan involving 10 intravenously administered doses of 200 million autologous adipose tissue-derived Mesenchymal Stem Cells over two hours. This is repeated every fortnight until 10 treatments are completed. In order to reduce the risk of graft-versus-host disease, the patient’s own stem cells are used.
The stem cells are extracted from patients’ own (autologous) fat, or adipose, tissue. Following extraction, the cells are expanded in the laboratory until they reach high numbers, and injected back into patients’ blood.
This is the correct way to use stem cells, over several courses of treatment, not just one or two as most clinics use.
Sorry, I hadn't seen your full reply untl now. I had never heard of administering stem-cells by injection?What is it supposed to do? Get them to start replacing the working ones in the right part of the brain to produce the correct dopamine? If that is a realistic proposition, I wonder why isnt everybody trying it?
Everyone knows someone who knows someone who knows someone who had stem cell therapy. Me too. My case was while I was a practicing veterinarian. I read a study of an easy way to collect and use stem cells.
The study extracted fat via liposuction. The fat was then spun down and separated into three parts. The central part was rich in Mesenchymal Stem Cells. These cells were injected into the joints to treat torn ACLs. And cured the patients.
One of the worst diseases vets had to deal with was torn ACL in large-breed dogs. Dogs under 30# could be treated with older techniques but anything larger these older techniques tended to fail. Over the decades that I was in practice I hated that wonderful dogs had to be destroyed because they could no longer run and chase. Dogs live to run and chase. Next to food, running and chasing was all that dogs wanted to do.
The Mesenchymal Stem Cell extraction worked in people so why not in dogs? A client had two 90# labs each with a torn ACL. One of them and two torn ligaments, the ACL and the CCL. The client was a cougar hunter and knew these dogs would never run and chase cougars again. He said, "Just put them down, okay? I agreed but thought maybe the stem cell treatment would be worth a go.
I treated each dog with 20cc of Mesenchymal Stem Cells injected into their stifles (knees) one time. Then lost track of the pair until months later when they were brought into our kennel. These massive dogs had a particular deep back that echoed on the concrete kennel walls. I heard them from the other end of the building and followed the sound and found both of them dancing and barking as I stood watching normal dogs doing normal dog kennel behavior. They were back to hunting cougar.
Mesenchymal Stem Cells are the main cells found in bone marrow. They're primordial cells that mature into various blood cells. How the body decides which cell to become is mystery. This may have nothing to do with PD. After all, PD is a brain dysfunction, a deficiency of dopamine cells in the brain.
So is anyone putting these Mesenchymal Stem Cells into the brains of PD patients? I'm not sure I'd volunteer for that.
When I injected the fat into the stifle, the Mesenchymal Stem Cells morphed into tendinous tissue and re-stabilized the joint. The same thing happens when platelets are collected and inj ected. The platelets start making tendinous tissue. Why don't similar things happen if Mesenchymal Stem Cells are injected into the brain??
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