Looking for new doctor in NYC: Reached my... - Cure Parkinson's

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Looking for new doctor in NYC

Miraya profile image
5 Replies

Reached my maximum dose of levadopa. My doctor isn't recommending anything else. Looking for another doctor in NYC that can provide any other recommendations. Many thanks! -Raya

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Miraya profile image
Miraya
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5 Replies
aspergerian profile image
aspergerian

What is your recommended maximum?

Miraya profile image
Miraya in reply toaspergerian

7 tablets a day

Lynne1946 profile image
Lynne1946 in reply toMiraya

I am taking 16 tablets a day. I just had DBS surgery and waiting to see the doctor to start reducing my dopamine.

park_bear profile image
park_bear

That "something else" per most doctors would be dopamine agonists. I think you have got a pretty good doctor as it is for not pushing those. I recommend you try working with the current doctor and see if he or she will prescribe you an MAO-B inhibitor such as Azilect or selegiline.

You might also want to take a look at the ongoing discussions on this site regarding high-dose thiamine.

paddyfields profile image
paddyfields

If your doctor is not a specialist in movement disorders, then he is right to be cautious but surely better placed than a non medic to make some helpful suggestions as to the way forward as regards seeking other advice? The following info. might be of some use:

From the FDA advice via drugs.com re carbidopa/levodopa (Sinemet), assuming y our tablets are not just levodopa on its own which is not usual as far as I know these days.

"Usual Initial Dosage

Dosage is best initiated with one tablet of Sinemet 25-100 three times a day. This dosage schedule provides 75 mg of carbidopa per day. Dosage may be increased by one tablet every day or every other day, as necessary, until a dosage of eight tablets of Sinemet 25-100 a day is reached.

If Sinemet 10-100 is used, dosage may be initiated with one tablet three or four times a day. However, this will not provide an adequate amount of carbidopa for many patients. Dosage may be increased by one tablet every day or every other day until a total of eight tablets (2 tablets q.i.d.) is reached.""

A generic (ie cheaper) version of Azilect is available (called rasagilene in the UK) and is designed to help your system make better use of the dopamine you have.

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