Without levodopa

[SerenaAve]

I would like to know if any of you cured Parkinson's without taking levodopa and how you treated yourself alternatively Thank you!

[Xenos]

Then there is Bianca Molle, with the help of qigong (hours of practice daily).

There is a website : parkinsonsrecovery.com

[park_bear in reply to Xenos]

I follow the same teacher as Bianca. I experienced a dramatic improvement as result of Qigong. My story here:

healthunlocked.com/cure-par...

[PixelPaul]

There is no known cure for Parkinson's, regardless of whether you're taking levodopa or not.

[wifeofparky]

If there was a cure for Parkinson's all the Church bells would be ringing. Unfortunately, it is a progressive disease.

[Hikoi]

Don’t spend too much money on seeking alternatives and a cure. If anything really worked we would all now about it.

[Farooqji in reply to Hikoi]

I agree. Exercise is the only thing that is backed by scientific research

[chartist in reply to Farooqji]

Melatonin has scientific research to support its use in people with PD and animal PD models and it has plenty of studies to support its use in other health conditions that people with PD are at increased risk for. It is not mainstream like exercise, but it has proven value in PD.

Art

[Hidden]

At present there is no cure.I believe there never will be a single source, one cure.

Until the root causes are determined we are throwing darts in the dark.

But,

There is a LOT one can do to slow the progression. And there are many cases of people not progressing for YEARS.

I am not going to list everything I know of here in the comment section because really, this is a book not a comment.

All those who reply negatively as if nothing can be done are people who are not doing or seeking alternative means and have scoffed at those who do. They will continue to decline as their neurologist have predicted because they continue to do as their neurologists say.

Ignore them.

Dig for answers. Many on here have posted a ton of things that improve their health as it relates to PD.

There is much we can do to help ourselves.

[kevowpd in reply to Hidden]

Perhaps instead of this attempt to start drama (by belittling the contributions of others as things that should be 'ignored') you could provide the OP with some actual information?

"There is a LOT one can do to slow the progression."

Like what, according to you?

"The information is out there, I know what it is but I'm going to make you go find it yourself" isn't actually that helpful.

[Hidden in reply to kevowpd]

Neither is your negativity.

There is SO MUCH on this site that is listed and sighted as helping and people giving their personal accounts of this that I thought it not a service to anyone to restate it all here as I will not do it justice. Which is why I encouraged the poster to dig. I am not flippantly saying dig. I’m saying that there is much to learn here from contributors who do not settle for what their neurologists tell them.

before the Negativity Brigade started tooting their horns too loudly, I wanted to respond to encourage the poster to NOT be discouraged because there is a wealth of information here and elsewhere about how we can help ourselves.

(Typos due to multi tasking. Life is a juggling act)

[kevowpd in reply to Hidden]

Asking you to provide actual information, or even an opinion about specific methods of treating PD is not being 'negative' when you have claimed that there is 'LOTS' that one can do.

Again with the drama: the 'Negativity Brigade'.

Maybe you could address individual contributions as they arrive rather than engaging in these broad insults of people that you are predicting will disagree with you.

[Hidden in reply to kevowpd]

I’m CCLemonade. Remember the fun we had Kevowpd? That is why I’m not sunshine and rainbows when I get a response from you. I pleaded with you multiple times to leave me alone and you refused. It was your and a few others on here whose negativity and cruelty drove me off the site. That is why I “predict” some people will disagree with me.

You squash optimism.

Some optimism is founded in the many personal accounts and suggestions here on HU by people who contribute things of value.

[kevowpd in reply to Hidden]

More ad hominem insults relating to things that never took place.

Disagreement is not 'cruelty'. We are not obliged to give you a round of applause for every contribution simply because some here choose to.

[Hidden in reply to kevowpd]

I’m going to disengage from this now as it is only adding to the negativity that pervades this forum. You and others on here know that at one point I BEGGED YOU to leave me alone and you repeatedly refused.

[kevowpd in reply to Hidden]

This isn't your private blog. If you post something that people disagree with then they have a right to publicly say so provided they comply with the guidelines. I was never rude to you nor was i 'cruel'. Some people here did insult you ('yapping chihuahua' was a lowlight) but that wasn't me.

There's no scope for controlling the list of people that interact with you and if you really need to do that then start a private message thread with your pals that will never challenge you in any way.

[Hidden in reply to kevowpd]

Kevowpd, I begged you repeatedly to stop To leave me alone and you refused

I pleaded that I wanted to contribute on this site and you were hounding me and would not just please leave me alone.

But……

SerenaAve,

Please, this unfortunate exchange of which I am a contributor unfortunately is an example of scuffles and negativity on this site. Please, do better than I do at ignoring this negativity because truly, there is so much wisdom here and so much you can do!!

I will write a post ASAP with my list and hope others chime in.

I am better than I was a year ago and I attribute it to things I have implemented.

There is not “the cure” buried in this forum but there is wisdom , resources, and real reasons for much hope!!

[kevowpd in reply to Hidden]

More lies. I never "hounded" you. When I disagreed with you I carefully and politely explained why. If you are incapable of experiencing polite disagreement then pretty clearly, public forums are not for you.

You were the one being negative about the work of people that in my view dedicate themselves to finding the answers we seek. You then solicited and received a lot of applause in relation to some sort of action you were supposedly going to take around PD. Not sure what happened to that, but in any event when I sought to correct what I thought were errors in your analysis, you then used ad hominem insults to mischaracterise me as someone that "harassed" you.

You can't insult people and mischaracterize their remarks and then expect them to not respond simply because you have demanded that they "leave you alone".

[laglag in reply to kevowpd]

Why don't you just take matcharoe off your list or skip or delete her posts/replies rather than harassing her. She is very knowledgeable, does good research and very determined.

[kevowpd in reply to laglag]

You should feel free to "skip" mine too.

[PDConscience in reply to kevowpd]

Alas… you channel the spirit of the “yapping Chihuahua“ masterfully Grasshopper!

[Gioc in reply to Hidden]

pranksters and denigrators have no good intentions. They are usually people who are terrified of others and thus belittle them by denigrating them.

Then there are people with other purposes, you recognize them because they sell something or if they don't sell "the product is you" that is your data. You always find these in the threads of new people to make long discussions about nothing in search of visibility, perhaps for this reason you are their ideal target, you are very visible FYI.

Unscrupulous merchants.🤷‍♂️

PD is a long and difficult disease and many here have been fighting it without much success for many years and this makes them have less hope of a cure. They have my respect because they haven't given up and are still here trying to survive and help like you , with a different point of view of course. This is what Life does in various ways: survive and help.

The answer to all is “let's go ahead and get the knowledge and success on the disease”.

Welcome back Matcharoe CClemonade, it's a pleasure to hear from you.

A warm greeting from Italy.

Gio

Italy

[Somic67 in reply to Gioc]

Well said GioCas. 👍The simple fact to read your positive comment made me more positive too and mobility improved …. 😀

Thanks 😉

[Grumpy77 in reply to Hidden]

Even your first paragraph is too pessimistic. Why do you believe in the future there would never be a single source, one cure?

[Hidden in reply to Grumpy77]

There never being THE ONE CURE is a great thing.

I believe there will never be one cure. I firmly believe this based on the complexity of neurology , the biome, and the multitude of contributors in creating homeostasis.Our bodies and brains are so out of balance, out of homeostasis, that a disease state has occurred. For some this loss of homeostasis leads to multiple diseases at once. For some it manifests as Alzheimer’s. Some ALS. Etc etc

Homeostasis is not a single target. It is not one exact path we all must take.

HOMEOSTASIS IS A STATE. I say this in all caps with joy.

Remove the silver bullet pharmaceutical from your thinking. Hope for it if you want of course but do not wait for it.

Because,

By not waiting for the one cure

We become empowered!

We can do so much to help our bodies, biomes, and brains find balance and wellness again, to achieve the state of wellness, homeostasis.

I am better, far better than I was a year ago. Am I cured? No. I do not think there is a cure. There is not one chronic disease state that has been cured by one medicine. Not one. That is the dream the pharma industry sells us but does not deliver.

The silver lining in this, we already have the power and ability to take action today to help ourselves achieve homeostasis once again.

Not a target. A state of being.

[parkinsonshereandnow]

Officially, Parkinson's is still incurable in Western medicine.

Cases of possible cure or reversal of symptoms occur in very strong or highly motivated people (Robert Rodgers has collected numerous cases since 2004. His mother had Parkinson's). And in Hindu and Chinese medicine, it is considered a difficult disease to treat, but not incurable.

The same is said about Alzheimer's or Multiple Sclerosis, but there are doctors/neurologists who have called it into question: Seignalet, Bradesen, Newport, Swank, Wahls...

Many neurologists speak of a syndrome and some propose different therapies (Coimbra, Costantini, Birkmayer, Perlmutter). The cause would be multiple (and possibly impossible to know exactly). It must therefore be treated as something that is multifactorial, due to multiple deficiencies (Hinz speaks of 29)...

The Hindus and the Chinese created multi-modal and multi-phase treatments centuries ago. Their products and therapies (massages, acupuncture, movements) treat all possible routes of damage (detoxification, antioxidants, anti-inflammatory, liver protection, good nutrition, etc.).

The cause may persist (high stress sensitivity to stress, genetic aspects, etc.) or not (high stress stage already overcome, poor nutrition, etc.). Outside of current Western medicine, there are no incurable diseases. Difficult to treat, yes, but not impossible. But we already know many antidotes: anti-stress magnesium, epigenetic measures, Mediterranean diet and phytotherapy, etc.

One can follow the orthodox Western path, the Eastern ones, a mixture of both (there are very interesting studies on madopar together with Chinese formulas), or the external ways of highly motivated patients (Freeman, Coleman, Shifke). Whatever the choice, and with the supervision of a specialist, I would continue with a new lifestyle: Mediterranean diet or similar, green tea (with ginger and turmeric with a little black peppercorns), lion's mane mushroom, a daily salad, vitamin D3 supplement (together with magnesium and brewer's yeast), omega 3 fish pearls, physical exercise, acupuncture, etc.

See planetayurveda.com. Parkinson's Formulas.

planetayurveda.com/library/...

And this other amazing one for TCM:

itmonline.org/arts/parkinso...

Some formulas backed by studies, either claiming healing results/significant improvements or anti-parkinson effects of their components: oxidation, inflammation, glutamate, parkinsonizing toxins, etc.

Zichan powder,

Yigansan formula,

Xifengzhizhan pills and capsules,

Zeng-xiao An-shen Zhi-chan 2 or ZAZ2,

Zishenpingchan granules (Ye 2021).

Liuwei dihuang or Liu Wei Di Huang Wan (Tseng 2014, Rehmannia Six Formula)

The guidance of a doctor and, if possible, a doctor trained in both Western and Oriental medicine is always recommended.

[Grumpy77 in reply to parkinsonshereandnow]

I have difficulty with your use of the word "treat". To my understanding treating a disease bears absolutely no indication as to whether the target is to be cured or not

I would probably have understood you better if you had stuck with the word ”cure"

Like ”... difficult to cure, yes. But impossible to cure, no"

Or maybe I'm nitpicking...

[Gioc in reply to Grumpy77]

To cure and treat are quite similar in meaning here and I quote: “2. C. a sick person, to prescribe the appropriate remedies and to submit him to the medical and surgical treatments necessary for his recovery: he is a doctor who treats his sick with great conscience; also, to assist: his daughter lovingly cared for him to the last; c. a wound, medicate it; c. a disease, fight it with therapeutic means. ". It is different in English that to cure implies healing.Maybe.

treccani.it/vocabolario/cur...

[Grumpy77 in reply to Gioc]

I admire your skills to be able to analyse words in both Italian and English

[Gioc in reply to Grumpy77]

Maybe.To tell the truth, I was hoping for a positive correction from you that would deny or confirm this analysis of mine

[Grumpy77 in reply to Gioc]

I couldn't make any comment to that effect because I really didn't understand your quote about C. But because there has been so much negativity on this forum lately, I decided to comment on my positive observation only

[Gioc in reply to Grumpy77]

I apologize for not making myself clear. Sorry

[Grumpy77 in reply to Gioc]

Too nice 💜💜💜 . No need to apologise.. You know PD seems to have lowered my IQ so I now feel dumber than the average person. In other words, the reason I didn't understand your post was because I was dumb, not because you didn't make yourself clear.

[Gioc in reply to Grumpy77]

Intelligence is defined as the ability to see differences, similarities and equalities. The perception that it is a flow of energy influences IQ and over the years we all suffer from the decline in perceptions, but I believe that you are above average.👍

[Grumpy77 in reply to Gioc]

I read it a few times over again then it was becoming clear to me. But why can't I read a comment once and understand? I wish I'm smarter. Red-light therapy is beginning help me in this aspect, so hoping and praying to recover my brain soon

[Gioc in reply to Grumpy77]

It is very poorly written. sorry

[ForViolet]

This is a very cute T-shirt.