I am a massage therapist. Tomorrow I am taking my client and friend of 16 years, who has PD to a doctor she has never met. Her PA who works for this doctor is on maternity leave.My client’s left leg is so tight at the hip joint and knee joint is so tight that they click like a mechanic’s ratchet handle when you try to move them. She is taking 500 mg B-1 once in morning. And her normal Parkinson’s medications, and coQ10 200mg.
I have no appropriate credentials, but have studied nutrition as an avocation for 47 years. I am going with her to ask if we can try more B-1 , or no flush niacin 500 mg 4 times per day plus a complex 100mg once per day.
She is in a nursing home and can’t take anything without Doctors prescription.
Any suggestions.
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Tempest22
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Muscle tightness on the affected side is a typical Parkinson's symptom. This is a sign she is under medicated. In the long run optimizing her B-1 dosage is in order. In the short run increasing her Parkinson's medications may be appropriate. It would be helpful to know what her current medication regimen is.
Whether you realised or not the use of the word ratchet is applied to the joint movement in PD. Ratchet movement of the wrist is diagnostic of pd. she needs levadopa so she can move properly and exercise. I doubt the doctor will be interested or knowledgeable about B vitamins. Worth a try.
Thank you Park Bear,Hikoi, andMother father for your replays. We got another PA who was filling in for the original PA and my friend's daughter had only told them when she made the appointment that her mother had hip pain and pain in one hand. This PA was not experienced with Parkinson's, more was she conversant with nutrition, so she said we would have to wait until April when the other PA was back from Maternity leave.
We got some good news. My friend’s daughter called her mom’s neurologist of 20 years who up to recently seemed not interested in nutritional approaches. And he agreed to prescribe 100mg niacin 4 times per day and one B complex plus. By Pure encapsulations.
She has been receiving it for 6 days now. It seems to be helping some. What I was rooting for was 3,000 mg no flush niacin per day but the daughter got confused and asked for 100mg 4 times per day. But it’s a move in the right direction. I’m going to see her today and I’ll see if I can find out what her meds are.
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