Anyone been (successfully) treated by a h... - Cure Parkinson's

Cure Parkinson's

26,506 members27,915 posts

Anyone been (successfully) treated by a healing touch practitioner?

narcisa56 profile image
21 Replies

Anyone been (successfully) treated by a healing touch practitioner?

Written by
narcisa56 profile image
narcisa56
To view profiles and participate in discussions please or .
21 Replies
Cagey84 profile image
Cagey84

No.

narcisa56 profile image
narcisa56 in reply toCagey84

Have you tried at least?

Cagey84 profile image
Cagey84 in reply tonarcisa56

No. It’s the kind of stuff that needs belief for it to exert its placebo effect and I don’t believe it. It’s beyond the edge of credibility. Look up “therapeutic touch” on Wikipedia.

narcisa56 profile image
narcisa56 in reply toCagey84

Still - I often think that only a miracle can save me............

park_bear profile image
park_bear in reply tonarcisa56

Qigong practice has been a miracle for me. I am improving rather than getting worse. My story here: healthunlocked.com/parkinso...

Also taking high-dose thiamine.

Cons10s profile image
Cons10s in reply topark_bear

Parkbear, I can say the same thing, whether it’s Qigong, or for me Dr. Joe Dispenza meditation engaging the body and brain in these practices brings much improvement to the disease symptoms. My life is near normal tho not perfect at (year 5-6) compared to in hiding (year 2-3) before I began meditation and B1.

I’m still running my company of 30 employees and have enjoyed navigating it through these trying times. I’ve never made an announcement in my company about my health, because for the most part you just can’t tell I’m managing a disease.

Farooqji profile image
Farooqji in reply toCons10s

You are right. I had watched your video, you looked absolutely normal. I hope this was not a short-lived relief

Cons10s profile image
Cons10s in reply toFarooqji

Iqbaliqbal, no sign of my improvements being “short-lived” on the contrary actually.

Constance

chartist profile image
chartist in reply toCons10s

Constance,

I don't know if you are aware of it or not, but Dr. Costantini succumbed to Covid-19 very recently.

Art

Cons10s profile image
Cons10s in reply tochartist

So sad, I really enjoyed meeting him. Weird thing when visiting him in September of 2018, as we left Dr. Constantini’s building I turned to my husband and said,” he looks like he could have a stroke”, I could feel his overworked body, long hours, and the mental commitment had taken a toll on him, he was exhausted in a way. I understand the stroke was a result of a medical procedure, but as his associates mentioned he had ignored his own health in the pursuit helping others, and that was apparent.

I feel lucky to continue to benefit from his life’s work. It’s the gift he left us all.

Constance

AaronS profile image
AaronS in reply topark_bear

Park,

that is awesome, I have been wanting to get some more info on quigong for quite some time, I don't understand the meta physical application of it as i haven't done enough research as yet, but as far as physical activity on a daily basis, how much did you do to start initially, to build up your regards routine, and yoga..... would this affect you in the same manners, or at least similar?

Much Appreciated mate

Aaron

park_bear profile image
park_bear in reply toAaronS

I set forth how I got started at the link in my prior comment.

The physical activities of Qigong are merely a means to an end - the cultivation of the subtle energy known as Chi. It is the presence of the Chi that encourages the healing to take place. This is not a quick fix - I have been at it for three years now. I did experience an immediate improvement when I first started. However, since then improvement has been gradual. The practice is its own reward – abiding in divine bliss.

ElliotGreen profile image
ElliotGreen

Yes. But it depends upon what you mean by "successfully treated." Did my Parkinson's magically go away? No. Did it help me feel supported, and have a full body therapeutic shake-out (similar to TRE, trauma release exercises), after which I felt much better physically and emotionally? Absolutely yes. I slept better, too. Check out TRE, craniosacral therapy, and yin tui na.

narcisa56 profile image
narcisa56 in reply toElliotGreen

I would like to see progression stop (1 year post diagnosis) but of course any improvement would be welcome...........Thanks for the info, I will check it out.

Just one more question - what stage of PD are you in, and do you visit the healer on a regular basis?

ElliotGreen profile image
ElliotGreen in reply tonarcisa56

Hi there.

I'm about four years post diagnosis.

Well, I've tried different things.

Two of my mainstays are five rhythms dance and qigong.

Some stuff you can do on your own. You can learn TRE (Trauma release exercises) at home if you pay for the video or get the book (it's hard to find videos of complete exercise online, because they copyright challenge them).

I have a craniosacral therapist who is really good. I don't know exactly WHAT it does, but it has good effect.

For about a year, I had two friends performing Yin Tui Na on me according to Janice Walton-Hadlock's guidance. You don't need to be a specialist. It's just supportive touch.

This was in my own home, in my own bed, and it made a huge difference.

pdrecovery.org/yin-tui-na-t...

She now recommends that people who are stuck in Pause (most people with Parkinson's, according to her) deal with their psychological elements of the disease first. I personally feel that the hands-on healing is helpful rather than hurtful, even this case.

But if you feel like engaging in a whole different perspective on Parkinson's (one that connects with Western medicine, but which draws upon Chinese medicine and also her own experience over 25 years), check out her work more broadly. I stopped getting this because my friends moved away, not for any other reason.

pdrecovery.org

People who are skeptical of healing touch may be discounting the emotional and psychological components of Parkinson's disease, along with potential physio- electric components. The other respondent said that you need belief in order to receive the benefits of a placebo effect. However, Laurie Mischley points out that placebo works even if you know it's a placebo! That suggests there's a different way of looking at it. Emotional state of mind is so important when it comes to dealing with Parkinson's disease. Treat yourself well, take a calm approach, try to work within your budget, ask for help where you need it, and get some relief. You are worth it.

narcisa56 profile image
narcisa56 in reply toElliotGreen

Thank you so much for all the info :) Nice to hear that the situation is not totally helpless. I will slowly investigate all the options, and hope to find sth that is helpful to me.

Best of luck to you as well!

narcisa56 profile image
narcisa56 in reply toElliotGreen

Hi again! I have one more question (being a non-native English speaker) - what does "stuck in Pause" mean ? :(

ElliotGreen profile image
ElliotGreen in reply tonarcisa56

Even English speakers would have trouble with the phrase "Struck on Pause", unless they were familiar with the work of Dr Janice Walton-Hadlock . She is a doctor of Chinese medicine who has been treating Parkinson's patients for over 20 years. She is now semi-retired, but she's still writing books.

Pause is a biological shutdown mode. It is an emergency trauma response. It is meant to be temporary. Your body and nervous system react in certain ways.

Dr JWH's theory is that people with Parkinson's disease get stuck on Pause.

Until recently, western science recognized two autonomic nervous system modes.1) The parasympathetic nervous system, which is associated with feeling relaxed and safe. 2) The sympathetic nervous system, which is associated with a "fight or flight" response.

Ancient Chinese medicine recognized FOUR modes, including the above two, plus two others. 3) Sleep, and 4) "Clinging to Life", which Dr JWH calls Pause.

(Western science appears to be catching up, because researchers in the area of polyvagal theory have found that there is another autonomic nervous system mode which they describe as a sort of shutdown or freeze. This may be the same thing as Pause.)

Dr JWH slowly realized that her Parkinson's disease patients were exhibiting characteristics of Pause.

According to her, a small percentage of her PD patients (about 5%) had their symptoms disappear simply through yin tui na, healing touch on the foot. These people simply had an unhealed foot injuries that were anchoring the body in Pause.

Most of her patients didn't respond in such a way, or not completely. She came to believe that these people were psychologically keeping themselves on a form of Pause.

The idea is that some childhood traumatic experience leads a person to decide something like, "the world isn't safe" or "I'm going to stop feeling feelings". They issue a sort of emergency mental command that leads them to go into Pause, or pseudo-Pause. She has a draft book available online called Stuck on Pause, for these people.

There is an adrenaline override to Pause. Pause leads you to freeze in an emergency. But sometimes in an emergency, you need to move. Imagine a person is attacked and badly injured. They may go into Pause. But now imagine their children are being attacked. They may get up and fight off the intruder despite their injuries, using an adrenaline override.

According to JWH, people struck on Pause can use adrenaline override for years and years. She says they use adrenaline to brush their teeth. But then they relax their adrenaline override, and Parkinson's symptoms emerge.

This is what happened to me. For years I lived my life with a sense of emergency. I was an academic, and I motivated myself to work with panic and urgency. Eventually I decided I couldn't work like that anymore, that it wasn't healthy for me. I gave up on my PhD (at least for the time being). That's when I started developing Parkinson's symptoms.

Parkie- profile image
Parkie- in reply toElliotGreen

Hello ElliotGreen

Very interesting "stuck on pause" explanation.

Have you gotten any improvement using Dr JWH advice?

Thank you

Cowpatti profile image
Cowpatti

When my daughter worked at Massage Envy they had head shaking Parkinson's patients come in for a massage and would walk out not shaking. Maybe those with high anxiety. Only certain therapists were trained for it. Also I read a scientific study on Yoga Nidra that said it raised your dopamine 80% wouldn't hurt to try

alexask profile image
alexask in reply toCowpatti

And there is even an app for that...

Not what you're looking for?

You may also like...

Has anyone been helped by a LSVT global program?

My husband has been diagnosed for 6yrs now. He is 75. His neurologist suggested a physical...

“Proven: Healing Breakthroughs Backed by Science."

In this 9-Part documentary series, you will hear from renowned experts and learn about...
Cons10s profile image

Anyone have harder time healing?

Seems like since my dx everything is more painful and takes longer to heal! I always was a quick...
Parkie35 profile image

Cold weather a problem? Anyone else lose it by evening?

For the past two years post diagnosis and for about ten years before, I have noticed more pain and...
Lionore profile image

Anyone else not helped by dopamine agonists?

Hi Everyone - I've been on levodopa (specifically Sinemet Plus three times a day) for three and a...
potbatch profile image