hair loss

[uvmmom05]

Has anyone noticed they have been losing their hair while using cardilopa-levodopa? or Mirapex?

[GymBag]

I used to have hair on the back of my hands, arms ,legs, chest , top of my feet. It all disappeared 6 or 7 years ago. I have been slowly reducing the amount of Requip (Ropinerole) over the last 2 years and 6 months ago I started getting some hair back. Not sure but I think Requip is similar to Mirapex. I am fairly sure that my hair loss is not due to Leva/Carb or Amantadine because I have increased them as I drop the Requip. My younger brother (Alzheimer ) likes to comment on my smooth Girly legs. Of course typical of PD , my eyebrows, and the hair in my ears and nose and facial hair that I shave is growing at 2 or 3 times the old normal rate.

[uvmmom05 in reply to GymBag]

Thank you for your reply.

[ge1shh]

My hair has thinned since taking Madopar. It also thinned when I took pills for high blood pressure, but recovered growth when I stopped that medication. I was happy for a while, but then I started the Madopar having been recently diagnosed with PD, and have lost hair thickness again.

[uvmmom05 in reply to ge1shh]

I am on both carbidopa-levodopa and mirapex. not sure which one or both is causing the hair loss. they have cut me off of carbidopa-levodopa and PI have an appointment in a couple days.

[ge1shh in reply to uvmmom05]

It's difficult to be sure of the cause - could be other factors too. I hope your hair loss is not too noticeable. I assume you are female? I bought a wig, which I wear fairly often for social occasions when I dont have time to wash my hair or go to hairdresser. I wouldnt like to wear it all the time, but am really pleased with it, and most people don't realize it's a wig. I got it free of VAT tax (in UK), as my reason for purchase was accepted as medical. It will take a month or two before you can be sure if levadopa is the cause.

[uvmmom05 in reply to ge1shh]

I am female and on other medications as well with other diagnosis. I have an upcoming dental procedure or all teeth removed and dentures in, so this adding a wig would be just the icing on the cake.

[ge1shh in reply to uvmmom05]

I have just read your Profile, so I see you have a lot to deal with. I don't have those other conditions, but I have osteoporosis, which will increase my risk of frailty with the Parkinsons - if my balance gets affected there is the risk of falls and fractures. Also prone to sciatica. I am finding that walking and exercise is beneficial - I started a PD 'Boxercise' class! Still in early stage of Parkinsons, age 70 (it's still a shock not to be 60something any more ... Hope all goes well for you.

[uvmmom05 in reply to ge1shh]

I am glad you are finding the exercise helping you.

I try to get out and walk as much as I can with "my buddy" (my walker). haha

[Beckey]

While I was taking sinemet my hair started coming out in bunches. I stopped sinemet and went to dopa mucuna about 3 months ago but never regained my normal amount of hair.

[Bouffere85]

Yes yes ! I have been diagnosed 7 years ago and indeed have been loosing hair everyday ! Did not make the relation with Sinemet, that’s interesting! Would there be a study on that?

Good luck,

Chantal

[Bouffere85]

Forgot to add I am on Sinemet but not on Mirapex

[Ajssister]

My bro keeps complaining about losing his hair. He’d been on CL for about 3 yrs so maybe there is a connection. But... he’s also on 2 blood pressure meds as well. So I’m just sayin 🤔

[reneep]

Yes, I have experienced it also. I believe it is the carbo/ Levi. I started taking hair vitamins and it seems to have stopped shedding. The shaft even seems thicker but I have not regained what I lost.

[uvmmom05 in reply to reneep]

I have found out from my neurologist that depakote has a bigger chance of causing hair loss (I have bipolar also). I lowered teh dosage of depakote and hair loss is a lot less.