Need advise on B1 dosage: So I started on... - Cure Parkinson's

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Need advise on B1 dosage

1953bullard profile image
40 Replies

So I started on 4g of B1 hci 5 days ago. 2g 2x a day. It seems my symptoms are worse. I’m female 5’8” 155 pounds, very mild PD, mainly right hand tremor. It seems I’m tremors g more and having foot weakness. I take 50/200 C/L er twice daily. Should I stop the B1 for 5 days then cut down to 2g per day?

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1953bullard profile image
1953bullard
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40 Replies

That is correct. It is until you can discover if or not to blame B1.

Parkinson's Relief, Questions and Answers Link: healthunlocked.com/parkinso...

jimcaster profile image
jimcaster

Did Dr. Constantini recommend 4 grams per day? I emailed him and he only recommended 3 grams per day for me. I was just diagnosed, have very mild symptoms and am a 198 pound male. Four grams seems a lot for you.

1953bullard profile image
1953bullard in reply tojimcaster

No I haven’t emailed him. I probably should do that.

dreem profile image
dreem in reply tojimcaster

where do you email him and what info does he need

whatadrama profile image
whatadrama in reply tojimcaster

I have emailed Dr Constantino. . No reply so far...

Rosabellazita profile image
Rosabellazita in reply tojimcaster

What is his email?

hanifab23 profile image
hanifab23

Yes he recommended 3 grams a day for me I am 5'6" 135 pounds

he told me to try it for 10 days and than get back to him

Smokeypurple profile image
Smokeypurple in reply tohanifab23

2 grams a day 5'4" 55kg

Rosabellazita profile image
Rosabellazita in reply tohanifab23

How much is 3 grams

danfitz profile image
danfitz in reply toRosabellazita

0.105822 ounce

andrehypnotic profile image
andrehypnotic in reply todanfitz

3.000 mg

Gioc profile image
Gioc in reply toRosabellazita

A mg is one thousandth of a gram so you need 30 tablets of 100mg to make 3 gram. 6 tablet of 500mg to make 3 gram.

MMmm7 profile image
MMmm7 in reply toRosabellazita

1 gram = 1000 mg.

So

3 grams= 3000 mg.

KERRINGTON profile image
KERRINGTON in reply tohanifab23

How are you doing on B1 ?

Imdefeated profile image
Imdefeated

Email Dr Constantini. Give him as much info as possible. He will give you recommendations.

sandog profile image
sandog in reply toImdefeated

I'm curious about when to stop taking Sinemet when starting the 2-4 g/day thiamine regimen. I only take (2) 25/100 Sinemets/day, and sometimes that seems too much. I'm interested in the exercise and MAOb inhibitor (Selegiline) to slow my minor symptoms.

It's sort of a hybrid approach as per John Pepper and Dr. Constantini. I'm first getting my blood test for B1, and then talking with my neurologist.

MMmm7 profile image
MMmm7 in reply tosandog

Be extra careful in titrating down Sinemet.

Neurologists adjusts meds by big leaps.

Pls.read ONCE UPON A PILL by Janice Hadlock. Her article csn be downloaded online for free. Long read but loaded with experiences of pts. related to not being careful in adjusting meds. I think her recommendation the 10% rule. 10 % every 10 weeks increase or decrease.

1953bullard profile image
1953bullard in reply tosandog

Why would you stop taking sinemet? It works better in combo with the B1 protocol

AmyLindy profile image
AmyLindy in reply to1953bullard

Concur

in reply to1953bullard

Yes! Works better.

in reply to

Hi Roy, what brand are you using?

in reply to

Vitacost

in reply tosandog

sandog,

Since you plan to have a thiamine blood test, it is worth mentioning that Dr. Costantini has found that in his experience at his office in Italy that his patients have generally shown thiamine levels that are in range and once started on HDT, those same tests are off the charts.

Art

Kellypeters profile image
Kellypeters

You should definitely email dr Constantini. The dose can be different for everyone and may not be as straight forward as following what other people are taking. If you google translate your email into Italian the response is quite quick. It’s not hard to do and much better than guess work. You will find the right dose quicker with good and very experienced advice. There is no need to try and work it out on your own. What is right for others might not be right for you.

wolfie43 profile image
wolfie43 in reply toKellypeters

Could you kindly tell me how to Google translate my email into italian? I can't seem to figure it out. Many thanks.

in reply towolfie43

Enter translate in google search and click. Enter text and select language then click

Kellypeters profile image
Kellypeters in reply towolfie43

There’s also a google translate APp you can download. There is a button down the bottom in both that will copy the translated text for you to paste in your email.

Jumex2017 profile image
Jumex2017 in reply toKellypeters

dont see the bottom button.at the bottomthere is home, saved and settings

Celtis profile image
Celtis in reply towolfie43

I have contacted Dr Costantini by email in English. He has English speaking research people working with him and I have had replies to all my queries within a day. How can we ever thank these wonderful, dedicated people!

Angela profile image
Angela in reply toKellypeters

I am sure someone posted his email already, but if someone would be so kind as to do it again, I would appreciate it. I want to write him, too, for suggestions and dosing and will ask one of my docs to contact him as well. (I think in the interview that was suggested, so that the word gets around and so our PD docs know what we are doing and to keep an eye out for possible issues.

in reply toAngela

In my profile

Kellypeters profile image
Kellypeters in reply toAngela

carapetata@libero.it

tarverusmc profile image
tarverusmc

yeap

Angela profile image
Angela

After hearing the interview of the MD in Italy by Robert Rogers at Parkinson's Recovery a week or so ago, I'm very interested in this topic. My tremors and neuropathy are worsening by the day, which is quite scary, and ergo I am open and willing to try new approaches (many of which I have tried over the last 15 years).

Angela profile image
Angela in reply toAngela

Somehow it looks as though I, Bob, have been renamed as Angela. I have no idea how that happened. Is there a bug in this web board that causes renaming?

in reply toAngela

Hello Bob! Are you, have you returned Healthunlocked.com/parkinsonsmovement, as Bob?

Angela profile image
Angela

Hi this is serious I have never posted this reply or posted anything on this question don’t know what’s happened

Angela profile image
Angela

Is it a technical problem ??

Jumex2017 profile image
Jumex2017

Did you write to Dr C? He will tell you. I believe there is a scale according to your weight.Then it get adjusted if its not right.

AmyLindy profile image
AmyLindy

Concur

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