HDT overdose.: Need advice! I’ve had PD for... - Cure Parkinson's

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HDT overdose.

38yroldmale profile image
14 Replies

Need advice! I’ve had PD for a little over 4 years. I started HDT before with success but did many other things so I never gave it a full chance. Started at 2 grams for about 5 days. Too much pretty quickly. Took a week off and did 1 gram for now a week. I feel a tad jittery, can’t sleep, slightly worsen of symptoms? Wondering if I should give it a couple more days or stop and see how I feel? I feel like I should stop but want to give this it’s proper time and not overthink it.

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38yroldmale profile image
38yroldmale
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14 Replies
park_bear profile image
park_bear

Stop. Take another week off. Resume at 500 mg taken only in the morning.

38yroldmale profile image
38yroldmale in reply topark_bear

thanks

Fumaniron profile image
Fumaniron

doing it earlier in the day helped my jitters, too. I also stopped caffeine..

38yroldmale profile image
38yroldmale in reply toFumaniron

Thanks

chartist profile image
chartist

I agree with both of the above replies.

Dosing info :

healthunlocked.com/cure-par...

Art

HekateMoon profile image
HekateMoon

I started slowly and increased bit by bit. I seem to be ok at 1.500 mg but ive been taking for 2 years + now. Had to stop start many times to figure out what was working.

fel3k profile image
fel3k

lower the dose

ssrs profile image
ssrs

definitely lower your dose and gradually try to go up. My husband was taking 1000mg for quite awhile then he gradually increased. He always takes the two doses before 1:00 in the afternoon. It has taken him almost 3 years to get to the 3000mg.

rwreks profile image
rwreks

As a caregiver (and chief researcher)a few things from my wife's experience so far with HDT: 1) As others have said lower the dose. It could be WAY less. 2) Make sure you are using the the HCL verion of B1 and not the mononittrate version. While not harful, it absormbs differently and can accumulate. 3) Consider the sublingual version that is more consistent and needs far less (maybe 100mg 3 days per week - Read the suthors discussion on this versus my recall!)

38yroldmale profile image
38yroldmale in reply torwreks

I think your response right about a much lower dose. Taking more like 5 days to overdose (took for 7 days) means it may be less than 1/2. I am taking the HCL version. Thanks !

rebtar profile image
rebtar

I uses HDT for more than a year at a high dose, and then developed hip pain. It took me a while to figure out it was the b1.

I tried repeatedly at lower doses, hip pain came back every time.

Even at 100 sublingual, alternating days. Now trying 50mg sublingual, three times per week.

With b1, less can be more. Hoping it will work for me!

SBLF profile image
SBLF

Hi: HDT is a therapy that is different for everyone. Myu recommendation is two things: first get the book, PARKINSONS AND THE B1 THERAPY, by Daphne Bryan. It spells out the process very clearly. Second, also join her facebook group, Parkinson's B1 Therapy; as supportive as the folks on this group are, that group is focused primarily on making HDT work for everyone. I am still working thru finding my "sweet spot". Good luck.

38yroldmale profile image
38yroldmale in reply toSBLF

I read the book, well written and informative! Also part of that group. I knew I needed to lower the dose but wanted reassurance!

Windermere1 profile image
Windermere1

you need to do more research. Join fb group Parkinson’s b1 therapy and read Daphne Bryan’s book of the same name from Amazon. Once you hit your sweet spot dose the results are amazing. Good luck

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