Tingling in hands and feet

[laur22em]

Has anyone had tingling in their hands and feet? My husband may have early onset of pd and is starting to feel tingling in his hands and feet. Anyone else have this?

[jeeves19]

I do have this yes but it wasn't something that presented itself as an initial symptom. I'm still trying to get to the bottom of it as apparently it isn't a cardinal symptom of PD but can be an expression of Pernicious Anaemia. My research so far points in the direction of B12 issues. Maybe get him tested for vitamin deficiency, especially in the B's? Best.

[BUZZ1397 in reply to jeeves19]

I think that’s great advice I benefit from B 12 and from folic acid which I learned from Silvestrov

[park_bear]

I agree with jeeves - this is not an initial symptom of parkinson's as far as I know. I believe the general category of this symptom would be peripheral neuropathy. Is he a diabetic? Any new medications?

[laur22em in reply to park_bear]

No diabetes and no medications. Just an odd new thing with the tremors.

[ramondo4]

I agree with Park bear about a dxd

[ramondo4]

Sorry I had not finished, my periphial neuropathy started with tingling in feet and then hands, you can ask for a nerve test.

[jeeves19 in reply to ramondo4]

Ramon. What are you taking for your peripheral n? I am getting pretty bad with it and Levadopa doesn't seem to get to the heart of it. Any advice appreciated.

[Hidden in reply to jeeves19]

I have a friend who did very well with acupuncture for PN.

Art

[jeeves19 in reply to Hidden]

Thanks Art. Something else to have to fork out for! Everybody raves about the NHS in the U.K. but when it comes to anything classed as alternative , it’s a cul de sac sadly.

[Hidden in reply to jeeves19]

It's pretty much the same on the other side of the pond, natural means you pay! There are a myriad of alternatives for the purpose such as R+ALA + L-Carnitine, magnesium, high grade fish oil, gingko biloba, benfotiamine, but again, these are out of pocket extra expenses.

Art

[jeeves19 in reply to Hidden]

Thing is Art, I stopped a lot of my other supplements when I heard Doc C comment that B1 was something of a stand alone. I think I got it into my head that too many supplements may impede its use? Your observations appreciated.

[Hidden in reply to jeeves19]

I don't think the right supplements impede, I think the right supplements can help. This is why I mention magnesium in multiple forms, vitamin D, NAC, probiotics, melatonin, prebiotics, riboflavin, xylitol, mannitol and things along these lines. I like the ones that have a better safety profile in order to minimize risk to the user while testing them. There are others as many on this forum have mentioned, but I do not as yet have enough familiarity with them to feel adequate to comment on them. So it is not a case of thiamine is the only one that can help!

The only reason I would hesitate on them while testing thiamine is so you and the doctor can have the clearest picture of what if anything thiamine is doing for you during the first three months and to make it easier to determine dose adjustments. In the grand scheme of things, that is not much time to devote to a supplement which has shown the potential for significant improvements in PD symptoms in quite a few PWPs. Once your dose is stable for you, then you can start to add things in to see if they can be additive or not. Thiamine is a relatively simple protocol, but as has clearly been shown on this forum, finding the best dosing schedule for each individual person may not be so straightforward as 4 grams/day.

As far as thiamine being a stand alone, I do not agree with that statement at all and neither does Dr. C! He has clearly stated that he feels that thiamine and levodopa are "both" needed in order to control tremors and he also adds a certain magnesium supplement to improve on the effects of thiamine. I am not personally aware of any PD treatment that is a stand alone.

Again, as I have stated before, if you are expecting to get the best possible effect from thiamine, it is in your best interest to stay in touch with the doctor by updating him regularly on what is happening with your current regimen so he can make suggestions if needed to try and improve response. I know it can kind of be a pain in the butt, but if it ends up helping you, it may be worth it!

Art

[jeeves19 in reply to Hidden]

Thanks so much for taking the time there Art. Really appreciate you efforts on my behalf😊

[bcowart]

I have pins and needles, too. Took about ten years from my initial dx to really get going. My presenting problems have always been tremor, slowness, and anxiety. But now the peripheral pain (electrical feeling) is s so bad I can't sleep at times and I feel it's worse pain than what I get with the tremors, bradykinesia, etc. It really hurts. Odd thing is that when the c/l hits well, this neuropathy stops, too. I feel normal. I did test positive for small nerve fiber density a couple of years ago, so probably something going on there, physically. I have a hunch though that it might have something to do with low O2 down in the feet because of anemia or autonomic neuropathy. I have Lyme disease too and know that have been told by my docs that Lyme and coinfections (typically Bartonella) can cause big trouble with the NS. I have been trying gabapentin and so far not much help. My neuro also rx'ed nortriptyline for this. I didn't give the nortriptyline much of a chance. The gabapentin (Neurontin) doesn't seem to be helping much, either. I'd like to know what people here have found works for Peripheral Neuropathy, especially at night.

[jeeves19 in reply to bcowart]

10 months later I'm re-reading some old posts. Any better developments with the neuropathy or is it still a problem? I'm struggling I have to say.