New here

[girly49]

Hi

I am thrilled to find another site for info on my p.d. I have been diagnosed since 2008, at 48 yrs of age...

[laglag]

Welcome! I was diagnosed at 46 in 2003. Do you live in the U.S.? Do you take meds, supplements or exercise?

[girly49 in reply to laglag]

Hi

Thank you..i live in new york...o take sinimet every 3 hrs..and i was exercising but have slacked off ...i need to restart my exercising and am working on it..how about yourself?

[laglag in reply to girly49]

I take C/L in the form of Parcopa (dissolves on tongue) 4/ day, 2 Azilect, 2 Amantadine, Vit C D3,Krill oil, coconut oil, healthy chocolate & do rock steady boxing.

[M_rosew in reply to laglag]

I understood that the max dose of Azilect should be no more than 1mg daily. (?)

[laglag in reply to M_rosew]

M_rosew Yes that's what my doctor said, the maximum amount of Azilect should be 1mg. each day. I just checked & mine is 0.5 mg twice a day. Possibly if someone is taking 1 mg only once a day, it might benefit them to take 2 0.5 mgs. per day??

[Kewlfox]

Welcome to you from the UK......

[girly49 in reply to Kewlfox]

Thank you

[Beckey]

And welcome from the "Left Coast" (San Francisco). This is a wonderful group!

[girly49 in reply to Beckey]

Ty ...i lived on levenworth street one year before the earthquake..wiped out my bldg..guess i am supposed to be here...lol

[12stargate in reply to Beckey]

Beckey I did not remember you live in SF. Wonderful city.

I just love it!

I hope you are having a good day

Love, Eva G

[Beckey in reply to 12stargate]

I love it, but sometimes I hanker for "the four seasons" -- especially fall and spring!

[oceanflower in reply to Beckey]

And welcome from the other "left coast" in Vancouver, Canada!

[Beckey in reply to oceanflower]

[andrewij]

Try to maintain the exercise, I believe it is good for the mind...

[girly49]

Ty

[JohnPepper]

Hi Girly. Contrary to what you may have been told, There is something we can all do to reverse many of the movement symptoms of Pd.

My first symptom started in 1963, when I found that I could not throw a ball properly. I was finally diagnosed with Pd in 1992, when my symptoms had slowly got worse and worse until I started to shuffle and the neurologist was able diagnose the Pd.

Because of severe back problems, I had been going to the gym every day, six days of the week, until diagnosis. Then I increased the time to 90 minutes a day. In 1994 my symptoms had accelerated and I decided to stop going to the gym.

Since 1994 I have been doing Fast Walking plus taking an MAO-b inhibitor, managing stress levels, keeping a positive attitude and doing regular mental stimulation. By 1998 most of my visible symptoms had disappeared. By 2002 I was able to come off all my Pd medication, and have continued to be medication-free ever since. I am 82 years old now and live a 'normal' life, full of purpose!

You may think that you will not be able to do Fast Walking, but I have found that not to be true with many other patients. I go all over the world showing people how to walk properly, with only three exceptions among hundreds of seriously affected patients. Above all else, walking costs nothing and everybody's health improves, when they do fast walking, and if you put everything into it, then that may include yours.

View my website - reverseparkinsons.net and contact me from there.

[ramondo4]

Hi John Pepper,

Once again your fast walking advice is kindly given to us, what about

the PD sufferers like me that have a problem walking SLOW, I am sure

that I am not alone suffering from constant foot pain, dead legs, bad balance, and constant fatigue, if only it was that simple just to hit that

road at speed. I am sure you have helped many, I am still using my

exercise bike in anticipation of a burst of energy.

[Voller]

Hi it's my husband

Yes he does but only low dose at present

With coconut oil also lots of healthy smoothies

Mixed with flaxseed

And boxing excersize 3-4 times a week

He runs he's own building company

I'm praying he can stay active and on top of he's symptoms fir as long as possible

[12stargate]

Voller Sounds like your husband is doing well.

Expect the best in the future

Blessings, Eva G.

[Voller in reply to 12stargate]

Thank you so much

I hope you are doing well

Candy

[12stargate]

Voller

You are sweet I have my days of discouragement, but for

the most part, I get over it.Optimism goes a long ways.

My best to you and your husband!

[Voller in reply to 12stargate]

Morning

Hope your day is positive today

It's a beautiful day in sunny Kent

Best wishes

Candy