Would anyone care to speculate why Levodopa carbidopa 100/25 - 3 x daily - taken 2 hrs after meals, only kicks in 2:30 hrs after swallowing and works only for about 30 min...
I have been taking it since mid Feb. A couple of days after starting, I got this new rigidity that looks like dystonia . This is different from my "regular" PD rigidity. Got the same when tried Levodopa in 2017. It had returned to normal after a couple of days when stopped Levodopa then. Was always afraid of it afterwards but my new neuro did not believe I got Levodopa induced dystonia and insisted I degenerate so quickly because I did not take medication. So I am giving Levodopa a chance since Feb.
After 2:30 hrs, Levodopa kicked in as a form of relaxation of my enlarged-flexed left thumb. It also gave me a bit less rigidity to affected shoulder and leg and a minuscule arm swing back.
These results only lasted for a couple of weeks. I am now left with this Levodopa induced dystonia and no benefit.
I have an appointement with neurologist next week and want to prepare. I would appreciate any comments you may have.
Note: I am on 200mg B1 since beginning of Feb. Dr C had me start with 2000mg last year, overdosed, half dosed, started again lower dose, again and again always overdosing until Dr C stopped answering me. Tried both oral and shots.
Symptoms started Oct 2016 at age 55. Important rigidity on all of left side of body. Haven't been able to walk more than 1 or 2 minutes at a time since then. Foot dragging, muscle weakness after any kind of activity. No tremor.
Thanks all