ROTIGTINA Neupro/24h

[export]

Is any one who on Rotigotina patch think that they don''f last 24 hours .

I am going off after 20 hours .some time less.My GP does not believe me.

What is one to do or If any one has this problem what do you do ???

yours EXPORT .

[carolineb211]

I am on the patches too but haven't noticed any wearing off . I put them on first thing in the morning and i am fine when i get up in the morning, perhaps your dose needs increasing?

Have you spoken to your PD nurse. GP's know nothing about PD other than what the consultant writes in their letters.

!!!

[export]

Carolineb211

HI I uses to put put my patch,s on in the morning and I was fine ,well I say fine.

I was falling a sleep all day and not sleeping at night .I also have put on weight.

I was told to put them on at night ,I say them because I put two 8mg each day.

They don't work on my arms or legs. Do you ever find they have come off.

Since I have been putting them on at night still not sleeping at night, thinking about it all I got is problems. I haven't got a PD nurse.

yours EXPORT.

PS Can you sleep okay .

[sjannie in reply to export]

hi, i have neupro patches for 3 and a half years.they are doing fine for me the only thing is that they go off, specially in summer. i put on sticking plaster and you have to hold your hand on it some min.when you put them on.they are not doing well on my arms.for the rest i am content with neupro i have 2 x 6 mg.

[carolineb211]

I have to put it on my arms because if I put it anywhere else, it becomes unbearably itchy, they seem to get damp underneath. I don't have any trouble with them coming off as long as I put them away from anything that might rub.

when I first started taking them. I was having trouble sleeping . But once I got used to them, it was okay.

My problem is they make you feel sick. So I had to reduce my dose until I see my Parkinson's specialist next week.

None of the dopamine agonists seem to suit me. The mirapexin made me feel like I was dying. The Requip gave me sleep paralysis, sparkly vision and hearing voices. and the patches make me itch, give me headaches and make me feel very sick.

I hope he can find something that I can take that doesn't give me horrible side-effects.

Sorry you don't have Parkinson's nurse, mine is a great help. you do seem to be on quite a high dose. I was told a maintenance dose would be an 8 mg patch each day, you are taking double that amount. Maybe you are on too high a dose?

can you ring up your consultant. If you don't have a nurse, sounds like you need to talk through with someone who understands about Parkinson's.

Good luck

Caroline

[cabbagecottage]

My husband has been on a neuro patch for about 2 years , now on 6 mg .

He also takes Sinemet plus along with Sinemet CR at night ..

The patches sometimes wrigle off but I find if if hold them on with the palm of my hand for about 30 sec they usual stay on . Sometimes they can leave a red mark for which I use Sudacreme .

The biggest benefit I found was that his mental capacity sharpened .

Not sure I can say that they last as they should and they did take a while to show any improvement ..

Have you found that they help your mobility

[Iank]

Parkinsons nurses are very helpful.. Try phoning.

Consultants also.

My main problem is Freezing..

How do you prevent or treat it?

IAN K

[export]

Thank-you all for your feed back caroline do you have funny dream . IAN K when you freeze , do you come back on without taking more meds.

IF you do get back to me.

Have any one put on weight .Do you fined they work better on some parts of your body. S JAN do you put both patch on the same side of your body

Thank-you

yours EXPORT.

[export]

PS They do work as i can tel when they stop and its well before 24 hours.

[carolineb211]

Nope, no funny dreams x

[export]

Your lucky .

Have you try'd pergolied they wok well for me for 10 years .

yours EXPORT .

[carolineb211]

No, are they the ones that are bad for the heart,

[export]

Caroline Nothing wrong my heart wear have you seen pergolide has any thing to do with the heart ?

What about Tolcapone they are good

yours EXPORT.

[BBPILOT]

Hi all,,

I have earley PD witth left hand trimmers using the drugs ,,Amantadine 100 mg and Selegilineh HCL 5 mg with menimum inprovment.

Pluse i see a decrease in sex preformance??

Whar is the ROT-NEU patch?

[export]

A ROTIGOTINE- IS A INHIBITOR WHICH HELP YOUR BRAIN MAKE LEVODOPA

LOOKING AT YOUR MEDS YOU DON'T NEED THEM.

YOURS EXPORT.

[BBPILOT]

THANKS EX,

I WILL CHECK WITH MY PDR

PATCH WOULD BE GRT,,,

[carolineb211]

From wikipedia

The drug is in decreasing use, as it was reported in 2003 to be associated with a form of heart disease called cardiac fibrosis.[2] In 2007, The United States Food and Drug Administration announced a voluntary withdrawal of the drug by manufacturers due to the possibility of heart valve damage.[3] Pergolide is not currently available in the United States. This problem is thought to be due to pergolide's action at the 5-HT2B serotonin receptors of cardiac myocytes, causing proliferative valve disease by the same mechanism as ergotamine, methysergide, fenfluramine, and other serotonin 5-HT2B agonists, including serotonin itself when elevated in the blood in carcinoid syndrome. Pergolide can rarely cause Raynaud's phenomenon. Among similar antiparkinsonian drugs, cabergoline but not lisuride exhibit this same type of serotonin receptor binding.[4] In January, 2007, cabergoline (Dostinex) was reported also to be associated with valvular proliferation heart damage.[5] In March 2007, pergolide was withdrawn from the U.S. market for human use, due to serious valvular damage that was shown in two independent studies.[6]

[export]

we have been busy.

Caroline I don't know. What I do know is don't believe ever thing you read on the net.

How long does one 125mg madopar/simnet last you or do you take two at a time, if so how long do they last.

Do you take them with or without food ?

Do you need to take med round the clock or not once in bed you don't take any more ?

In 24 hours how many 125mg do you need ?

yours EXPORT .

[Ladyinred]

Dear export,

If you are finding that the patch is not lasting the entire 24 hours definetly need to discuss with Pd doctor to increase dose since disease might have advanced and may be in need of higher strength but first look to see that you are consistent in your time when you put on patch. Do you have a routine of when you apply in am for instance after showering?

Also, remember that some areas of the body like the abdomen and thighs/ legs because of higher body fat and muscle have decrease absorption thus seeming like medicine last less time if applying in these areas.

I hope this helps and good luck.

[export]

Ladyinred

You are spot on. I was doing just like you say. Having a shower in the morning then putting new patch on my belly, Don't work on my arms or legs .

my PD doctor said i would sleep better if i put them on at 22-00 hours. because they make me sweat need a shower in morning and the patch is off .

think I will go back to mornings

thanks

yours EXPORT.