Terribly cold?

[jeeves19]

Hello everyone. Been a while since I posted anything (there was a time whereby i posted weekly. Then one day I realised I knew everything 😂😊). But here’s something that I’m new at and is becoming a real drag, more so because my wife is menopausal and runs around complaining that she hot and ruddy well opening all the windows. Anyway, I can get really cold. I mean shivering. Obviously my autonomic nervous system has seriously imploded now! Anybody else suffer from this cold?

[Grammy80]

I'm newly diagnosed with PD...but thought I'd share. I'm 84, always warm/hot and my 81 year old husband is like you. Maybe it is just a testosterone/ hormone thing. I offer this....just on the outside chance it offers some comfort.🥶😰 💞

[Daisies22]

Yes I do! It happens every time when I take levodopa. I often wonder why this might be.

[AGH_1966 in reply to Daisies22]

Same here, but only recently.

[mleec]

I struggle with temperature changes. Too hot I can’t function, too cold I shake so much. I have to dress in lighter layers when I go somewhere because I will have to take off or put on something at a moment’s notice. It can be disruptive and stressful. Especially when I am too hot because then I get nauseous. Parkinson’s the gift that keeps on giving. Do you have an electric blanket? Or a warmer that you put in the microwave? You can put the warmer on your back or your feet, whatever is cold. Good luck 😊

[Smittybear7 in reply to mleec]

I have the same issue . No fun

[MBAnderson]

Adam,

Same here.

My comfort range has narrowed to 74 to 78 degrees F or 23 C - 25 C for you.

Put on a sweater and be nice to your wife.🙂

Marc

[RonB1 in reply to MBAnderson]

For me, it's about 15 C to 23 C. Above 30 and I sweat like a marathon runner!

[jeeves19]

😂 Thanks all for your comments. Nice one Marc

[LAJ12345 in reply to jeeves19]

Yep , do what my mother used to say. Put something on if you’re cold😆.

Try getting a nice woolly rug for over your kneees, or one of those oodie things the kids wear. One with all the food on it.

theoodie.com/collections/fo...

[Practiced]

Yes, I don't like the cold, the shivers get mixed up with an otherwise minimal tremor so I can shake a lot. Also after I get cold, say swimming in a 21C ocean (where I live)it takes me hours to warm up. Fortunately my wife likes it hot so the house is perfect. Heat doesn't bother me except that it can make me sleepy. How many posts till you know everything🙃?

[jeeves19]

😂 Dunno really. About 200 I reckon . I’m the same as you, 10 years in. I’ve given up fighting it somehow. Let’s see what happens!

[MBAnderson in reply to jeeves19]

"I’ve given up fighting it somehow. " Please elaborate.

[jeeves19 in reply to MBAnderson]

Just learning to accept that it is what it is I think: that it’s a brain disease that gets worse with time. I still exercise to keep the worst aspects at bay but generally accept that I’m screwed and that within 5/7? Years the likelihood is that I shall cease to be (just like the Norwegian Blue Parrot!

[bookish]

Hi, I don't have PD but other autoimmune, neuro and autonomic stuff and like some of the other posters react badly to being both too hot and too cold - I can't self-adjust and can't even always tell which it is! Usually too cold is more common (NW England) so I put on a hat and a sweater and if I feel worse then I was too hot......Small Fibre Neuropathy diagnosis is part of the reason, but the thyroid is the body's thermostat, courtesy of the pituitary. So you could double check your thyroid (TSH and hormone levels - FT4, FT3, and antibodies), and vit B12, as deficiency can affect myelin outer of pituitary and mess up thyroid signalling even if thyroid itself is ok, as well as the whole raft of issues neuro, energy and blood that it causes more directly.

[jeeves19 in reply to bookish]

Thanks for that 😊

[YoungPD-48]

Good morning Jeeves19, it might sounds bit weird but try-----cover your big toe and pinky toe with fleece cloth, it will increase your body temperature.. I don't know how but it does work

[enjoy2013 in reply to YoungPD-48]

I'm keen to try... just those? Not all the toes, right? Both feel?

[jeeves19 in reply to YoungPD-48]

Surely they are already covered by a sock? 🤔

[00Mark]

Since Parkinson's my temperature regulation is all over the place. I basically shut down in warm weather, feel cold in moderate temperatures, and sometimes feel hot in one part of my body and cold in another.

My coping strategies include wearing a big hat and staying out of strong sunshine (easy in the UK!), dressing in layers, and using a small fan beside my bed at night - it runs off a USB phone charger.

[Mechjack]

I (39 YOM) also get cold very easily. When I do get cold the the whole body tremors take over.

[Fatherof5]

I have. This was one of my earlier symptoms that I had before my diagnosis. It was bad, swimming in Florida on the Gulf Coast I swam with the Manatees and came out of the water shaking like a leaf. It has pretty much gone away but I’m not sure how or why. I did lose a lot of weight (I don’t have much to start with) so perhaps my BMI(?) was way off and I essentially didn’t have any natural insulation? Through increased calorie intake and exercise which includes weight training I have been able to put back about half of my weight back. I am just speculating that regaining my weight has helped me with this symptom

[Esperanto]

Maybe not your problem Adam, but PWP often struggle with cold sensitivity and BMI loss, which are interconnected. Impaired thermoregulation makes it hard to maintain body temperature, increasing cold sensitivity. Weight loss, due to reduced appetite (not with me) and metabolic changes, leads to less body fat and muscle mass, further decreasing heat production.

Challenging to cope with de winter in west Europe and I’m already looking forward to my departure to ☀️Spain in my mini campervan next month!

[MBAnderson in reply to Esperanto]

Sounds fun.

[jeeves19]

yep, definitely me as I’ve lost about 2 stone over the course of the disease. I never had this problem between 1-9 years. It seems quite recently to have expressed itself. Enjoy Spain. I was in Malaga in August. Lovely city.

[Esperanto]

Malaga in August, at least you are heat resistant 😅

[AnArtist]

me too - dread winter- get all over trembling- it was my first symptom and gets worse

[Ctime]

Yes Cold is a big issue for me. Strangely it has improved a bit in recent months but I do get suddenly cold often shaking.

One thing that I have found is that some external heat input helps turn things arround much faster than just more clothes. Those instant heater packs are great but my battery powered coat is AMAZING. (seriously here 🎿) Not cheap and does not last all day but I have been known to put it on in the house to get out of a cold snap.

[jeeves19 in reply to Ctime]

What on earth is a battery powered coat?! How does it work? 😂😂

[Ctime in reply to jeeves19]

It is just a jacket with some pads that get warm with an electric current and a battery. The one I have is here gobiheat.com/products/wolf-... but there are a number of brands. One of the people I ski with likes ororo.

The point is that when I get the cold shakes I find it hard to get warm without putting some external heat back into the system! Sometimes it is nice to get under an electric blanket or in front of a fire etc but if you are out and about or even walking around the house getting stuff done, the jacket just does the trick for me. It also can help solve the problem of one person wanting the house warm and the partner wanting it cold. I am getting a vest when they are back in stock! The sweatshirt looks nice too.

[jeeves19 in reply to Ctime]

Thanks for that. It looks lovely and warm to be fair.Nice one😊

[Grammy80]

As a newbie, I draw so much from the tenacity and humor that threads through the posts.💞

[Parkie1]

My thermostat blew many years ago. I fluctuate from perishing cold to hot sweats most days, but I notice that it's usually wear off that brings the sweating. I take a fleece with me everywhere, and it's on/off all day. I view it as part of my exercise routine now .🥵🥶

[jeeves19 in reply to Parkie1]

Glad it’s not just me then! 😬😬

[PDKiwi]

Hi Jeeves,

I used to suffer from the cold; particularly my most affected right side. In bed my right leg would be icy cold while rest of my body was ok.

An Almag 3 PEMF device has fixed my poor circulation/cold leg problem while also eliminating an atrial fibrillation problem. PEMF also helps with high blood.

[Smokeypurple]

If the problem is also at night have you tried a partner duvet with different tog ratings for each side? Here's a link (not a recommendation for this particular company I just had a quick Google).alltogduvets.co.uk/partner-...

I'm hot in the day, with hubby sometimes wearing thermal everything round the house, but cold at night. If I put an extra blanket on my side it stops me turning over properly. I'd forgotten about these - could be a solution.

[jeeves19 in reply to Smokeypurple]

Thanks for sharing 😊

[Nikosmom]

sometimes my head is hot and at same time my body is cold. I put an ice bag on my head and drink a hot cup tea and turn on my back warmer. 😂. Crazy enough for you?

[alaynedellow]

hi Jeeves. We both bk posting atsame time. I hv temperature issues. I wear layers n they go in and off. Think the cold is most debilitating as i stand there shivering unable to move. Heats are diff to menopause sweats but taking clothes off helps.

If it wasnt sad it would be funny.