Repeating All Autonomic Studies as a Result of Out of Control Heart Rate and Labored Breathing - Any Thoughts?

[Kevinbg]

I was in the ER today with a heart rate of 230 BPM. Breathing was labored. Everything checked out fine. My movement specialist has ordered full battery of autonomic tests to determine progression of my previously diagnosed autonomic neuropathy or MSA. Any thoughts?

[laglag]

Did they check you for Covid?

[Kevinbg in reply to laglag]

Yes. It was negative. Everything is negative.

[MarionP]

Better to wait for results of tests and their followup-follow-along indications

[Kevinbg in reply to MarionP]

I think it's better to educate yourself.

[MarionP in reply to Kevinbg]

My mistake, I thought you asked for "any thoughts?" instead of "looking to bait people so I can pre-textually contradict them." Next time I'll know better. Thank you for revealing the private functions of your public language in this and Hikoi. You may have little to gain here from us little folk. But I bet you thought of that long ago, too.

[Kevinbg in reply to MarionP]

So to offend youso easily and quickly. I'll be sure to block you.

[Hikoi]

While you are waiting you could check out info on takycardia

[Kevinbg]

Did that lon g ago.

[MarionP in reply to Kevinbg]

But of course you did. Long ago.

[Kevinbg in reply to MarionP]

Sorry you are so easily offended.

[JohnPepper]

I don't know if your problem is the same as what I had. My pulse was erratic, varying from one every 2 seconds to 4 in one second.

I had a Cardiac Ablation operation, which took 5 and a half hours, and my regular pulse rate is around 60 per minute. What a difference, I am now able to do my fast walking again!

[Kevinbg]

I have a pacemaker for slow rates, but probably need an ablation for fast rates, like you.

[faridaro in reply to Kevinbg]

I've had terrible atrial fibrillation and even on a heart rhythm medication every couple of days my heart rate would go up to 130 ish range and then out of blue would drop to 32-34 bpm sometimes for an hour. It was very stressful - I was afraid of driving a car and passing out behind the wheel from such low heart rate. Was thinking of getting a pacemaker but my EP suggested ablation which was done over a year ago. Thankfully, since then my heart have been in sinus rhythm 60-80 bpm with some occasional ectopic beats. Hope you'll be able to find the cause of your elevated heart rate and get help.

[Kevinbg in reply to faridaro]

Sounds like the same problem I'm having. I was scheduled for an ablation 15 years ago and chickened out. Maybe, it's time...

[faridaro in reply to Kevinbg]

Now that technology is much better (3D vs 2D heart mapping study) there is a higher success rate for ablation outcomes. If you decide on ablation it's good to ask your doctor which technology they are using.

[Kevinbg in reply to faridaro]

I see my cardiologist tomorrow morning. I'll ask some questions. He'll probably suggest approaching this topic with my electrophysiologist.

[2bats]

You may find James Nestor’s book “Breath” helpful.

[Kevinbg in reply to 2bats]

Now, I'm intrigued. I'll check out the book. Thank you!

[Somic67]

Carboidrates seems to worsen “out of control heart rate” (topically atrial fibrillation). Try a low carb diet for a week or two and check for improvements. If so, you may have found a way to go.

Also autonomic system addiction to l/c meds may cause them

[Kevinbg in reply to Somic67]

Fortunately, I'm not yet on L/C. However, I do eat a fair amount of carbs. I'll try this.

[Somic67]

Not only L/C meds cause an autonomous system addiction (sleep pils as example)

[Kevinbg in reply to Somic67]

I've had autonomic nerve testing and peripheral nerve testing twice. Peripheral neuropathy is "severe" and autonomic neuropathy is present, but I can't remember to what degree. I see my cardiologist Monday at 9:00 am and repeat my neuro testing Tuesday at 3:00 pm.

I have a telehealth appointment Friday at 3:15 pm to discuss the results of the neurological testing. While I'm hoping my disorders haven't progressed, I really do want answers and a treatment plan...

[Kevinbg]

UPDATE - I saw my cardiologist on Monday. He's ordered an echocardiogram to check general heart health and especially my pulmonary hypertension. He also ordered a left heart cath in an attempt to rule out cardiac causes of my rapid heart rate, ventricular tachycardia and look for blockages. However, he said he concurs with my neurologist, pulmonologist and the ER doctors that this is most likely autonomic in nature. The echo isn't until December 23. The cath will be much sooner, and we're just waiting on pre-approval from the insurance. Thankfully, I have great insurance.

Today (Tuesday), I have autonomic testing at my movement disorder specialist's office. Friday, I'll get those results.