Pills that just don't work!

[Bailey_Texas]

For two days i have had very little "on" time. I have been in pain, i have been stiff, my legs have been weak and i just have felt like sh**. I have been using the same bottle of meds for 2 weeks and up till 2 days ago i was doing fine. I had my pills refilled and i took my meds (from new bottle) at 4:30 pm at 8:30 pm i took the next dose. I did not have any problems. I had no pain, no stiffness, i feel great. I have not had more than two hours straight in two days. I will update tomorrow. I hope this was the problem. It is 9:30 pm and still doing good.

the image is my daughter and my grand baby Simone. Simone is getting married in August. She will graduate Texas AM in September.

[parkie13]

All my good thoughts go out to you Mary

[racerCP]

That little girl is to die for

Obviously loves the photographer.

[JohnPepper]

People don't like me telling others this but it is relevant and true. No Pd medication was designed to reverse or slow down the symptoms of Pd. Therefore, whether you take the medication or not your condition will continue to get worse at the same rate.

If you want some of your symptoms to start getting better you should commit yourself to doing some regular energetic exercise. Through fast walking I have been able to reverse my symptoms and have lived, medication-free since 2002.

If you would like to learn more look at my website - reverseparkinsons.net and contact me. I will send you lots of information at no charge.

[dopedope in reply to JohnPepper]

when i started on two pills 3x a day i couldn't stand upright. my legs were affected or my leg ws affected. my head was all right, it was my leg because when seated i was fine. aproblem because driving lisence is up for renewal. i look like i'm drunk.

so i decided to go off meds and there was improvement right away. i take pill, 1/2 pill when rls or tazer shocks warn me.

i think i have atypical pd, vascular pd. don't think neuro ad benefit of my last mri, which i thought was cloudy.

so far so good. this am i have to bend my knees to walk or else i spring. strange, but true.

my appetite is better, awful taste going, at least i am not falling down, mood improving.

i think i have an improving dopamine status.

too much to hope for?

[dopedope in reply to dopedope]

no ill effects this am. still poor balance, but i'm not lurching for a couch. i can walk, springs are not there.

appetite still iffiy, but i ate some when i ha energy surge 2;00am last night. my bowels are holding, urine is stil streaming instead of leaking, arm is still ok, not effected like when i was first stricken, viens returned to normal this am after a bout of bulgy viens. looked up vasopressin this am and noted tthhat ere is a blood test for it. it can indicate infection, tumour, etc., etc., i had evidence of infection. wonder if neuro checked it out. he told me he used test for leukemia. need second opinion.

pdcenter.neurology.ucsf.edu... healthline.com/health/adh

[Bailey_Texas in reply to dopedope]

Go to a family doctor. Tell them what you suspect that is wrong for you and have them do a work up on you

[dopedope in reply to Bailey_Texas]

docs around here are diff, don't know how to describe it, you know how docs used to be treated like dieties ? well you are expected to worship, i say, by not uestioning. informed clients you wqn't find here so i guess they're used to complete compliance. indeed public med does not encourage talking to patient. bedside manner is too expensive.

going to channge cultures, shortly. moving.

[Greenday]

Discuss with your specialist to introduce Xadago fda.gov/NewsEvents/Newsroom... a recently approved add-on medicine able to reduce off episodes.

[Hikoi]

Bailey you are going through agonist withdrawal. Trying other drugs doesnt fix it. As well as feeling very weak and barely able to walk it affects mood and can make you feel low.

[Bailey_Texas in reply to Hikoi]

Good morning Hikoi.

Thanks for the information.

I may be having some withdrawal but what i have read C/L does not help withdrawal

but when take C/L I do not have any symptoms at all.

“The clinical manifestations of DAWS were highly stereotyped and closely resembled other psychostimulant withdrawal syndromes, with prominent psychiatric (anxiety, panic attacks, dysphoria, depression, agitation, irritability, fatigue) and autonomic (orthostatic hypertension, diaphoresis) manifestations,” stated the researchers. “Levodopa, other Parkinson’s disease medications, antidepressants, anxiolytics, and psychotherapy were of no benefit in mitigating DAWS symptoms."

mdedge.com/neurologyreviews...