How Exercise Impacts Parkinson’s Disease ... - Cure Parkinson's

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How Exercise Impacts Parkinson’s Disease (and Revised definition of intense exercise)

Farooqji profile image
13 Replies

According to the researchers, some people are not able to achieve 80% of the maximum heart rate, no matter how intense their exercise is. So the revised definition is as "Intense exercise is defined as elevating the heart rate, commonly between 60 percent and 80 percent of an individual’s maximum heart rate. So doing intense exercise doesn’t necessarily suggest excessive endeavors and can be achievable for all. "

It's now beyond any doubt that intense exercise nor only slows down the progression of the current symptoms,but also delays the onset of the new symptoms.

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Farooqji profile image
Farooqji
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13 Replies
rebtar profile image
rebtar

I think intense is defined as exercising at the level that you can't comfortably hold a conversation.

jeffmayer profile image
jeffmayer

Absolutely agree

JayPwP profile image
JayPwP

My intense is 24 x 7. I am always in tense 😆😆

sharoncrayn profile image
sharoncrayn

Dr. Rossi doesn't cite any specific trials or studies or his own work to support his conclusions about "intense exercise and PD." Did I miss something? This forum has discussed this subject many, many times.

You should have at least mentioned Corcos's SPARX3 or his earlier Phase 2 with a sample of 128, whose results were deceptively positive.

Why? Participants enrolled in Corcos's Study in Parkinson Disease of Exercise (SPARX2) were at an early stage of the disease and none were in need of PD medications. Atypical to say the least. Unrealistic.

You might think about revising what you have written.

Sharon

pmmargo profile image
pmmargo

I think our own John Pepper has been emphasizing this for years and is the real hero in recognizing the role of exercise in curing Parkinsons. I'm proud to be associated with you John!

GrandmaBug profile image
GrandmaBug in reply to pmmargo

I'm a proud follower of the Pepper method, too.

Kwinholt profile image
Kwinholt

Hi there. I wish I could say I agree that intense exercise slows the progression ect. Don’t get me wrong exercise is a must, however, I am an ultra runner, marathoner, weight lifter that has Parkinson’s, diagnosed going on 9 years now. My disease is progressing and symptoms are getting worse and my dr wants me to consider DBS. So....for me if intense exercise was the answer , then why the hell do I have Parkinson’s and why the hell is it getting worse? 🤷🏼‍♀️ Take care. Karen

in reply to Kwinholt

So you have had Parkinson's for 9 years but you are still able to run marathons? If I am understanding that correctly, that is a testament to exercise slowing the progression. The fact you can even still be an ultra runner after 9+ years is quite something.

Kwinholt profile image
Kwinholt in reply to

Hi. I’ve been doing marathons over 20 years and as of August 2019 I have not been able to continue my passion. And looking back there were signs before I was diagnosed, falling 5 times at races , my foot not working right ect. Believe me , I thought I figured everything out and I knew how to help everyone and how the meds worked.....I was naive. The disease is stronger then me. I’m not doing the pitty party, I am just being realistic. These days I walk and trot a little but continue to keep moving bc exercise of any kind is a must. The point I was trying to make , is the intense exercise isn’t always the answer as with everything else with this disease. What works for some doesn’t always work for others. Keep moving and take care. Karen

Sapeye2020 profile image
Sapeye2020

Karen, for me this COVID gig has been a fall into more periods of fine tremors which I have had for ~ 10 years , Dx 2013 and adding unintelligible stuttering, loss of words , a slow progression till of late, and periods of dizziness. and most lately insomnia, with no or minuets of sleep every night.

Multiple causes?./..

Due to a car accident in ancient times, there are very few sports I can do on hard surfaces. I was a swimmer and loved Water Polo, played for 15 years till the team disbanded, I kept on swimming alone... Our public indoor pool closed for 6 months last year and opened in the late fall (Oct) and being a doublelee medically compromised and charging headlong to 72 in 2 months.

I made the hard decision that I will not go to the pool till the pandemic is over or after I and the wife can get the 'shot' ...there are so many other opportunities to get the Virus without going to the pool...

So I am delegated to walking a very active dog, 60 # Munster-lander, at least 4 times daily with 4 feet of snow and now an Arctic breakout is upon us, not the temp so much but the 30 mph winds and blowing snow. This dog will not walk on the treadmill! being a hunting breed, he insists on being ahead beating the bush...

So for now I am getting some movement but nothing of substance in my eyes. My defn. of extreme exercise is when you have to breathe between words, haven't been there since playing water polo but I still aspired to do my laps as fast as I could using a lot of self talk while thrashing the water 3 x a week, goal was to do it backstroke , which was one of the diagnostics my GP used, ( a swimmer also) plus getting slower and slower due to having uncoordinated arm movements, imagine running with a pebble in one shoe. He sent me to the Neuro specialist right off.

I would read up on FUS before DBS, there was a posting a couple of days about the advancements in FUS.

How do you feel after an Ultra.. How long before you recovered fully? You may be depleting a lot of whats left of the few functioning neurons that are still producing Dopamine. It is harder to 'come back up ' each time you drop.

HTH.

Kwinholt profile image
Kwinholt in reply to Sapeye2020

Hi there, I was a person that recovered well after races. When doing ultras , Spartans , my long runs after diagnosed, I would always have to take extra meds bc I was burning them faster. The last marathon I did in July 2019 was the SF marathon and I did it to raise money for PD but in the process of running that one, I severed my hamstring which I had to have reattached with anchors in October 2019, which has sidelined me with a year recovery however things were getting more difficult prior. Exercise is definitely important but if it was the (answer) then in reality I shouldn’t have PD and it shouldn’t be progressing. I’m a big advocate on good nutrition and good rest as well. Take care. Karen

Sapeye2020 profile image
Sapeye2020 in reply to Kwinholt

I'm afraid to tell you , but, IMHO the reality is that , in the best of times, exercise only masks PD from the owner... You may seem to be holding steady, but in reality you are still dropping on whatever scale you pick.... The harder the workouts the slower the descent but it is still there.

One has to use vitamins and other compounds (are needed) to also slow the descent if possible.

PD is a designer disease, we are all different yet similar. ie: One of my brothers was DX'ed 2 years prior to me, he is 3 years younger and more advanced.

When we get the Dx, that is when the self talk and acceptance has to happen. otherwise every day can be a crappy one.

The sun is shining again today!

Kwinholt profile image
Kwinholt in reply to Sapeye2020

Yes , you are so right. With everything else going on in this world , I am thankful I have a home and can pay the payment and have food in my fridge. I also know how bad this disease can be (already having cancer as well) that there are others out there that have a path worse then I do. I am grateful Take care . Karen

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