Rant alert!
One of my symptoms is slowness of movement. I wouldn't mind so much except that everybody is always rushing me! Why is everyone in such a darn hurry? And then they get crabby with me . I want to tell them they're number one with a certain finger! Driving me crazy. And there's no cure for this symptom that I can think of.
I hate those types- we need to flip them all off - that’s a great idea. My people would freak out if I did that: it would be Absolutely worth it. Thanks for the encouragement, Bass! #BradiFlip
BradiFlip....I love it Amy!!
I can't stop laughing about your Bradiflip!!! Omg! Thanks for that!
I have the same problem! I used to be swift on my feet, before PD. Now, my wife, who always walked slower than me, now walks much faster than me. I, sometimes, cannot keep up with her!
Once my husband and I were entering a licensed premises at 7.00pm.
They ask for Licence ID.
My husband produced his quickly. I was taking longer (as we with PD do). The security guide did a big sigh then said to me " dont worry, my shift doesn't finish till midnight."
I mean ?????????
Everyone thinks that he or she is immortal until they experience an illness. It's only a matter of time. I should know because I was such a jerk myself🤣🤣😤
And you didn’t chew his ass out? I’d like someone to say that to this Irishman. ☘️
"Hey, you're paid hourly anyway so what do you care, you're not going anywhere."
I hate it when I fumble a little bit getting the cash out of my wallet at the grocery store register and the person behind me in line makes it very obvious that I am holding them up. I'd like to tell them to get a life!
It took 3 years but my husband finally understands that I cannot keep up with his faster and longer strides.
"And there's no cure for this symptom that I can think of."
Interesting... For me, C/L completely "cures" my bradykinesia... I thought it did for everyone...
It does when you are"ON". What happens when you are"OFF"?
My PD bradykinesia and tremor symptoms eventually return if I don’t take c/l...
C/L doesn't help my bradykinesia
Me neither
that's actually helpful to know as my Dr hasn't had any other patients who it hasn't helped and he's a bit stumped by me
😳 @Levod Me too; I move w more fluidity on C/L I am new to C/L after “holding off” for 3 years. I really like everything it’s doing for me.
Same... so far, anyways
My favorite is when I’m going thru TSA or having blood drawn or an exam image
& the rep says “stay still”
🤣🤣🤣🤣🤣
I have a new fav!!
When my cell phone says “ stand still “ as I try to take a pic of my pay check!!!!!!!!
🤣🤣🤣🤣
Yes and all those blurry selfies!
My husband has same issues, also with retrieving money out of his wallet, packing a shopping bag in the trolley, then putting bank cards back in before the person him behind starts fidgeting! Goes into the bank now to get cash as putting it in the wallet sometimes easy but often not.
Takes C/L but does find dexterity skills difficult, can walk though. His new difficulty is keeping his feet from moving about when trying to stand still when cooking etc. Seems to get worse later in the day.
Reluctant to increase C/L as it tends to increase dyskinesia.
Sounds like me but im worse in the morning, get better as the evening goes on
So odd that we are all so different with symptoms. At the moment my husband is adding in his other 0.5 mg Rasigiline in the afternoon. Began at Christmas adding in a 1 mg of Rasigiline and we went out to a party and the facial dyskinesia set in. Close friends took no notice, strangers did though.
Amantadine was really helpful with this awful symptom - so after 4 months he s adding in the other half dose of Rasigiline.
Good time to try it out on Lockdown as no socialising except on Zoom, and they re all close friends.
Only allowed out once a day to walk or cycle so we ve been fast walking to make the most of our short time for exercise! Seems to be improving fitness and well being during the Covid Pandemic.
The worst for me is placing a sandwich into a sandwich bag! Can't even do it !
But you can still kill it on the 🎸 - right@BassofSpades?
That, my darling, is all that matters! If i lose that, im done.
don't frustrate yourself. As an OT, I recommend to just put the sandwich in a gallon sized bag or wrap it in foil. We do not have to do everything as before....I'm ok losing a few skills if I can compensate for them. FYI.....most people lose skills simply from aging. We aren't alone. If I can't manage something in my kitchen, I search for an easier option and give my other one away. I'm busy with a teenager, work and dogs.....I'm sure as heck going to rely on a jar opener if that is what I need to be successful. I've got bigger fish to fry. I can work on hand strength in my spare time. 
Best...reply...ever!!!
Thank you for such wise yet simple words. It's just what I needed.
Thank you !
No worries. Just stop beating yourself up and having such high expectations.....it causes depression, anxiety and lack of joy.
You're right. I do set my own expectations of myself higher than feasibly possible.i also believe in my mind that others, including family, friends,,bosses and coworkers, have these same expectations of me. This causes an insane amount of pressure . I wish I could figure out some way of dealing with it that doesn't make me feel like I'm giving up . Instead, i try to fight and hide it, avoid social situations sometimes and very often i try not to draw attention to myself.
I don't think I'm ready to look for a new career or lifestyle, I've got a family that depends on me. So I keep pushing and pushing!
(Thanks for the free psychiatric help!)
Tell ‘me bradykinesia is better than no kinesiology at all!!!!
Perfect 👌🏻
Well, I used to be always in a hurry, choleric type A personality and remember being annoyed waiting in line at the Costco gas station - it seemed that it was taking forever for people in front of me to get out of the car, find membership card, pump gas, etc. I remember thinking "why are they so slow, can't they move a little faster?" Unfortunately, now I know the answer....
I often wish everybody could be us for a day. They'd crap their pants!
Yes, PD is not for the weak...
Dr. Mischley told me she discovered in all her dealings with patients that there is a 'type" of person with PD. Type A. We may not think of ourselves as a type A, but if we really are honest....it's in there. This self-judgment and frustration with skills being lost, is simply our ego and need for control. I do believe I was given PD for a reason. I have 11 siblings and I am the only one to get the "gift" from my dad. Why? I need to slow down, put myself first, appreciate all I have been given, let go of past hurts, stop judging myself based on what I can do, stop caring what others think, stop complaining, re-evaluate my relationships, not be angry towards others rushing through life (I was that way not too long ago), etc. I stop myself from feeling sorry for myself....I'm missing the lesson if I wallow in self-pity. Yes, I can recognize my grief and mourn the loss of my ideal future at times, but then I move on to mobilize and prepare for my new path. The people I see really embracing this idea are the ones that are getting it right, in my opinion. Fred Phillips, Gary Sharpe....to name a few. Theirs is not a perfect path.....but they are learning so much about themselves and adjusting their mindset to stop seeing themselves as a victim but as a student. When you hit a wall, don't waste energy with frustration......rethink it and it will become clear.......sometimes a solution, sometimes compassion for others, sometimes realizing in the grand scheme of life...it really doesn't matter. Life is all about perception. Some of the happiest people I know in life have the least health, wealth, security. Enjoy this day!
Aye, Gary Sharpe,others- now: you too. You figured it out:Got the Golden Egg!
I feel this so much.
My Wife has Parkinson's too.
1Trial of Bradykinesia Stem Cell Therapy Now Dosing Last Group
Visit to Dr. Fancellu
Parkinson's Alert Card
