Increasing levadopa/carbidopa: I am at a... - Cure Parkinson's

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Increasing levadopa/carbidopa

12stargate profile image
20 Replies

I am at a fork in the road.

I ahve been on 10/100 mg levodopa/carbidoap four time a day for 6 years.

It has been working pretty well, but now the symptoms are increasing.

Should I increase the levodopa/carbidosa dose or try a natural remedy instead?

If so, then which one?

I have a drawer full of supplements. Most of the time I forget what they are for. I am in the process of goggeling them and printing the use of them. That will go in the drawer with the supplements.

I get more great suggestions and cheering on from this group than anywhere also. I want to thank you with all my heart :)

Bailey from Texas, than you for your post on constipation and cold toes!!

That helped a lot!!

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12stargate
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20 Replies
Bailey_Texas profile image
Bailey_Texas

For me your current dose is small. I take 1 50/200 ext release and 2 25/100 6 times a day every 4 hours including 1 am in the morning. So based on what i take i would increase the amount you are taking.

I am 6 ft 2 and 220 pounds but i do not know if size matters. I am in my 11th year of pd.

Littlerody profile image
Littlerody in reply toBailey_Texas

Good advice. Judy

Martink58 profile image
Martink58

says increase dose

BillDavid profile image
BillDavid

Your issue is discussed, on youtube video, "Interview with authors of Go0dbye Parkinsons, Hello Life".

BillDavid

12stargate profile image
12stargate in reply toBillDavid

BillDavid

Thank you!! Great information!!

Blessings from Eva :)

Annie81963 profile image
Annie81963

I currently take 25/100 mg carbidopa/levodopa 3 times daily along with 1.5 mg of Pramepexiole 3 times daily and my symptoms are under control. My dr increased carbidopa / levodopa to 4 times daily once and my tremors increased so bad I decreased the dosage and everything went back to normal.

Littlerody profile image
Littlerody

Talk to your dr. I can't deal with supplements as well as others. I give them a lot of credit. Sometimes the scripts are just easier. You may need an increase but there will be an adjustment period like any other med. good luck and be well. Judy

12stargate profile image
12stargate in reply toLittlerody

Littlerody

I don't deal well with supplements either.

Blessings, Eva :)

Beachdog profile image
Beachdog

I've been on C/L 25/100 for years and it does pretty well - 4 times a day.

Beckey profile image
Beckey

I told my doctor about a half hour after I take my sinemet, my right foot curls up and becomes rigid. I was thinking my dose was too high, but she said there's no way the C/L spurs dystonia. BTW it subsides about two or three hours after it appears. ???

jeffreyn profile image
jeffreyn in reply toBeckey

I had a somewhat similar experience about a year ago when my neuro increased my levodopa dose.

About half an hour after taking the new dose my right foot would arch up and then go flat again. It would do this repeatedly for about an hour. I called it dystonia but my neuro called it dyskinesia. In the end we agreed to call it dystonic dyskinesia.

I got rid of it by halving my levodopa dose and taking it twice as often. I now take half a Madopar 100/25 six times a day, instead of one Madopar 100/25 three times a day.

Beckey profile image
Beckey in reply tojeffreyn

Ha! I knew it.

jeffreyn profile image
jeffreyn in reply toBeckey

If you Google "levodopa peak-dose dystonia" you should get something that you can print out and give to your doctor.

12stargate profile image
12stargate in reply tojeffreyn

jeffreyn

Thank you, I sure will :)

Please enjoy your day :)

Blessings from Eva

rhenry45 profile image
rhenry45 in reply toBeckey

Tell your neurologist you need Botox in your foot and that toe curling will go away

Beckey profile image
Beckey in reply torhenry45

Ha! Bless you.

12stargate profile image
12stargate

Beckey

It is a very strange condition we have, isn't it???

Beckey profile image
Beckey in reply to12stargate

YES!

12stargate profile image
12stargate in reply toBeckey

Beckey

Enjoy your day Becky :)

Much love from Eva :)

Beckey profile image
Beckey in reply to12stargate

You too, dear Eva.

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