I’m only 5 yrs in. just added C/L (10/100) per day to my vit supplements and exercise and deep massage routines. Great results.
Haven’t tried “A” but have a friend who recently started it. Will stay tuned and get back when results are better understood.
Hang in there!!
Hi SELFMeder. Have you tried doing fast walking yet? If not, then give it your best shot because it is the ONLY THING THAT HAS BEEN SHOWN TO SLOW DOWN THE PROGRESSION OF PD. I have not needed to take any Pd medication since 2002 an at the age of 84 I lead a 'normal' life. I am still able to walk 7 kilometres in an hour, which is something!
You've never had trouble with tripping while fast walking? My hubby has apathy as part of his PD, dx right before our 50th anniversary in 2013. I really can't remember how his symptoms started but at first he was at a Nuerological clinic with the Univ, about 50 miles away and our son went with him to monitor the exam...he works in a research lab at the Univ. and right now is studying possible pain control with deep sea snails but he only does the computer part. Anyway, I was pleased with the attention hubby received there. Then his nuerologist moved to another state so instead of the long drive to the Univ. he decided on a nuerologist here. All he gets is an occasional appt. and "you're doing well...keep it up". We did go to an exercise class here that was specifically for PD. I kinda joined in as I have Fibromyalgia. Then the therapist who started it also moved so after that he tried the new class but it got too pricey. I thought it was good for him but he just wore down. The apathy got ahold of him and he fell twice...I think due to Resegiline affecting blood pressure. Now he takes it once in awhile when he has some freezing of legs. I noticed that it may be an antidepressant too but he claims he's not depressed. The tremors seem to be pretty well controlled by C/L and he only takes 1 or 2 in the eve. Now that the snow is gone I may suggest fast walking together and try to find a smoother sidewalk than our area. He needs to lose weight and he has a persistant cough which has to be PD related. He won't go to his reg. Dr. I don't know if I can get him going on this because I too give in to apathy, having depression for many years with the Fibro, Chronic Fatigue...and age as we're in our mid 70's. I've taken Cymbalta for years after trying others. A friend who was dx before hubby has kept on with exercise and more takes more med., is looking good but PD seems to have advanced him to using a cane. I don't know if this has caused dyskenesia or not. We go to a support group and they talk at times by phone. I picked up a couple of books last time on PD but find them depressing more than helpful. Both of his do not get much done around the house. I find that any social situation, even with family, causes me anxiety and possibly him too because he doesn't want to show his symptoms. We both have trouble finding words when we talk so why bother. I do feel that he's doing pretty well altogether but if I could get us walking...then fast walking, it'd be better. Thanks for advice. BTW, hubby used to coach, ref. and play soccer and had a job that was physical so early retirement helped put on weight tho at first it was to help our daughter and moving temporarily, and family before during and after her death from cancer in 2006. Don't think he had PD then. Continued good health to you. At your age I don't think it'll get the better of you. M.A. in USA
Hi Grandmama. That is one hell of a load of information for me t respond to. Please email me via my website - reveresparkinsons.net and I will send you videos and a whole lot of specific articles on each of your problems. This platform is not the place to give a personal response to your problems. Kind regards!
I'm so sorry that my reply was so long. Right now my IPad is giving me trouble, going off the Internet, and I couldn't access your site. I'll try later. Don't understand why it does that and yet I can make this reply. I am not computer savvy but even my kids who are can't figure it out. Bye for now.
I'm 84 and I know the feeling!
You are amazing. My mom was too....she walked a lot and was mowing her own lawn at 87. Had a stroke the next day that took her memory but not her body. Life is cruel. She had beaten 2 kinds of cancer. Had to move her here, 800 miles away knowing very little about her finances etc. but I was on her checking acct. Had to blindly sell her place. Died at 89 from brain bleed that I believe was medication related. We found many hidden in her dresser. Keep healthy, John. You are doing something right. M.A.
Thanks for the kind words. I admire her strength and determination. I wish we all had her strength to keep going!
John
I continue to follow your guidance with great interest.
I have been fast walking for a couple of decades. But I cant seem to push myself beyond a mile or so 4-5 times per week. Whereas I used to regularity fast walk 3 miles per session on a tread mill.
Don’t know if I’m just too lazy or reluctant because I have had meniscus trims on both knees and weigh 210 lbs. Could be because of my short gait with inseam of only 30 in. Just dunno!
I started having PD symptoms 5-6 years ago, but dismissed them as old age process. 5-6 days on treadmill for 1 hr probably masked much of the early stag symptoms.
Added Sinemet (C/L 25/100) about a year ago and it had a very positive effect on all my symptoms.
Not sure how “normal” is possible... but I know I am mostly near normal most of the time....
Bob
Hi SELFMeder. You have not been following what I have been telling you! I recommend that you walk EVERY SECOND DAY! not every day.
You can walk on a treadmill instead of outside on the road. But it is nowhere near as successful.
Let me explain what fast walking does, When you walk AS FAST AS YOU CAN, your brain produces a chemical called GDNF, which repairs or replaces the damaged brain cells. If you are not walking at a level that tells the brain you must be in trouble, when the 'Fight or Flight' condition happens and it produces the GDNF then nothing happens.
You are confusing EXERCISE with REVERSING PD. The tow are not the same.
If you would like to contact me, so that I can help you then visit my website - reverseparkinsons.net and contact me. I really can help you.
What is "A"?
I think it is still the first letter in the alphabet. Why do you ask?
Because of SELFMeder's original post at the top of this thread: "Haven't tried "A" yet...".
Just joking! A little bit of laughter goes a long way!
I find it hard to believe , you take all the untested supplements, and when you finally try the tested medication, and it works, you act surprised?
On this site you will find hundreds of suggested supplements. A sure indication that none of them work. If any one worked, we would all be taking it.
C/L works so well, it is a test of diagnosis. If you don’t respond to it, you don’t have PD.
Hi Condor39. When you say it works, I am sure you don't mean it cures Pd! Medication, at best, only temporarily masks one or two of the symptoms. We are still left with the Pd.
Fast walking causes our brains to repair the damaged brain cells which then produce more dopamine and the symptoms slowly get better. The problem is that the Pd continues to damage more and more brain cells. So I play catch-up all the time and if I keep up the fast walking I stay virtually free of most of my movement problems. When I pick up injuries or I get chest infections and cannot walk until they have been cleared up, I get a bit behind and have to catch up again.
Is alpha synuclein aggregation an immune response? 
Long-lasting response to levodopa in Parkinson's. Another important discovery funded by the Grigioni FoundationTuesday, 07 July 2020.
Need help please, sense of smell, response to C/l, and sleep issue POLL
Dr C response time
Sinemet, slow or delayed response to this med anyone?
