I haven’t posted in a while, but wanted e... - Cure Parkinson's

Cure Parkinson's

25,339 members26,641 posts

I haven’t posted in a while, but wanted everyone to know I had my DBS surgery .

Kwinholt profile image
17 Replies

It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.

Written by
Kwinholt profile image
Kwinholt
To view profiles and participate in discussions please or .
Read more about...
17 Replies
justinejean profile image
justinejean

Good for you. It extended my husband's productive years by 10. He was able to keep his hobby building custom teardrop trailer in his big garage. I kept one to keep that part of our good memories fresh.

Grumpy77 profile image
Grumpy77

I'm glad you are doing very well after DBS. There has been so much scare stories with DBS so thank God for you. I pray it continues to go well for you

Did you opt for DBS because meds were no longer effective?

I calculated from your profile that you were 49 when you first had PD... have you managed to remain very active since

How much does DBS cost?

Kwinholt profile image
Kwinholt in reply to Grumpy77

Grumpy 77, Yes, my meds were not working as well as before. I know there is scare stories out there but also as many good stories too. I was able to stay active as much as I could with some injury issues. How much DBS costs…. Insurance bills are still coming in lol. Karen

jimcaster profile image
jimcaster

Congratulations, Karen! I was just thinking about you this morning and was thinking DBS was probably the reason we hadn't heard from you for awhile. Whenever you are ready to share more about your experience, we will look forward to hearing more from you. In the meantime, we will be cheering for you!

Kwinholt profile image
Kwinholt in reply to jimcaster

Thank you Jim. You are always so supportive. I’m not going to say this was easy, especially being awake for the placing of the leads in my brain. I was ready to “tap out” when they were doing the other side. I’d like to think I’m a pretty tough chick but it was hard. And then the placing of the device a few days later, which I was put to sleep for. I’ve always said the anesthesia is harder on me then the surgery itself and this one is no different. Taking a bit to recover. So far the programming of the device has been going well and I know it may take a few adjustments but I am definitely taking less meds. I know this may not be for everyone but so far, it’s going well. Karen ❤️

park_bear profile image
park_bear in reply to Kwinholt

Glad to hear this, Karen!

Juliegrace profile image
Juliegrace

That is great news. Here’s hoping for even more improvement.

Zella23 profile image
Zella23

So pleased to hear it is going well, and now you are needing less meds. Good results.

Missy0202 profile image
Missy0202

So glad Karen! Thanks for posting. Looking forward to more positive reports!

Sleeplessparki profile image
Sleeplessparki

Hi Kwinholt,

I was the DBS class of 2018….congrats on your new device!! Wishing you all the best.

eschneid profile image
eschneid

K,

Like your courage and wish you great success with your new toy. Hope it takes you back to pre-PD days mentally & physically.

As I inch closer to DBS, would love to know where you had it done, which surgeon did it and how you came up with those decisions....Only when you feel up to it of course

Eric

Tenafterten profile image
Tenafterten

Hi Karen. Great to hear from you and glad you’re doing. well.

ParlePark profile image
ParlePark

Very happy to hear Karen!

Astra7 profile image
Astra7

Thanks for sharing. Keep us updated on progress.Is it all under the skin?

Goldencbc profile image
Goldencbc

Thanks for sharing. I hope you continue doing well plus!

20fatcats profile image
20fatcats

were your symptoms mainly tremor . do you know if it can help falling issues

PDGal4 profile image
PDGal4

Wishing you continued healing and improvement with your DBS device. You are brave!

You may also like...

ETTERUS, VIVACE 1017 AND HIDDEN. HOW ARE YOU FEELING, SEVEN OR EIGHT YEARS POST DBS SURGERY?

satisfied with the outcome of your procedure. So far, are there any trade off or side effects now?...

Maybe I should delete my old posts as I add new ones on the same topic?

have been taking 1200 mg a day (800 in the morning, 400 at night) ever since. What do you all...