Follow up on Stem Cell therapy: Thank you... - Cure Parkinson's

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Follow up on Stem Cell therapy

Rafiki2 profile image
5 Replies

Thank you all for your feed backs and thank you Bolt_Upright for posting the video on Marie, very encouraging.

I reside in South Africa and have done (and still doing) extensive research like many of you are doing. I recently came across a US company called Cell Surgical Network stemcellrevolution.com which has become a global network of physicians and doctors performing investigational studies into personal cell therapy, primarily using adipose derived stem cells from one's own fat. This they claim is far better than cells derived from bone marrow, especially in older people.

CSN was established in 2010 and today has a large number of members in the USA and in over 12 countries. They have a list of conditions that they are currently studying which includes PD. There are a number of videos on YouTube.

I recently contacted their South African member and when asked whether they treat PD was told that they do not specifically treat any disease. They only administer stem cell therapy and let the stem cells do their job. Which kind of makes sense.

The amount of fat they extract by using a mini liposuction is only about 50cc (milliliters)and they then extract between 30 to 50 million stem cells from this. The whole process of extracting the stem cells and administering them via IV takes about 3 to 4 hours.

If you want to know more, I suggest you look at their website and contact your nearest CSN physician/doctor for further information.

Looking forward to any comments.

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Rafiki2 profile image
Rafiki2
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5 Replies
Tonia1952 profile image
Tonia1952

Sorry Rafiki i akso reside in south Africa.

i spend lots of money and time on this. How had 3 pirocedures ovr a 12 month period. Unfortunately i cannot report any positive outcome.

Reths

Rafiki2 profile image
Rafiki2 in reply toTonia1952

Hi Tonia1952,

Sorry to hear this. Can you elaborate more on what procedures you had?

Tonia1952 profile image
Tonia1952

Dear Rafik

The South African prcedures were done in Parys, Free State.

The docter tried 3 times with different stem cells which he inserted into my back or spinal cord. He himself admitted that it did not work with PD patients. i must stop wasting money.

Rafiki2 profile image
Rafiki2 in reply toTonia1952

Dear Tonia,

Thanks for giving me further information but don't give up hope on finding something that will work for you. I saw a YouTube video recently on Cell Surgery Network explaining why injections in the spinal cord are not recommended for PD. They claim that cells do not travel through the body as well as blood does and that cells given IV into the blood stream travel better. Also, due to this lack of travelling in the spine, gravity takes them down the spine and further away from the brain. Perhaps this is true and is what happened to you.

Good luck on your PD journey.

Baron1 profile image
Baron1

Good Evening,

My reply maybe a bit late to the topic, but have you looked at the therapy from Trinity Clinic Fukuoka in Japan involving 10 intravenously administered doses of 200 million autologous adipose tissue-derived Mesenchymal Stem Cells over two hours. This is repeated every fortnight until 10 treatments are completed. In order to reduce the risk of graft-versus-host disease, the patient’s own stem cells are used.

The stem cells are extracted from patients’ own (autologous) fat, or adipose, tissue. Following extraction, the cells are expanded in the laboratory until they reach high numbers, and injected back into patients’ blood.

This is the correct way to use stem cells, over several coarses of treatment, not just one or two as most clinics use.

Maybe this the avenue you can take.

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