Mucus: Does taking Sinemet cause an one to... - Cure Parkinson's

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Mucus

Connie18 profile image
16 Replies

Does taking Sinemet cause an one to produce a think mucus feeling at the back of their throat In as little as 5 -10 minutes. It causes feeling of chocking and being unable swallow i dont have it first thing and starts mildly when first dose and feel s thicket and last longer as I take more does. I don’t get it with controlled release one. But I find I can’t use cr all day any more as that was what I was on in the first 4-5years+ but if I try it now it’s imposible to use all day as by the afternoon my voice did appears and I can barely whisper.

Anyhow back to the mucus does anyone have this problem and how to they cope . I rub and massage my neck and stretch neck but sometime i wake in night feeling like mucus is choking and then in the morning I’m ok again except then I get bad dystonia and can’t swallow at all

I really would like to,change my meds but was told that they all contain. Levodopa. Which is what is causing the mucus . Well I disagree I may get on better with madaphor or another levodopa drugs just wish they would justvtty

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Connie18 profile image
Connie18
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16 Replies
Icequeen10 profile image
Icequeen10

I have it also-----don't think it is from the medicine -. It's a part of Parkinson's..I take Mucinex pills during the day and at. Night I add a slug of cough syrup with more Mucinex and, if I need it 4 in 1 nose spray. Drink as much water as possible. I take allergy pill and an allergy spray each day.. I am so RN. My family is medical as well. I can't believe how many people say to me. " Oh you have PD,, you know that is probably how your going to die* I thank them for the reminder and tell them I already know ~ Sad and Scary .Connie.. Please know that I am only talking about me ond my experience.

Fishaholic profile image
Fishaholic in reply to Icequeen10

Hey I thought Mucinex read on labeling not to use if you had Parkinson’s

ConnieD profile image
ConnieD in reply to Fishaholic

You’re right it does. My 10 year old just read it from the box to me the other day. She said you can’t take this mom.

Fishaholic profile image
Fishaholic in reply to ConnieD

Yes I used it before I had Parkinson’s then I bought some a couple years ago because it worked good .

ConnieD profile image
ConnieD in reply to Fishaholic

I wonder why we can’t take it?

parkie13 profile image
parkie13 in reply to Fishaholic

I think that plain Mucinex is fine. It's the kind that has decongestant or expectorant added to it.

Icequeen10 profile image
Icequeen10 in reply to parkie13

We can take Mucinex unless we are on certain PD meds (agonists)

parkie13 profile image
parkie13

Rinse out and gargle with 3% hydrogen peroxide, spit out as much as you can and do it over and over if needed to. Try to bring the mucus from the back of your throat and spit it out. 3% hydrogen peroxide is the kind that you buy in Walmart or grocery store. I am also suspicious it might be caused by bacteria build-up.

chartist profile image
chartist

N acetyl cysteine (NAC) is known for thinning mucus and being a potent antioxidant.

ncbi.nlm.nih.gov/pubmed/307...

ncbi.nlm.nih.gov/pubmed/315...

Art

PositivePen profile image
PositivePen

Yes - me too and I guess it is Parkinson’s rather than the medication. I find my dry mouth as irritating at night as it is in the day - I haven’t found anything to solve that problem.

chartist profile image
chartist in reply to PositivePen

I make a simple mix for dry mouth that I find quite useful as outlined in the following post :

healthunlocked.com/parkinso...

Art

Cjbro2000 profile image
Cjbro2000

I get it really badly also. Sometimes I feel like I’m drowning in it! I try to avoid foods that will make it worse. For me that includes milk, cream, butter, sweets, greasy foods, fast foods or foods with chemical additives-preservatives and such. I too use an OTC Nasal spray/antihistamine at bedtime. It seems to help keep me from waking up in the middle of the night coughing like crazy. Lots of water may help, but also may interfere with a good night’s sleep! 😉

LAJ12345 profile image
LAJ12345

I don’t have PD, my husband does, and I have been struggling with this mucus on one side of my head, seemingly in my eustacean tube, saliva gland and nasal passage all on the right side. It feels like at night it is building up pressure in my head and gathering in the base of my head at the back. I have been trying to find out what is causing it for the past year. The doctors look at me sideways, Like I am making it up. One of them said it’s because I’m under stress, put it on my records so now they all say it’s stress. I have been to osteopath, physio, dentist to see if it’s a tooth infection. I’m booked into ear nose and throat and spinal specialist to see if they can help but have to wait until November! I can’t see how it can be stress. There is thick mucus I can suck out ( sorry for the imagery) and spit out so that is not imaginary! It feels like I have a lump of something in my head and it annoys me constantly and I feel like there is fluid popping and crackling in there. If I get a lot of it out I then feel like my head is under vacuum and hollow and I feel dried out inside with a dry mouth. I would believe it’s caused by bacteria. Could I have caught them off my husband? The doctors have given me amoxicillin and roxythromicin which didn’t seem to help much.

I’m not on any medications.

daughter-Advocate profile image
daughter-Advocate in reply to LAJ12345

did you find a resolution for this?

LAJ12345 profile image
LAJ12345 in reply to daughter-Advocate

yes! I went to a Chinese traditional doctor. She did cupping on my back and Chinese massage and diaphragm release. She said my chest was compressing my lungs. I have daily been doing stretching exercises on my neck, shoulders (they were becoming hump backed and forward facing), side stretches, twisting exercises of the spine, hip stretches etc and trying to make each joint in my body more flexible as I was being locked up into a hunched fixed position from too much bending over screens and sitting.

Also extreme tongue poking out and face exercises ie extreme smiles, tongue out, side to side, bent back. Opening eyes very wide, looking up, down, side to side.

The lump in the back of my head went away and I have been working on the tightness in my body working down it. I feel liquid now drain away from the back of my throat but it is runnier not mucousy.

The Chinese doctor didn’t really talk or explain much but it has been the key to getting rid of this horrible feeling. I think the freezing up of my joints from being still too much was blocking my lymph fluid removable of mucus. The lump I could feel was adhesions of muscles on the top of my spine I think.

Do you have the same issues?

CaseyInsights profile image
CaseyInsights

Try the NAC as Art suggest - it works

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