Vitamins

[Tilly56]

I keep reading on this site, about the benefits of vitamins what a, waste of money

[Hidden]

What? 30$ for 300 capsules!

Parkinson's disease relief:

Diagnosed 2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600... ; …

Parkinson's Relief, Questions and Answers

[WinnieThePoo]

I think a lot of people probably take a lot of supplements which are of little or no merit

But don't throw the baby out with the bathwater. Royprop I see has already promoted thiamine, and whilst I think it suffers from hype by its supporters,there is significant anecdotal evidence that it can be worthwhile supplementary therapy.

There is good research about B12 and PD. And PD, and a modern lifestyle are notorious for vitamin D deficiency. After a blood test last march, my french doctor phoned me on my journey back to the UK and told me to supplement D3. And I live in the south of France and have a deep full body tan. My Dad, who has PD is just home from 3 months in hospital, and whilst there were many other factors leading to his recovery from a near coma in the last 4weeks I am pretty sure vitamin D was an important contribution. After I flew back to help my sister deal with the hospital after they nearly killed him with codeine, I insisted they do a blood test for vitamin D. They reported his level was "critically low" and supplemented 10000 iu a day IV for the 4 weeks leading to his discharge.

There was a good article in the guardian google.co.uk/amp/s/amp.theg...

[Tilly56 in reply to WinnieThePoo]

Lucky you, live in the south of France and have a deep tan, i live in a inner city housing scheme in castlemilk glasgow uk its June is raining its cold, i live of government handouts, the area has drug addiction, alcohol problems,gang murders, i take prozac for depression had to retire from work due to parkinson, i hate this terrible disease, you rich people are all the, you think of sun tans and money, wish i had some of that life, want to swap places, and yes i am bitter

[WinnieThePoo in reply to Tilly56]

It has been said that exercise is the number one effective therapy for PD, and that's free even in Glasgow.

Personally I think a positive attitude is at least as important, and that's free too.

But you need to adopt one to experience the benefits

[Casey953 in reply to Tilly56]

I suggest you call the PD nurse at coatbridge. She will be able to arrange appointments with PT OT and speech therapists. As you live in Scotland your prescriptions are free and you should try Sinemet. There is a good chance it will make you feel better. I You could probably get the dr to pprescribe b1 and there are probably classes at your local exercise gym for strength a d balance for the disabled. I. was diagnosed 2018 and live with my dog who ensure I get exercise daily.

You should also find out about free bus pass which should also be available to you as you have PD. However the most Important change for you would be a change in attitude. We are lucky to live in Scotland where you don't have to pay for essential medications

The number for the PD nurse is 01855576062

[sledge]

To the people who experience noticeable benefit from them, vitamins and supplements are not a waste of money at all. For many people, it is money far better spent than the much larger amounts spent on prescription meds that either do nothing or create new, adverse symptoms. That's certainly the case for me. Others find small or no benefit.

PD affects us each in very different ways. We each respond to drugs, supplements, and foods in different ways too. So it's no surprise that what people find helpful or not would vary widely. We don't know until we've given things a try, though, and it's a tedious, long experiment to find what works and what doesn't--for each of us, individually. People here generously share their experiences and research to help each other leap-frog that frustrating and daunting learning curve. I am very grateful.

Is your statement that vitamins are a waste of money based on personal experience, or is it coming from your neurologist or other third party?

[Tilly56 in reply to sledge]

A mixture of views, do really think vitamins are going to help parkinson, keep your money, there only food supplements

[sledge in reply to Tilly56]

If you believe that's the case, and it's founded in your solid, extensive research, then share. I, and my wife, who is a terrific researcher, have spent hundreds and hundreds of hours educating ourselves to come up with an effective plan for me. You seem categorically dismissive of others' success in modulating their symptoms, yet give us no reasons or basis for which to consider your viewpoint, nor any alternatives. What do you suggest? Can you give us a more than a drive-by sentence?

[LAJ12345]

Hardy’s daily essential nutrients made such a difference to my husband’s anxiety and depression and apathy it was like night and day. Not a waste of money!