Looking for a PD specialist

[telemag]

Can anyone please recommend me a really good parkinson's doctor in Los Angeles Valley area? Thanks

[12stargate]

telemag May our frinds have some really good ones to suggest, and may one of them perfect for you

[JohnPepper]

Hi Telemag. It is interesting to see two questions this morning about trying to find a neurologist in their area. I have to say that I hear from so many people that their neurlogist does not listen to them and they don't tell patients anything about how to deal with Pd, in addition to taking medication.

Because I have been able to recover from most of the more serious effects of many of my symptoms and have no longer needed any Pd medication for the past 14 years, I have met a great deal of scepticism from neurologists who have not ever met me. This is, in my opinion a knee-jerk reaction, which can be expected. There are many people who have claimed that what they are 'selling' will cure Pd and/or make it better. I do not sell anything, other than my very amateurly written book. People do not have to buy my book to find out how I managed to get where I am, they can go to my website and pick all the tips up for free.

I am currently going all over the English-speaking world, at my own expense, which I hope will be donated back to me by 'excited patients', who have witnessed how they were abe to walk properly, within a couple of minutes of being shown how. Only two doctors have ever spoken to me about what I do. Isnt that telling us that they are not even interested? I would not spend a fortune on air tickets if I thought that people would not be excited about what they hear from me and what they witness. If what I am doing and saying does not work, I would be losing a lot of money.

Doctors are trained at great expense to dispense medication based on experience gained over thousands of years. Because exercise does not fall within their training and because exercise has not, until ecently, been known to have any effect on Pd. But that does not mean that it is NOT TRUE!

There is something that nobody seems to understand. I, as a patient, found that if I concentrated hard on my walking, I was able to walk properly. When I lose that concentration I immediately shuffle. I will state quite categorically that MY CONSCIOUSLY CONTROLLED MOVEMENTS ARE NOT AFFECTED BY PD, WHEREAS MY SUBCONSCIOUSLY CONTROLLED MOVEMENTS ARE!

THAT IS WHY I AM ABLE TO SHOW PEOPLE EVERYWHERE IN THE WORLD TO TAKE CONSCIOUS CONTROL OF THEIR MOVEMENTS!

Neurologists, or the teachers of neurlogy, must take note of these changes in approach to dealing with Pd.

Patients need information and suport in their struggle with Pd!

I am 81 years old and cannot expect to take another 14 years trying to make people with Parkinson's aware that THERE IS SOMETHING THEY CAN DO TO MAKE THEIR LIVES, AND THOSE AROUND THEM, MUCH MORE ENJOYABLE.

John

[Renowife]

Go to Partners in Parkinson's.org and look up a Movement Disorder Specialist in your area. I hope you find this resource helpful. I know I did. Good luck!

[telemag in reply to Renowife]

Thanks Renowife

[telemag]

Thanks

[grower]

I just went to an excellent Dr (mvt specialist/neurologist) at UCLA, Jeff Bronstein, and Dr Katie Mayo. Really helpful, not rushed, big promoters of exercise Dr Mayo is shifting to another place but definitely both are worth looking for.

[telemag in reply to grower]

Thank you grower.

[enjoysalud in reply to grower]

I tried to get an appt with Dr Bronstein about a year ago. He was not taking any patients, concentrating on research. Was your appt recent?

[telemag in reply to enjoysalud]

I'll check it tomorrow... I didn't see this doctor and have no appt. grower had

[grower in reply to enjoysalud]

I managed to get in a couple of weeks ago, someone had cancelled. The main consultation was with Dr Mayo who at that time was a fellow ( now fully graduated) but Dr Bronstein also spent 20 minutes with me. I was so impressed and grateful to them both for their care and concern, as well as their expertise.