PD without tremor

[guy1947]

Does anyone else have PD without tremor? My neurologist told me that PD without tremor is more difficult to treat than someone with a tremor,maybe this is why B1 thiamine don't work along with other medications.

[MBAnderson]

I don't know if that's true, maybe so, but I doubt it because there are so many people in each camp for whom nothing has worked. I'm tremor dominant and have the same experiences as you.

[mannp]

I have parkinsonism. Loosely put it is PD without tremors. I have been successfully taking the b1 thiamine hcl. All my symptoms have improved or are gone. I've been taking this since the end of November. I do not take any PD medications. It is highly recommended by Dr. Constantini to take PD meds with thiamine hcl. I have not needed meds yet. So yes thiamine does work with or without other meds but is not recommended. You will get a much better response with taking both. I did not like the side effects of the PD meds in 2014. If it becomes necessary I'm not opposed to trying them again.

Margie

[Hidden in reply to mannp]

Thank you. Happy for you.

[Spudrock in reply to mannp]

Hi there. Always nice to read some positive news. I am into my 13th year of parkinsonism. No shakes or tremors but walking is poor. Just started a 4mg neuro patch which is helping smooth things out. Not tried B1 yet. How much are you taking?

[mannp in reply to Spudrock]

I am taking 3 grams (1.5 grams twice a day). I started with 1g twice a day. Just make sure you take b1 Thiamine hcl. No other thiamine will give you benefits. I too have walking difficulties. My balance has improved but still have ataxia. I continue to use a walker. I haven’t fallen except when I tried lowering my dose recently. I fell three times in a few days so I increased the dose up.

[Reginald1]

I have been taking 1gram a day for about 2 months and have noticed a big change in my moods, I am not feeling anxious or depressed since taking it. I have virtuously no tremors so this is all I have to go by..

[Hidden]

B-1 is compatible with all standard PD meds.

Art

[Cagey84]

I have almost no tremor and am doing pretty well since diagnosis in 2012. The tremor-dominant and posture/gait-dominant distinction is very crude and in my view difficult to generalise. More recent work is looking at 4 sub-groups which again don’t capture everyone.

Your Parkinson’s is your Parkinson’s so I would manage it with the neurologist in the way that’s best for you.

[Judyrsmith]

First- nicotine is somewhat. Neuroprotective. (Swartzchild at Harvard). I neVer smoked but now use nicotine patches to slow progress

Also ha

[Judyrsmith]

Sorry In bouncy car

Little or no tremor. Stiff, SLOW, losing some balance.

Love my Azilect, Mao uptake inhibitor. Hate side effects of mirapex and sinimet

[Stardezine]

My husband has NO tremors But he has shoulder pain and legs weak he shuffles but again Rytary medication has helped a lot