wow high dosage thiamine seems to have fi... - Cure Parkinson's

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wow high dosage thiamine seems to have fixed my gut

Todd-pw profile image
21 Replies

hi all

hormonesmatter.com/sibo-ibs...

ive done a few posts about gut issues I've had and asked alot of questions to other members about multiple gut issues i suffered from to a point where i could barely eat anything, medication wasn't being absorbed along with constipation and muscle cramps in my legs after meals and lots more even tried FMT. i has tried HDT after first being diagnosed but wasnt really suffering with gut issues then so gave it up as i didnt really notice much benefits. so i started HDT again recently and within a day or two my stomach and gut issues had improved massively to a point i felt comortable eating many foods i had given up. hoping this will be a long term thing and hope it helps others. i never tested low for B1 either on any tests

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Todd-pw profile image
Todd-pw
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Todd-pw profile image
Todd-pw

btw i am taking 500mg solgar brand tablets 4 to 5 times a day i find best, also forgot to add my PD symptoms have all improved along with my gut issues, and my medication now absorbs not long after meals before HDT i could be in pain with leg cramps for hours waiting for meds to work after a meal not even a large meal could cause this, i am now gaining weight again as i lost a lot of weight due to literally being afraid of eating as my meds took so long to work afterwards. i had my first burger in a long time the other night and enjoyed it without fear of a sleepless night with muscle cramps and all the other crap that goes with being in a off state for hours.

Gioc profile image
Gioc in reply toTodd-pw

Hi Todd,

“ btw i am taking 500mg solgar brand tablets 4 to 5 times a day i find best,”

I agree, this is the best way to take the B1. I do this way too, my favorite brand is naturalpoint (only in Italy) because it is a small 500mg divisible pill.

hanifab23 profile image
hanifab23 in reply toGioc

gio can we buy it here

Gioc profile image
Gioc in reply tohanifab23

HI Hanifab,

I don't think this brand exports to the United States. However there are many good brands there like NOW , vitacost, solgar, G&G maybe. Thiamine, vitamin b1, is a very bitter white powder and a pure tablet can be easily compressed without additives as in the photo. The more bitter it is, the fresher and purer it is.

B1 500mg
ddartmouth profile image
ddartmouth in reply toTodd-pw

Any reason for selecting that brand (solgar)?

Todd-pw profile image
Todd-pw in reply toddartmouth

when i spoke to Dr Constantini a few years back he recommended this to me

chartist profile image
chartist

Todd,

Congratulations on the improved gut health and symptom improvements with your second try at HDT/B1!

Regarding vitamin B1 levels, Dr. Costantini had said that when he first started using HDT on his patients, they would always show B1 levels that were in range, but once he started them on B1 therapy, their B1 levels were off the chart and he stopped testing their B1 levels.

Art

Todd-pw profile image
Todd-pw in reply tochartist

Thank you good to know

park_bear profile image
park_bear

Yep. Not quite as dramatic here, but high-dose thiamine has played a key role in resolving my Parkinson's constipation. Others have made similar observations.

Nitro53 profile image
Nitro53 in reply topark_bear

Curious, what dosage do you take and how? Thanks

park_bear profile image
park_bear in reply toNitro53

At this time I take 500 milligrams once daily in the morning. I used to take twice-daily but that became too much.

Nitro53 profile image
Nitro53 in reply topark_bear

Too much in what way may I ask? Thanks

park_bear profile image
park_bear in reply toNitro53

Discomfort from excess colon peristalsis

Dap1948 profile image
Dap1948

The B1 therapy doesn’t resolve a deficiency so you wouldn’t have shown a deficiency on blood tests. It triggers enzyme activity but I won’t go into it here! My book “Parkinson’s and the B1 Therapy” should be out by the end of the month. It will be sold on Amazon.

PixelPaul profile image
PixelPaul in reply toDap1948

Looking forward to your book, please keep us all updated.

Dap1948 profile image
Dap1948 in reply toPixelPaul

Certainly will. I’m having trouble with the cover currently. My designer’s first draft was too Jeffrey Archer!

Todd-pw profile image
Todd-pw in reply toDap1948

ok thanks for the info, good luck with the book

ddartmouth profile image
ddartmouth

In the link you provide they suggest taking B1 as TTFD. I seem to recall most discussions of HDT suggest taking Thiamine Hcl.

In what form do you take your Thiamine?

Thank you.

Todd-pw profile image
Todd-pw in reply toddartmouth

I take solgar brand 500mg tablets

Todd-pw profile image
Todd-pw in reply toddartmouth

the link was just to explain the positive effects of b1 on the digestive system

enjoy2013 profile image
enjoy2013

Hi Todd,It’s great to read that. I and a few others here also have digestive symptoms that are largely overlapping yours. I recognise my symptoms in your story, all the way including the weight loss. I just didn’t have constipation, although it is obvious that once we stop eating, a decrease of intestinal transit is natural (the volume of ingested food is key in triggering péristaltisme). Not to mention the role of liquids.

I also started thiamine and experienced significant improvement of my digestive symptoms but not with a complete resolution.

I was recently unwell with a mild though bothersome deterioration of my symptoms, including digestive and was considering to try yoga-related methods to activate the vagus nerve. I’ve done it just once about a year ago but got low blood pressure when I got up. I didn’t pay attention at the time to the effect on my digestive symptoms. I wonder wether to do it before dinner, before going to bed.

I also found myself short of B1 and had to start a different brand with tablets of 300 “slow release”! I decreased the dose and am ramping up.

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