My husband and two adult children very rarely talk about Parkinsons. I understand that this is my husband's way of coping and he is always there. He never offers help but always gives it if I ask.
My daughter and son react very differently. My daughter will talk about it and often 'fusses' round me, which is her way of coping.
My son, on the other hand, never mentions it. I did not realise how he felt until he was printing something for me yesterday and saw my e-mails, which I must get round to deleting. He nearly had a fit and thought i was being morbid and should not use the site as a 'crutch' but try to forget Parkinsons.
He went home with his young daughter shortly after. By the way, both my children are in their 30's. He phoned me later to apologise, but said he cannot bear to think of me having Parkinsons. I was diagnosed 6 years ago and did not realise how he felt. I thought he had accepted my condition.
My son and I have always been very close so I understand that he is frightened of losing me. I tried to reassure him, but was wondering whether anyone else had experienced anything similar?