After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the hardest to deal, especially when off meds, but still not having off times. Fine motricity is also an issue, it seems that my brain is still recognizing the limits of my body. Some lack of strength, but i have been lazy doing my weight lift workout. Also have some small speech issues, but had already also some before surgery, and soft voice remains, but easier and more on the afternoon. Walking it’s not easy also sometimes, except in the morning, that is quite normal, on the afternoon i tend to drag a bit my untreated leg (right one). This are the bad things, but…
No off times, except for some sleepiness after lunch, no dyskinesia at all (this is priceless), dystonia is about 40-50% than my worst, urinary urgency completely gone (except for some random episodes), no brain fog at all, excessive drooling controlled (some random episodes very rare). Rolling over in bed is not a problem anymore, and neck pain and rigidity are completely gone also. One thing that i discovered recently is that my excessive sweating is gone. It’s very hot on the summer where i live (we easily reach 40ºC) and i used to soak 2 or 3 t-shirts everyday and now is gone, back to normal sweating again. Hurray!
Motivation is not superb right now, but my mood is good, i think is a normal adaptation to the situation, after a period of extreme excitation, back to my full time job in a school, working at about 80% (not teaching). Back to running again, after a 3 weeks down because of a fall running (not a balance issue, just distraction, lots of runners fall on that spot) where i probably fractured a rib, but restarted last week and i have been running an average 5-6 kms everyday, one week now. Tomorrow i pretend to go back and try 10 kms…
As i said before, it´s not a cure, but to me is working very well, my life quality has suffer a huge improvement, i do not feel like a DBS cyborg, the felling of freedom is huge also. Dr. J. told me i would feel improvements all over the first year, and so far he was right. Really putting on the table to treat the other side, if i have such a good outcome as on my treated side, i would be a very close to normal person. Very grateful to the whole team.
47 years, first symptoms 14 years ago, DX 13 years ago
Currently on 3x-3,5x sinemet 25/100
2x amantadine 100
Omega3
Vit D 5000 UI
Vit B1 HCL 1g
Mucura pruriens 1 capsule with the first sinemet
Brief PTT FUS update
