Dysautonomia is a general term for a group of disorders that share a common problem â that is, an autonomic nervous system (ANS) that doesnât function as it should. The ANS is the part of the nervous system that controls involuntary body functions (functions you donât consciously control) like your heart rate, blood pressure, breathing, digestion, body and skin temperature, hormonal function, bladder function, sexual function and many other functions.
I wanted to say that the term and the article are difficult for me to understand and I ask you to evaluate for me the information, that is, what idea did you have of this thing in relation to the PD. (I'm on vacation)
In simplest definition; dysautonomia is Dysregulation of autonomic nervous system (ANS )where we all PWPD has at least one or more. We share this with primary dystonia as well.
Dysregulation in circulatory system to urinary system , breathing, ... and every other system in our body, just name it Gio.
Thank you for the in depth information regarding dysautonomia. I was diagnosed with dysautonomia 30 years ago. I had no idea of implications about links to neurological and other issues. I donât have a definitive diagnosis because I tend to avoid doctors and invasive testing. My tremors got better on b12 supplements but so far no improvement in my dysphagia. I always learn something reading your posts thank you again.
Hi Gigi216 I have also been diagnosed with dysautonomia. I just wanted to tell you that all of the tests I had to get my diagnosis were non-invasive. So I had nothing painful whatsoever x
it happened to me 8 months ago. I was taking too much levodopa to sleep at night. initially i was feeling great because i was sleeping 6 to 7 hours at night with 2 or 3 doses and waking up really rested and ready for the day but after a while strange things started to happend.
Vivid dreams (it was funny) but also initiating to sweat really a lot after wake up (really like under a shower) with same room temperature (body was struggling to detoxify); wakeing up really really thirsty; feeling disturbed by direct sun when On (that summer i got no tintarella); more wearing off status and really blocked for long time (while normally i used to be able to do basic movements); transition from Off to On was a pain; involuntary movements while Off; rapid short breathing while Off; a dose giving On then Off and again On (roller coaster)
The very end to taking levodopa all night arrived when i had paradox effect. That is the std dose was having a paradox (opposite) effect, increasing rigidity and pain instead that decreasing (this is more common with sleeping pills that starts to excite instead than to calm down)
it has been a nightmare: i was needing the meds but they were bad for me and very hard to solve. Neuro told me I was saturated of meds and my body was refusing them. Had to wash out the body from the meds for 48 (i could not succeed more than 34 hours in two steps (10+24), not sleept and eaten for 66 hours in total - at the end of the wash out I was having every muscole of the body rigid, unable to move even a finger, with unmotivated ansia attachs and tremors - later on I understood it was a Malignant Nuerolepic Syndrome or drug withdrawl syndome like cocaine ones) and add other drugs to rebalance the neurotransmitters and autonomous system.
it took a long and difficult months to return to normality because autonomous system was weak and had to do other 4 wash outs to stabilise results during which my body, after every pill of levodopa taking, was immediately (in a minute) identifing the drug like toxic and showing it didn't like it.
It has been a nightmare but very very istructive on the (superior) intelligence of our body.
Thanks Kia, That has given me a lot to think about regarding my diagnosis. PD with AutD or MSA? I am thinking MSA as I have every AutD symptom listed. I have a PET scan on Friday so hopefully no hot cross bun sign on the pons(probable MSA). Unfortunately they can only confirm it postmortem
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